Not happy

[COPDPete]

Just found myself looking up what the fatal dose of paracetamol is. Chest has been rubbish again for days. Couldn’t walk for more than 100 yards today and took ages to recover. Saw doc this morning who said chest is clear’ish and blood oxygen is ok. So why can’t I breathe???? Wife is getting fed up with my illness and that’s stressing me out. Hey, I’ve travelled the world, had a career, got wonderful grown up kids. That was a life! Sorry. Not going to do anything silly. Just had to express a bit...... sorry.

[Usgang]

Hi hun, sorry can't offer advice on your copd as I have only been diagnosed with it and still at a loss what it all means and trying to get my head round it all, however if you need someone to talk to, to rant, rave, moan whatever I'm here to chat, stay away from that search button xx

[newlands]

You take care just keep going back to the doctors ,eventually they will find out what’s wrong

You take care

Dorothy

[Agnes62]

Aww hope your feeling better real soon,I can't understand how 02 levels can be good but can't get a breath I'm much the same myself just don't understand it

Agnes x

[COPDPete in reply to Agnes62]

It makes me feel like people think I’m making it up but I’m really not. I had to stop and sit down for 15 minutes after walking slowly for 5 minutes today. Just makes me want to weep. But good on you. Thanks for the response.

[Agnes62 in reply to COPDPete]

You definitely not making it up been there done that wore the t shirt it's the scariest feeling in the world even worse when your out alone and it happens. Keep going back to your GP and hopefully they'll be able to help

Agnes x

[Usgang in reply to COPDPete]

I know that feeling, sometimes I feel like my kids think I'm playing on it, like one of them said you look fine, well yes I might do Sat down but sometimes I get short of breath moving sometimes not, hard to explain to people sometimes exactly how you feel, not just medically but emotionally too, as I'm finding that one out. Xx

[sassy59]

No don’t do anything silly but do try and get a 2nd opinion as clearly something is going on. Good luck to you. Xxx

[knitter]

Have you been given any antibiotics and steroids to help with your wheezy lungs and breathlessness.

I would ring your GP in the morning and explain how you feel , can your wife or a friend who understands how you feel go with you. I can be very breathless and still have a reasonable oxygen level reading.

If you live in the UK , the BLF have a helpline which will be open tomorrow during office hours....03000 030 555.

If you feel more breathless tonight ring 111 for advice .

Best wishes and hopefully you will get help soon.....let us know how you get on.

[COPDPete in reply to knitter]

Hiya. Yes, have ab’s and steroids. Must be seventh course of abs in the last few months. Seeing copd specialist in about three weeks but just don’t understand how all my blood oxygen etc can read ok when I’m so incapacitated. I’m nothing like as ill - so far - as many of the people here but it’s confusing and frightening and I’m increasingly feeling that I don’t want to impose my problem on my friends and family.

[Kristicats in reply to COPDPete]

It’s been like this for lots this winter myself included. X3 lots of different abs and prednisolone . Had extra inhalant prescribed . Numbers I.e. Fev1 and 02 look ok / as its been .but I’m breathless (really breathless at the min exertion) NEVER had this since being diagnosed COPD . But can’t seem to get better. Hope we get much better soon. Good luck and keep away from anyone with colds!

[mrsmummy]

It's been a bad winter for us 'lungies' so far COPDPete and a few have been struggling. Hopefully the weather will soon improve and the awful germs doing the rounds will die out. Hang on in there and come on here whenever you need to talk things out with people who know that troubled breathing is all too real.

[Stumpy55]

Hello COPDPete, I feel for you I really do because I know only too well what it's like to be breathless but not through exercise as I'm wheelchair bound, but I do have very severe copd so I understand this illness very well. My husband is my rock, he has cared for me for many years now, but like me , he too gets his off days and says things like I wish you could walk like you use to and we could do this and that together. But I sometimes feel like a single bloke coz I'm always out on my own. It hurts me at times but I say to him this is not my fault, to which he reply' sorry love I wouldn't be without you. I know that, but once he's had his little outburst, he says "fancy a cuppa, and everything settles down again. This disease dose get you down Pete, but we have to Soldier on best way we can my friend. I find paracetamol rubbish for pain. My doc put me on cocodamol and I find them really good for pain. Take life at your own pace and try to chill out a bit more ✋️😊

[COPDPete in reply to Stumpy55]

It just seems unfair on my partner and my kids. I watched my dad die over five years with heart disease and there were times when I wished it was over and done with. Sounds horrible but I was young. Sorry (also I keep apologising too much) just having a bad day.

[Usgang in reply to COPDPete]

Never apologise for how you feel, that's what we are all here for, for you to feel free to express how you feel xx

[Stumpy55 in reply to COPDPete]

It's never easy Pete, for us with lung disease, for our families or our friends, but we have to move forward, and if our love ones see us moving on then so can they. I also watched my mum die of lung cancer five years ago, it was a long, painful death that lasted nine months. My brother and us took it in turns to visit her at the nursing home. I was always glad when paul went because I could escape for the day. Horrible to say it but it's true. I hated going there to watch my best friend deteriate before my eyes, and I hated myself for being selfish and only thinking about how I felt. I just loved her so much and couldn't handle the seeing her the way she was. This went on right through to the end . I got that dreaded phone call 4am in the morning and we went straight there with Paul. After the funeral the guilt set in Pete and five years on I still have my days of regret. We're not perfect but what we are is human beings that's what my family said. What I'm trying to say Pete is, allow yourself time to mend. Sounds to me that like me you are blessed with a good marriage, and grown up kids to be proud of. So allow yourself to have a bad day and start a fresh tomorrow. Let us know how you get on ✋️😊

[Caspiana]

Hello COPDPete

I'm sorry you feel so dreadful. Please remember that this is an absolutely awful time of year for us with lung issues. Breathing is much harder and because it's so uncomfortable, I for one tend to not want to do anything, but in turn it actually makes me more depressed and my breathing worse from inactivity.

You have had a wonderfully adventurous life. But it's not over yet. Hang in there. 🌹🌸🌷🌼🌻🌺

Cas xx 😊