Bronchiectasis

[amedeahuntley200]

My bronchiectasis is getting more problematic. I need to share my experiences with others people similarly affected. Thank you.

Amedea

[Hidden]

That's what we're here for amedeahuntley. There are lots of Bronchs in this group, and will only be too happy to share problems with you. xxx

[cofdrop-UK]

I notice you posted a few days ago Amedea - please ask anything that you want or tell us more about your concerns.

I notice you have been on the liver site and wondered if you have been tested for A1A as suggested by someone on that site.

cx

[Chyrysilis44]

Hello, I'm Chrys and was diagnosed with bronchiectasis just two years ago after having it for 14 years. It affected my hearing and now I wear a hearing aid in one ear. They wont operate to release the fluid behind the ear because the Bronchiectasis could be a danger. After various tests, scans, blood tests, samples of sputum etc. I have been using a nebulizer to inhale the antibiotic Ciprofxacin twice a day. I am due for further tests now after using the nebuilzer for the past six months. Unfortunately I have bouts of depression (caused by the bronchiectasis) and feel exhausted at times. I also experience pains in my joints and arms and legs besides an upper back pain between my shoulder blades. This is also being investigated. I keep an on-line diary of everything to do with my condition and give a copy to my consultant when I see him. He finds this very useful. I also keep abreast of any new treatments that have been on trials so that I can ask my consultant about them when I see him.

What do you mean by problematic? I would like to keep in contact with you to discuss your problems too. Regards Chrys (fellow sufferer).

[Claudine]

My first question would be, have you been given any instructions on how to cough up the mucus? This is the most important part of having Bronchiectasis otherwise it just piles up in your lungs and becomes infected. You need a physio who specialises in the chest. Your GP can prescribe Carbocisteine to thin the mucus so it's easier to get up. It's hard work but very important.

[Lealee]

Hi Amedea 😊