Bit morbid but ...

can someone tell me what happens at the end of IPF? My husband has it and is on oxygen and is doing ok. But for some reason I'm anxious about the end - will he just stop breathing, will he struggle? Don't know why this is troubling me now as I'm hoping for the best and more years together but for some reason this worry is making me tearful now.

[Hidden]

Good afternoon you must be fretting badly and I'm really sorry for that my heart goes out to you .Bit of a sensitive subject have you discussed with your hubby all your feeling . My suggestion is you can go and speak to your GP and see if he can refer you to a nurse or a support network that can advise you on the questions you have maybe a hospice that offers outside support ..but have a heart to heart with your hubby let and discuss everything with him first he may have wishes also best of luck for the future and many years to come with your man xxxx

[Hidden in reply to Hidden]

Thanks for your reply and good wishes. No I haven't told my husband how I'm feeling as I think it's too negative to think about him dying and I don't want him to focus on that himself. Thanks for your suggestions re gp/support network - good idea. All the best.

[Hidden in reply to Hidden]

I hope you find a resolution to it xxx

[peege]

Hi, it might be an idea to give the BLF help line a call on Monday.

03000 030555 UK office hours. They are the best people to give you some guidance and they also have counselling staff. All the best to you and your hubby. P

[Hidden in reply to peege]

Thanks very much that's a really good idea which I shall take up at the right moment. All the best.

[mrsmummy]

Is this any help?

blf.org.uk/your-stories/ipf...

[Hidden in reply to mrsmummy]

Thank you. Yes very helpful and a comfort.

[Hidden]

Hi I have heard that at the end rather than being unable to breathe or anything that your organs start to shut down instead so it is much more peaceful. x

[Hidden in reply to Hidden]

Thank you lilaclil. A peaceful parting is what I hope for (although not for a long time please). Best wishes

[Hidden in reply to Hidden]

I believe this is what medics concentrate on now on the principle that the least everyone deserves is a peaceful death. It's quite a comforting thought isn't it but like you said not for a long time yet!

[Margot13]

I understand how you feel. My husband was tearful for a long time after my diagnosis and he became over protective. I think a lot about my end, I also have IPF. Lilaclil made me feel a bit better, I'm a coward with pain. Thanks

[Hidden in reply to Margot13]

Thanks Margot. Yes Lilaclil's words are comforting. I wish you and your husband all the best and the strength we all need to carry on.

[Hidden]

I’ve been with 2 relatives as they died of lung illnesses. Both were sedated & passed away very easily & peacefully with no sign of distress.

[Hidden in reply to Hidden]

Thank you for sharing your experience with me which is so helpful for my peace of mind. I am sorry for your losses. Best wishes.