pulmonary langerhans cell histiocitosis

[matt29]

I have had this for three years does anyone else have pain with theirs

[Katinka46]

Welcome to this site. There will be those on here who will have it/know about it. I've heard about it but can't help. Can you tell us a little more? Symptoms? Causes? Treatment? Is it manageable?

I am always curious about unusual lung conditions.

I shall go and look it up.

All the best

K xxx

[matt29 in reply to Katinka46]

Cleveland Ohio university sent me a packet there is a doctor who specializes in this.the symptoms are same as asthma but the newmomedastima were the air pockets on your lungs pop and shoot air into your body were it shouldn't be if it pops the wrong way can clamps you lung.chemo and transplant is main things that will help but if you smoke and quit your lungs can clear up some and eat and diet right. most is caused by some form of smoke,from smoking or working around chemical that release smoke like a factory.

[Min97 in reply to matt29]

Are you still on here?

[matt29 in reply to Katinka46]

in some cases it stays manageable and does not progress

[Katinka46]

Thanks for the info. Here's hoping that you have the sort that clears up.

Whatever the condition the advice is always to live well, healthily and positively, exercise gently as much as you can.

Take care

K xx