Hi wondering if this is where i can learn about I.P.F. as i was diagnosed 3 months ago and would like to hear from others with this complaint.
Kind regards
William.
Hi wondering if this is where i can learn about I.P.F. as i was diagnosed 3 months ago and would like to hear from others with this complaint.
Kind regards
William.
Hello William, welcome to the Healthunlocked site! You will learn a great deal here from other members and from previous posts, just write I.P.F. in the box top right side of your screen, you can also phone up and talk to one of the team at B.L.F. they are a great help, all the best, hufferpuffer x
Hi William, welcome to this site. I am sorry that you have had this diagnosis. As hufferpuffer has said, you will find discussions and members with IPF here. Most members have COPD, but many discussions on health and lung health are relevant to many different lung conditions so you will learn a lot on here. The members are warm, caring, helpful and always willing to chat about any concerns lung disease sufferers may have. A site more specific to IPF you may also want to check out is inspire.com/groups/pulmonar...
Best wishesxxx
Hi william I have IPF and jenns is right this group will always help we all have same symptoms and so many on here know so much if you keep checking in when your concerned about things someone will reply . I have been so grateful to read about others problems and it takes your mind off yours for a while. Enjoy I always do.
I have had the condition for a while - consider the pulmonary fibrosis awareness facebook page - you will exchange information with a lot of people.
This a good site but better for us with IPF is the Facebook page Pulmonary Fibrosis uk,there are about 1700 of us ,we all chat between ourselves and cover most things many have had transplants,it's a mine of info,we all find treatment seems to vary the most important thing is to make sure you are attending one of the specialist hospitals,new NICE GUIDELINES just out for IPF. if I can be of any help just ask,I was diagnosed 2 years ago.Sooki