It would be interesting to talk to someone else and share some of the symptoms I am experiencing just now the more the better, mattcass
Does anyone else have both Idiopathic... - Lung Conditions C...
Does anyone else have both Idiopathic Pulmonary Fibrosis, and Rheumatoid Arthritis either on the BLF or the NRAS forum pages,mattcass.
I have just been referred to Rheumatology but as yet can't get an appointment which is rather disappointing. Will join the NRAS as and when I have. xx
Sorry Mattcass, as you know I do, has Tony not managed to get on yet?
Tina x
Hi Tina hope you are well, it would be great to discuss various meds and treatments with you and scrobbitty. Still not heard from Tony and I sent a one to one as we do I will try again later. Mattcass or Matt
Hi I don't have idiopathic fibrosis instead NSIP as my lung disease has been caused as a direct result of the RA which I have had since I was 7. Would be good to chat and I would love to hear how you are managing 4 miles every day! Tracey
Hi Gilliam/Mattcass
I have Sjogren's Syndrome and NSIP. SS is an autoimmune disease and causing the NSIP and the Pulmonary hypertension which I now have. Don't know about anyone else but I take such a variety of medications, all of which have side effects, that I am sometimes not sure whether when I am feeling more unwell it could be down to them!! However I am grateful for all the help I am receiving from the medical profession. I feel lucky to live in this country. I know some people's experience of the NHS is poor, but I cannot fault the care and treatment I recieve.
Maggie