Does anyone else have both Idiopathic... - Lung Conditions C...

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Does anyone else have both Idiopathic Pulmonary Fibrosis, and Rheumatoid Arthritis either on the BLF or the NRAS forum pages,mattcass.

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It would be interesting to talk to someone else and share some of the symptoms I am experiencing just now the more the better, mattcass

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scrobbitty profile image
scrobbitty

I have just been referred to Rheumatology but as yet can't get an appointment which is rather disappointing. Will join the NRAS as and when I have. :) xx

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mattcass in reply to scrobbitty

Hi scrobbitty, Please keep chasing them all the time you have to or you will sit in the IN TRAY. It would be good to post to you and Alwayssmiling and discuss various meds and symptoms, mattcass

Sorry Mattcass, as you know I do, has Tony not managed to get on yet?

Tina x

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mattcass in reply to

Hi Tina hope you are well, it would be great to discuss various meds and treatments with you and scrobbitty. Still not heard from Tony and I sent a one to one as we do I will try again later. Mattcass or Matt

Gilliam profile image
Gilliam

Hi I don't have idiopathic fibrosis instead NSIP as my lung disease has been caused as a direct result of the RA which I have had since I was 7. Would be good to chat and I would love to hear how you are managing 4 miles every day! Tracey

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maggie44 in reply to Gilliam

Hi Gilliam/Mattcass

I have Sjogren's Syndrome and NSIP. SS is an autoimmune disease and causing the NSIP and the Pulmonary hypertension which I now have. Don't know about anyone else but I take such a variety of medications, all of which have side effects, that I am sometimes not sure whether when I am feeling more unwell it could be down to them!! However I am grateful for all the help I am receiving from the medical profession. I feel lucky to live in this country. I know some people's experience of the NHS is poor, but I cannot fault the care and treatment I recieve.

Maggie