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I haven't seen anyone one here saying they have Sarcoidosis, my consultant thinks it's what I have - does anyone else have it?

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dully
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Hi, I Have Bad Attitude Apparently ... But Don't That's Sarcoidosis You Mean :O

Sorry Only Joking .... Is Complex Illness Disease Did He Say How You Got It My Understanding It Made Up Of Diffident Components

johnswife profile image
johnswife

sorry no ,but i have met three people i know over the years and have learnt from them on this

nuttiella profile image
nuttiella

Hi Dully,

I have both chronic Cutaneous and Pulmonary Sarcoidosis.

I was diagnosed in July 2009.

Has your consultant mentioned about you having a biopsy or anything?

Ells

Hi Dully

I have sarcoidosis. Diagnosed a couple of years ago after a barrage of tests. So there are a few of us about. It's odd as soon as I was diagnosed we found out a close friend of my mums had it many years ago and my old primary school teacher has also been diagnosed.

Marie x

Hi Dully

Just had a look at the most recent poll - there are at least 8 people on this community that have sarcoidosis. Why don't you start a blog about yourself and explaining what sarcoidosis is and how it affects you. It may encourage others to join in and before you know it we will have a sarcoidosis sub group.

Thanks

Mark

dully profile image
dully

Thank you all for your replies - I will try and do a blog - never done one before but will have a go.....

Mocarey profile image
Mocarey

I was diagnosed with sarcoid 43 years ago

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