Sense of despair

[Keithr24]

Well even registering here is a huge step in my journey. I have lived with asthma for almost 52yrs and had a hospital admission for the first in 2016...from which I have never had full recovery. I had another admission at start of January 2018. Both of these were for 2wks but the last one resulted in an I U stay for 3days. It has so scared my family and to be honest at this moment I don't know how we are going to survive it!!! Medical staff have been awesome but there are no answers.... And the unpredictable nature of every day is upsetting everyone.

Guess hoping others out there in the same boat... As I feel I am going mad

[strongmouse]

Keith, so sorry to hear what a horrible time you've had. I've only had asthma for ten years and never had to go to hospital so can't imagine how hard it is. I know there are many people on here and at Asthma UK who have a lot of knowledge and experience which I've found really useful since my asthma was worse last summer.

I spoke to the Asthma Uk nurses on the phone and the person I spoke to was amazingly patient and talked through what I could do (I had a reaction to medication ). Their telephone number is - 0300 222 - 5800

[starveycat]

We all get these feelings of despair it's normal. I have found this winter very challenging. Have you had a word with your doc or phoned the helpline they are magic people. Asthma is a curious condition one day we breathe next day we struggle enjoy the good times and as for the 😣 sending you gentle supportive hugs

[Keithr24 in reply to starveycat]

Thanks for that. Yes medical staff been great and asthma team have referred me to Psychologist. It's more my family just don't understand the variability of asthma. I get that seeing me being rushed to ICU was traumatic and a new low. Might try and suggest they speak to helpline as I can't seem to convince them I am OK.

[JamesinDublin]

Keith, Yes I am similar, first time I gave in and went into Hospital was Dec 2016 after 51 years as a brittle asmatic. I had to stop working after 25 years as I was exausted every day from poor sleep. Have tried alll meds and natural cures over my lifetime without any really success. I try to keep med to a min, as some meds seem to make me worse. I'm housebound a lot. Used to go to gym, and that's my next step to try and improve my lungs and improve my ever increasing anxiety and depression. Keep excercise as part of your plan even if it just sitting in a sauna. Good Health.