Hi All,
I've finally had some good(ish) news .. I've finally had my appointment with the Asthma Specialist at Wythenshaw, Dr Niven and he & his team are amazing. Really lovely people who seem to genuinely care and want to help get the problem sorted out.
I'm being sent for a CAT scan, allergy testing, lung function and full set of blood tests (also checking my immune system is functioning properly). I get to see a counciler at each visit if I want to and she is amazing, really lovely. They actually took the time to listen to me and Dr Niven said he noticed there was already a problem with my breathing by just watching me during the appointment ... OMG! I'm finally gtting somewhere.
Dr Niven mentioned that he could tell that the muscles around my lungs where not functioning together which could be causing some of my problems; also he thinks that my Ulcerative Colitus may be causing someother problems with my chest. Has anyone ever heard of the lung muscle thing before??? I was in shock that I was actually getting somewhere as was my fella that we both just kind of said 'oh OK' whereas normally we would have asked loads of questions LOL!!
I'm still suffering badly from depression and my breathing has got so bad now that I can't walk very far at all now, so I've now got a wheelchair courtesy of my great parents ... it even matches my walking stick - bright metallic red! Hopefully I will be able to get out and about more with the wheelchair instead of being stuck in the house or being able to have trips out to the Trafford Centre or Supermarkets - basically places where we would get loan of a wheelchair.
Well I've finally got something positive to aim at and a Consultant & team who actually want to get me better.
Hope everyone is well
Jilly xxx