Well I'm having a bad couple of days on my reduction. I'm down to 30mg and I'm chesty and sleepy all the time ATM and very down. Got my results from the broncho on Friday and all was clear, which is great news in one breath but in another I'm back to square one! Sorry for the pun there!! Lol. So my chest consultant is putting forward for some more tests to check my throat and stomach acid levels as I already have GORD and a hiatus hernia and am medicated for them both. Shea said that if theis test comes back positive then they can operate to fix the problem but if it's not that then they don't know.
I'm still waiting to see the chronic asthma specialist too but his waiting list is long so don't know how long of a wait it's going to be!! So in the meantime I'm still on reduction; work won't let me go back even though GP has said I am ok for a desk based job they won't let me back as I'm a PA for 3 directors and 80% of my job is moving about between the 3 of them and up & downstairs all the time so I'n not fit to work in their eyes. Which don't get me wrong I understand but I'm just so fed up of being isolated and stuck at home all day long unable to do anything.
I carried some washing up & downstairs today and became so breathless and got burning lungs just by doing that .... Been like this for over 6 weeks now!! Enough is enough and I can't take much more.
Really sorry for the moan & rant, just really struggling with being told I'm not a normal/straightforward case!
Xx
6 Replies
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Aww Moomoo,
Sorry you are having a really tough time of it at the moment,
Know how you feel ,fingers crossed the tests show up something that will make
you feel a bit better and meds to take.
love glynis xxx
ps,i was really down when reduced my steroids and cried loads but my asthma nurse said that was normal reducing pred so made me feel better xxx
Awww no I have been luckier than you as I can still work (mainly because I haven't had to walk around too much) but I do completely understand the frustration that comes with being a difficult case and the ambivalence when the test results are normal as you do want them to have some clue about what's wrong! And the getting breathless from small things really doesn't help. Is there anything you can do that doesn't take energy and passes the time, like making stuff?
So rant away. I really do hope they come up with something for you soon, and PM me any time in case I can be of use, or just to offload if you'd like.
I'm trying to keep my mind active by making my jewellery but ATM I'm not able to do that for very long as the bending over is aggravating my breathing! Ive only just finished 4 sets of bracelets for my friends for Xmas that woud have usually taken me only a day to make all 4 and it's taken me 2 weeks! LOL
I feel bad moaning as there are people on here that are alot worse than me but I'm really struggling with being down ATM. I think it's a mixture of the steroids and the current circumstances.
My fella is talking about getting me out the house for a while tomorrow morning before I see the local NHS asthma nurse. This is the one I should have had contact with 6 weeks ago after my first severe attack, took her sweet time .... Hmm wonder what she's gonna come up this!!
Thanks for being there, reall appreciate the support xx
Sorry I can't do anything except sympathise. I'm tired of sitting around doing nothing and I've only been ill for a week so can imagine you must be going crazy. It's so frustrating when you don't feel ill in yourself as you feel you ought to be doing things, but then when you try lungs protest!
Hope the asthma nurse is able to offer you something useful.
so sorry to hear that you're still having such a rough time of it. i dont work, but i know the uni have been putting stokes in my wheels, as they think im not progresisng ""fast enough""....as others have said, try to remember that part of you feeling down is just the normal reaction to steroid reduction, although i admit its not much comfort at the time! also, dont apologise for ranting just because there are others on here worse than you. in any case, i think going from good to bad, however relative it may be in some ways, is always very difficult to accept and adjust too, so its perfectly normal to need to rant about it, and youre perfectly entitled to do so on here!!
i do hope you get some answers and a good treatment that works jolly soon, so that you can start to feel better!
Rose
Sorry you going through such a hard time, it can get better after a few tweaks and lots of patience from your consultants adjusting things.
I don't know much about typing but my consultant talks into a recording device whilst looking after me about his findings and sends it to typist later and its exact. I wonder if one of your directors could consider it. I don't have any other advice sorry.
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I have been luckier than you as I can still work (mainly because I haven't had to walk around too much) but I do completely understand the frustration that comes with being a difficult case and the ambivalence when the test results are normal as you do want them to have some clue about what's wrong! And the getting breathless from small things really doesn't help. Is there anything you can do that doesn't take energy and passes the time, like making stuff? 
How long does pred take to work and does it always make asthma better?
