I haven't been on in ages..........thought I would post a little update.
Molly was very bad over Easter time but things have picked up a bit now.
The hospital were being totally rubbish in changing appointments, etc but have not got back on track.
She's going in on the 16th July to have tonsils and addenoids out to help with sleep apnoea and low SATs at night. She's being operated on in a differnt hospital with with and ICU due to severity of her asthma but have spoken to the consultant who is ready for her so am feeling confident.
The hospital seem to thing this will improve her quality of life by improving night symptoms so I'm keeping everything crossed.
We've also been referred to a new paediatric consultant who specialises in respiritory disease so I am hoping that we can try to get her symptoms more under control and that all the drugs she is on will actually work.
She's starting school in Sept so desperately hoping this is the answer!
Annie x