New diagnosis, third episode and No C... - Supraventricular ...

Supraventricular Tachycardia Support

New diagnosis, third episode and No Cardiology follow up

Daisyflower89 profile image
1 Reply

doctors think I have SVT but i also have an earlier diagnosis of POTS. I have had trouble accessing support and treatment since having my first attack in April where my heart rate got to 220bpm and was picked up on a ECG by paramedics, i couldnt feel my pulse. I had another one this week i had shortness of breathe and no pulse ...my nextdoor neighbour a nurse could not feel one, it took 3 attempt at modified valsalva to get it to 130bpm and my pulse to be palpable. I was taken to A&E for blood tests as my heart rate wouldnt go down, i had the shakes and last time i had had low electrolytes. Is it usual to have no pulse during an SVT? How do you live with the anxiety and how do you get treatment when there is an increbibly long waitlist to see a cardiologist?

Written by
Daisyflower89 profile image
Daisyflower89
To view profiles and participate in discussions please or .
Read more about...
1 Reply

Hi Daisyflower89, I realise this is a 6m old post but I’m having the same issues as you and I’m wondering how you got on.

My mum is medically trained and managed to listen to my heart with her stethoscope during an ‘episode’. They started 2weeks ago and are terrifying, I thought I was going to die. My heart rate was 220 and settled to 120 with valsalva after 2 mins. She’s convinced it’s an SVT. She could barely feel my pulse either; she said it’s because the heart pumps out a much smaller volume of blood with each contraction when it’s beating so quickly. It barely has time to refill after each beat.

I was having 2-3 episodes a day so my GP has referred me for a 24 hour ecg and a cardiologist and has started propranolol. I have awful side effects from the propranolol. How long did it take for you to have further tests and to see a cardiologist?

Thank you