I'm new here and feel nobody on earth... - American Cancer S...

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I'm new here and feel nobody on earth can help me!

pump321 profile image
10 Replies

I used to be really strong and super fit but nearly 40 years of struggling with chronic migraine at least 4 days a every week has gradually weakened me along with mysterious fatigue type bouts of illness which no doctor can seem to get to grips with. I've had blood in my urine, on and off, for over 10 years that urologists cannot seem to understand and this lays me low with chills, low fever and pain around my right kidney and lower back area but when my urine and blood is tested they say no infection is present. To make matters worse I was diagnosed with a pre-cancer melanoma (Lentigo Maligna) under my left eye and in April had to have a major operation with slow MOHS Surgery which has left some scarring but worse than that I also had a basal skin carcinoma on the end of my nose had penetrated quite deep into my skin so another major operation with MOHS Surgery in early July which has left me really facially scarred with a big lump of ugly raised skin near my nose so I am horribly disfigured now. Also I have diverticulitis flare ups and am on a very restricted diet with no fruit or vegetables as I get terrible diarrohea. I've seen gastroenterologists and urologists and had CT Scans with contrast but nobody can help me. I am now so ill with all the worry, pain, trauma and feeling so fatigued. I wake exhausted and often just to back to bed and sleep. I am so ill I don't know what to do. I don't have any kind of social life at all, I've not been out with friends for nearly 2 years and feel so sad and depressed. I don't think there is a doctor in the world who can help me. I do know I'm very low on Vit.D3 and possibly a bit low on Vit.B12 but when I take supplements they give me diahorrea and more migraines. I feel at rock bottom now with no hope of getting better. My friends have stopped bothering with me as I am alway ill and they are so fit, I'm sure they think I am a hypochrondriac! I have actually stopped telling people how ill I am now as it's embarrasing, I just hide away from the world. I just felt I needed to tell somebody how hopeless and helpless I feel. I don't see much point in living like this to be honest. Thanks for listening ......

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pump321
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10 Replies
milz profile image
milz

*Sending you a warm hug*

Saikumarr profile image
Saikumarr

Pls pray to Jesus and Visit church every sunday and keep praying as well read th holy bible.. god bless...

pump321 profile image
pump321 in reply toSaikumarr

Thank you so much Saikumarr for responding to my post of about three months ago. How kind of you to send me a message. I think I am fractionally better thank you after being being on low dose antibiotics for a month. I do feel a bit stronger but life is still a struggle. I am a believer and I'm sure the Lord is with me and helps me to cope with each day. I just wanted to thank you for such kind words and how much I appreciate your getting in touch, it means such a lot. Bless you x

Giomama profile image
Giomama

So sorry that have had to go through this are u by any chance seeing a-therapist that could help u wither depression and maybe u should try ton-locate another doctor don't give up they will figure it out Sending prays

pump321 profile image
pump321 in reply toGiomama

Thank You Giomama for taking the time to reply to my message from about 4 months, how kind of you. I have been through so much this last couple of years but I do think I am gradually improving. I've just been very unlucky with my health and having so many different health issues to cope with at once. I've had to take far too many antibiotics to clear up infections but they have knocked me flat and it takes so long for the body to recover. I don't suffer from depression thank goodness, I just need a few good days to be able to get outside and enjoy having a proper life again. Thank you for sending prayers, how very kind of you, bless you. I much appreciate you very kind message.

Giomama profile image
Giomama in reply topump321

It very welcome that is what these apps are for to reach out make some one feel a little better knowing that they are not alone I really do hope things improve for I

pump321 profile image
pump321 in reply toGiomama

Health Unlocked is an amazing place where people (like me) can pour their hearts out and know that some kind soul somewhere will offer emotional support and a listening ear. When you feel very ill and so worried it does help so much when somebody answers with a little advice. Living with constant pain and having to go through lots of tests and worrying about what may be found is a very lonely experience and it does mean a lot to people who are travelling this road. I know that a kind word and people offering prayers have helped me through many dark hours. I have also prayed for others too. Many thanks again Giomama for your kindness and compassion. It's good that we can comfort on another on this site.

Giomama profile image
Giomama in reply topump321

pump321 im always here if u just need a listening ear or advice anytime

pump321 profile image
pump321 in reply toGiomama

Hi Giomama, I have just found your message you left a few days ago. I don't come on this site very often and for some reason messages from Health Unlocked do not show up in my "in box" so I only find them if I check every now and again. I am very grateful for your kindness in offering a listening ear or advice. I am sure you must have problems of your own and if you ever feel like you also need a listening ear I am also here too if you need somebody to talk to. We all have our own problems and it's nice sometimes just to be able to tell somebody when people around us really don't understand or we feel we cannot confide in friends etc. I have been so glad of this site at times when things have been grim, in fact it has kept me going through some very dark times. Thank you so much.

Sunfloweronline profile image
Sunfloweronline

So sorry to hear of all your health issues, and the impact they are having on your emotional well-being. If you can access the support of an organisation that, besides being a listening ear, can also offer advice on how to find help, have a good look what is available. I know that climbing out of dispair is so hard but try to find enjoyment in little actions , reading, join a home based course, play loud music or start writing

Be very kind to yourself, build up your confidence, and then act in earnest to find a course of action to get the medical support you need 💕🌈😉keep in touch here you ll find lots of support and love

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