In your opinion, what were the main f... - Andover Fibromyal...

Andover Fibromyalgia & ME Community Group

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In your opinion, what were the main factors that hindered your diagnosis of Fibromyalgia & ME which made it a lengthy process?

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Please select all that apply:

4 Replies
Midori profile image
Midori

A lot of the delay was due to my GP's attitude towards me, the 'Oh, not you again, what now?' look on her face when I appeared through the door. It took seeing a younger GP to send me for Rheumatoid markers blood tests to start the ball rolling. All the points except the pressure on the NHS came into play, as I was diagnosed before the current squeeze on finances.

Admin_AFMCG profile image
Admin_AFMCGPartner in reply to Midori

I had the 'What's wrong with you now Emma?' comments.....when you feel so ill and nobody's listen then this kind of treatment can make you feel very alone :( I suppose all we can do is support campaigns for awareness, research and better guidelines for treatment & diagnosis. Sorry you had to go through this too.... x

Midori profile image
Midori in reply to Admin_AFMCG

We used to be labelled 'Heart sink patients', by doctors. I'm sure the saying is still prevalent with some of us frequent flyers, but I'm trying hard to stay away from my GP right now, as I don't want to start another round of tests and appointments until after I get moved. I lost appointments last time I moved due to notes and specialists not being updated on my move.

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Admin_AFMCGPartner in reply to Midori

Yes the papers and other people who coin these phrases do not understand the long lasting damage this caused..... if only they knew