fluid in my lungs

[NLGA]

has anyone had fluid in there lungs due to persistent AF with a racing heartbeat of 130-150 uncontrolled

I am on water tablets for this and from months of not breathing and being breathless just walking up a small incline or stairs even I am now without 5 days feeling really good

I asked my Cardiologist who I paid to see private in the end that detected the issue and he feels after the echo my heart is fine and the uncontrolled AF was behind it and will be again if untreated for

I can’t recall reading on here that others have had this issue due to AF

I also paid to see a respiratory doctor who informed me looking at a xray and echo I had done previously there was no lung issues but the echo was 18 months ago for that one

[Buffafly]

Question is, why have you got an uncontrolled HB at that speed?

[NLGA in reply to Buffafly]

Not a clue had it 3 years

No answers after two echos a ct scan and two stays hospital. Just told it’s AF and put on beta blockers flecainde and tried is it is Soltalol ?

Went for cardioversion but wasn’t in AF so sent home 18 months or so back

So went private and this where I am a week on

[Buffafly in reply to NLGA]

I would call 111 if your heart keeps going like that.

[NLGA]

I have before they just say go to A and E but I would be living in A and E

[ForensicFairy]

I’m sorry, but you need to find another doctor. While they can’t always stop the AF due to various reasons, they should be aiming to bring your rate down to avoid damage to the heart.

[NLGA in reply to ForensicFairy]

I have I went private last week I am seeing him again Saturday

I am being loaded with Amiodarone currently 600 mg a day

[Gincalpe]

I would arrange a private appointment with an EP (electrophysiologist) as they specialise and understand AF and treatment options.

[NLGA in reply to Gincalpe]

Ok this cardiologist is private so I will speak to him

I can’t trust NHS anymore the system just pushed me to AF specialist who I have been under for 11 months that’s done nothing

[Efka]

For husband yes persistent afib caused fluid on the lungs, although with low bpm (40-80).

There is a background of heart failure for many years although this has not caused fluid it came on abruptly at the same time afib did (post ICD operation).

We monitor symptoms and noises and self administered water tablets (Furosemide) as and when needed, thankfully not very often say once monthly or so.

He has just had an ablation (a year after afib onset) which currently 2 weeks post seems to have triggered a bit more fluid again so will keep an eye on it.

[Wilkie1]

My understanding is that fluid on the lungs can be due to heart failure which in turn can be caused by high heart rate over a prolonged period. Your cardiologist was probably saying as much when they said it was caused by uncontrolled and untreated Afib. It seems odd that he didn't then offer or suggest some treatment. You might consider going to a cardiologist who specialises in electrophysiology to see if some treatment can be suggested.

[NLGA in reply to Wilkie1]

I always expected heart failure I did ask him is this my heart failing he said no but we need to stop the AF by Amiodarone or cardioversion to stop the fluid

[NLGA in reply to Wilkie1]

Is the Amiodarone not a treatment ?

[Wilkie1 in reply to NLGA]

Yes Amiodrone and Cardioversion are both treatments that cardiologists use to try to convert AF to sinus rhythm.

[NLGA in reply to Wilkie1]

yes they are as I have AF

[Tapanac]

yes each time I was admitted to hospital sometimes with afib/tachycardia I had fluid on my lungs. When in hospital I was put on a furosemide drip, but to try to avoid the fluid now I am permanently on co-amilofruse which does have furosemide in it, but kinder to the kidneys. Now I can tell if the fluid is building as I’m in permanent afib/tachycardia I take a higher dose, although since having g a pacemaker which is to stop the heart going below 60 (sometimes it kept going below 30) I do feel better

Anyway I hope you feel ok

[NLGA in reply to Tapanac]

That’s sounds very similar to me

In 2022 I was in hospital with tachycardia for 6 days they removed fluid via a drip but I don’t remember the name but the tablets I am now on are Furosemide so your bang on again

It’s the best I have breathed since I left hospital

For some reason 2 nhs cardiologist have seen me over 3 times in 2023 early 2024 and not picked up on the fluid the AF specialist told me I was to heavy and it’s a combination of AF / asthma and my weight even after I explained I can’t sleep through the night or walk up 2 flights of stairs without gasping

The guy I saw last week saw me Saturday tested me Monday told me Tuesday and had me on pills Tuesday night within 3/4 days I could breathe like I hadn’t for 18-24 months

I did ask is it heart failure he said no he didn’t believe so but the tachycardia/ AF is confusing my heart but did say he needs to check again when the AF is controlled but EF was 55 on a echo no arteries with issues

[Tapanac in reply to NLGA]

Yes I was on furosemide for quite a few years, but as I have only one working kidney that’s why I was changed to co-amilofruse as it was kinder to kidneys. I don’t think it is as effective as furosemide but at least I don’t get in a panic when I need the loo!!!! It does seem to do its job though (I hope)

All the best

[NLGA in reply to Tapanac]

Yes I totally understand that I was very concerned the first day about that situation

[Tapanac in reply to NLGA]

👍🥰

[Ppiman]

That sounds right that it was the fast AF reducing the heart’s output. I bet all will be fine now! You must feel very relieved.

Steve

[NLGA in reply to Ppiman]

Hi Steve

Good to hear from you and your positive message is great to read

I do feel good I’m sleeping through the night on my back or either side which wasn’t possible these last 2 years

I am taking it steady but doing small jobs I have avoided and let go a bit

So far the one walk I had went good only 2 miles and I did take a seat after a mile but really felt I didn’t have to do so

Hopefully this keeps up

[Ppiman in reply to NLGA]

I've read a few posts from others here with a similar experience. Fingers crossed you carry on improving.

Steve

[NLGA]

cheers Steve

Very encouraging