Update!: If you read my post the other... - Atrial Fibrillati...

Atrial Fibrillation Support

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Update!

wilsond profile image
33 Replies

If you read my post the other day on be8ng rather surprised to be discharged from arrythmia clinic,and presumably from support from cardo nurses,here is the weeks events!

I wrote my post Tuesday morning and emailed Proff O to say I was a bit surprised as there had been talk of an RF ablation my last appointment late November and I had an AF attack 30thJuly, etc

. Auto reply,on holiday .

So rang his secretary,Ansafone, same on arrythmia nurse line. Left messages.

Secretary called within an hour,said she would email him.

Arrythmia nurse called me then,and said the same.

Carry on.Im happy .

Tuesday night woke up with AF. ! Yes ,really ! Took extra fkec as usual, recorded it on kardia. Took 6 hours to settle.

Made a note in my book.

Yesterday arrythmia nurse rang me,they want to see me ASAP! Offered me today at 10 am!

Slight panic, car in for mot today,and hubby car in for repair. Sons both on early shifts,and so on...

But would get there! Somehow.

However, they then rang back later and said would I be able to come next Friday as Proff O would be in clinic. We had a good chat and she asked if I'd be prepared to do RF ,Yes please!

So what a great response I feel.

Thank you all for your support, advice and encouragement once more.

Have a good weekend!

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wilsond profile image
wilsond
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33 Replies
BobD profile image
BobDVolunteer

Well done . Glad it will come good. (and I'm sure it will)

Jalia profile image
Jalia

Sounds good. What a palaver for you to get there though!

wilsond profile image
wilsond in reply toJalia

Indeed,not necessary, and proved right by the recent episode, all is not finished !Thank you Jalia x

Cavalierrubie profile image
Cavalierrubie

Just goes to show Wilsond - never give up making a noise! Great outcome for you and wish you all the best for the appointment. Let us know how you get on, as following you with interest. 🥰

wilsond profile image
wilsond in reply toCavalierrubie

I'm known as Motormouth in my family circle how rude and uncalled for! I just don't accept things that don't seem right!Thank you xx

Ducky2003 profile image
Ducky2003 in reply towilsond

I can't think why they would say that. 🤣

Cavalierrubie profile image
Cavalierrubie in reply towilsond

Good for you. Sometimes it’s the only way. 😂😂😂

meadfoot profile image
meadfoot

Excellent outcome. Good luck next Friday.

wilsond profile image
wilsond in reply tomeadfoot

Thank you,was quite stunned at response! Has there been some complaints I wonder?

Ducky2003 profile image
Ducky2003

The Electrophysiology team are great at UCHW. Let us know how the appt goes.😊

wilsond profile image
wilsond in reply toDucky2003

Definitely getting a box of chocolates at Xmas!Will do xx

Ducky2003 profile image
Ducky2003 in reply towilsond

I used to take biscuits for Dr Yusuf's previous secretary (not the current one, who needs a lesson in how to deal with patients) and Joel, the procedures coordinator. Always helps to keep the behind the scenes bods onside. 😊

wilsond profile image
wilsond in reply toDucky2003

Good idea! Xx

Teresa156 profile image
Teresa156

Great Result! Well done. Good luck for next Friday.

X

wilsond profile image
wilsond in reply toTeresa156

Thank you xx

Lenlec profile image
Lenlec

excellent. Are you gonna ask prof O to do it ?

wilsond profile image
wilsond in reply toLenlec

Yes would like that,but you never know on the day eh? X

Ducky2003 profile image
Ducky2003 in reply toLenlec

How are you doing these days Lenlec? Any news on the next ablation?

Lenlec profile image
Lenlec in reply toDucky2003

Hello. I’m ok cheers. Getting af episode every few weeks. 200mg flec sorts it. No news on the 3rd ablation. Should be Xmas time hopefully

Ducky2003 profile image
Ducky2003 in reply toLenlec

That's been a good while you've been waiting, isn't it? Did you decide if you were going for the PFA at Glenfield?

Lenlec profile image
Lenlec in reply toDucky2003

Hi. I’d like to find out more if a PFA would be suitable for me

Ducky2003 profile image
Ducky2003 in reply toLenlec

Probably a good idea.

4chickens profile image
4chickens

great outcome, shows it’s worth fighting for the sensible options

Lilypocket profile image
Lilypocket

What a relief for you! Well done for being persistant . X

jeanjeannie50 profile image
jeanjeannie50

That's good news, it certainly paid off for you querying your being discharged and shows the importance of voicing our concerns re our AF medical care.

Jean

bassets profile image
bassets

Excellent! :)

MWIC profile image
MWIC

Fantastic and great to hear 🤞☘️☘️🤘

Fullofheart profile image
Fullofheart

Well done!!And good luck for the next steps now 🌸

wilsond profile image
wilsond in reply toFullofheart

Thank you!

Desanthony profile image
Desanthony

Wonderful news!

wilsond profile image
wilsond in reply toDesanthony

Bit dramatic to produce AF events on kardia but proved my point lol!

Singwell profile image
Singwell

Well done! Just shows that self advocacy can really help if done the right way. So pleased for you.

wilsond profile image
wilsond in reply toSingwell

Thank you! Xx

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