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Atrial Fibrillation Support

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NLGA profile image
NLGA
21 Replies

after a good couple of months and growing confidence I felt a little rough Sunday having a breathless issue in tne afternoon

Went to bed as normal felt more breathing issues checked the pulse 108

So I stayed downstairs to it cleared about 4am to 88 beats no AF sign came on my monitor which was unusual for me when I get a high pulse

Still waiting on The results of the latest heart monitor from October and the echo from early December

Now I’m thinking why a high heart beat and no AF are they not as connected as I expected

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NLGA profile image
NLGA
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21 Replies
Blearyeyed profile image
Blearyeyed

It's probably worth contacting the Cardiologist via their Secretary with a message about the incident and your concern that you haven't received any results back yet about your tests , and ask them if they can either speak to you on the phone or relay a message back to you via the Secretary with some advice.

At the least you should receive their report of your test results , but they may also suggest a check up at the GP or advise you on medication.

Unusual incidents are worth getting on record either with Cardiology or your GP just in case a pattern starts to emerge .

NLGA profile image
NLGA in reply toBlearyeyed

Can’t seem To get through to cardio or them to respond to my voicemail , they never do though

Called the GP today spoke to reception I explained that situation but they said they can only call the same numbers I am and didn’t even know I had been for more tests

I’m onto PALS again

Blearyeyed profile image
Blearyeyed in reply toNLGA

Have you got your Cardiologists Secretary's email? If not , you can ring hospital reception and ask to be put through to the Secretarys direct line , and if there is no answer , ring Hospital Reception again and ask for the Secretarys email address just stating that you need to send some info through to them direct but you can't get through and don't have the email you need.

They should give it to you.

If you email you get a response because it shows up in the records and you keep your own so it can't go unanswered without you being able to query , again in writing , the lack of response .

I learnt this trick a few years ago and gave not a had a problem getting answers from the various Consultants I have since.

It would also be worth checking on Patient Access ,if you have it , if the results if your tests have been uploaded , and if not , call the records department to find out where they are.

To be honest , I've never found PALS that effective at getting results , they don't really have any more clout than your GP when you make a complaint.

If you choose to complain about anything , it's better to try all avenues available to get the information first (keeping evidence of emails and dates of calls) and if nothing is being done put in a written complaint to the Chief Executive Office of your hospital instead. That definitely gets things moving , they don't like to hear complaints!!!

Good luck , Bee

NLGA profile image
NLGA in reply toBlearyeyed

Good advice

I don’t have that email as I normally phone and speak to the secretary answer phone that I never get replied from

Thanks for your help and advice it gives me a few options as it’s definitely not working currently

Peony4575 profile image
Peony4575

it could be that you had episodes of tachycardia not AF. I have had quite a few of those and strangely 108 seems to be a favourite number . Mine always happened when I am waking up or in the middle of the night and were associated with beta blocker withdrawal or eating certain foods

NLGA profile image
NLGA in reply toPeony4575

See I take my beta blockers at night which is why I found it strange

Singwell profile image
Singwell

Try not to worry. Those are not high heart rates, although the 88 a little high for night time. Periodically I get short bouts of tachycardia- up to 110. Arrhythmia nurse told me this is a normal hunan response to stress, cold, heat, excitement or some type of inflammation.

I have a trick I use when this happens:

I put my finger on my pulse and mentally count in time with it 123456 etc. I'll be sitting down comfortably when I do this. I'll keep doing it for up to 5 minutes onand off. I do some slow breathing and it all calms down. Apparently they used this technique in research with people who had phobic responses- saw it on a science programme- it really works.

NLGA profile image
NLGA in reply toSingwell

It was 108 at night around 1230 am 88 when it calmed down at4am

It’s the breathless issue that scare me not the actual beats

Thanks for the tip

Singwell profile image
Singwell in reply toNLGA

Yes, I understand. See how the tip works for you. I also have a slow breathing tip I can share. DM me if you want.

NLGA profile image
NLGA in reply toSingwell

That would be good

Qualipop profile image
Qualipop in reply toSingwell

It certainly works for panic attacks.

Singwell profile image
Singwell in reply toQualipop

Good to know.

Ppiman profile image
Ppiman

I get similar although now rarely having been prescribed daily (1.25mg) bisoprolol. I don't know the cause but I do get far more palpitations than I ever get AF. My doctor is never concerned and just puts it down to the "wide QRS" that shows on my ECG and is a part of my "bundle block" (LBBB).

Steve

Qualipop profile image
Qualipop

That's a ridiculous length of time to wait for Holter results. I would phone them and ask.

NLGA profile image
NLGA in reply toQualipop

They never pick up never return calls

Tried the cardio secretary no answer no way to leave a message

Qualipop profile image
Qualipop in reply toNLGA

Try PALS although if they're as good as ours you won't get much help.

NLGA profile image
NLGA in reply toQualipop

Have emailed 4th jan I had a reply to say there passing it on

But no reply since

Qualipop profile image
Qualipop in reply toNLGA

Typical. I'd chase them up if nothing after next week.

Fblue profile image
Fblue

was this after an ablation? I hope you feel better.

Teresa156 profile image
Teresa156

You mentioned that you had a monitor that didn’t record AF - what is it that you use?

NLGA profile image
NLGA in reply toTeresa156

it does record AF when it’s present

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