Statins and Af?: Hi, how many of us are... - Atrial Fibrillati...

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Statins and Af?

bassets profile image
241 Replies

Hi, how many of us are taking statins along with the usual Af meds? I think I may have to start these soon and wondered about the effects as I'm nervous about starting yet another drug?

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241 Replies
Teresa156 profile image
Teresa156

I don’t take statins and have never been asked to.

I don’t have any cholesterol problems but believe they are offered when cholesterol is high? I have read many posts on here though, where it appears GPs seem to be giving them out to people who have Afib, even if their cholesterol levels are borderline and some are refusing them.

bassets profile image
bassets in reply to Teresa156

Thanks Teresa. I'm not sure what to think about statins and when they are needed.

Teresa156 profile image
Teresa156 in reply to bassets

Do you have high cholesterol?

Crumble2 profile image
Crumble2 in reply to Teresa156

My cardiologist wanted me to start statins as there is some evidence that they can calm the heart, make is less sensitive and therefore assist in staying in NSR. I do not have high cholesterol. I agreed to trial it and have carried on. I’m lucky that I have no side effects and it has made a difference to the number of palpitations. However, there has not been enough research carried out to prove that statins are helpful in cases like mine, which is a shame as it could maybe help many more of us.

bassets profile image
bassets in reply to Crumble2

Thanks, that's something to consider.

wilsond profile image
wilsond in reply to bassets

Same here,no side effects,and with heart disease, heart attacks,stroke on both sides e of my family, a TIA myself and once had 13.5 reading of cholesterol levels,decided yes please!

LaceyLady profile image
LaceyLady in reply to Teresa156

That is true! My level was 4.5 and was offered by my diabetes nurse, she knew what I’d say NO NO. My friends been in them for years and suffered all sort of ache n pains

LaceyLady profile image
LaceyLady in reply to Teresa156

Some time ago there was an article from a Gp about statins, he was gaily prescribing them, his patients complaining about various aches and pains which he ignored. Change came when HE ‘needed’ to take them and the suffered all his patients aches 🙄

Diet, exercise and I use herbal remedies and hope. I’ve enough side effects from the heart drugs

bassets profile image
bassets in reply to LaceyLady

Thanks for this. It's a dilemma which I'm still thinking through :)

LaceyLady profile image
LaceyLady in reply to bassets

I couldn’t bare taking another drug that quite likely cause me more pain, on drondarone and since have pain in all my weak spots! And you never know the interactions, they done know either.

Look to your diet and exercise

Krissy55 profile image
Krissy55 in reply to bassets

Research why they are bad to take not only for pain but for memory and liver etc..

bassets profile image
bassets in reply to Krissy55

I am researching and posting here is part of it as its v valuable to have a lot of diverse opinions. Thank you.

Flimmeri profile image
Flimmeri in reply to bassets

I have been taking Ezetimibe and have not had any issues with it!

bassets profile image
bassets in reply to Flimmeri

Thanks that's useful to know.

Rosemaryb1349 profile image
Rosemaryb1349 in reply to LaceyLady

Does anyone know if there is a test to see if the statins are the Cause of my aches and pains? I am sure I am one of the unlucky ones that have suffered since starting them.

LaceyLady profile image
LaceyLady in reply to Rosemaryb1349

Sadly I don’t think there is. I’d like a blood test for anticoagulants

RAS54 profile image
RAS54 in reply to Rosemaryb1349

Had this problem with Simvastatin changed to Rouvastatin problem disappeared. I believe Simvastatin is the cheapest so offered first.

Rosemaryb1349 profile image
Rosemaryb1349 in reply to RAS54

That's very interesting and thanks for your reply. I wish a blood test could determine the answer.

RAS54 profile image
RAS54 in reply to RAS54

It was sometime ago but I'm sure the creatine kinase blood test will show if this is cause of pain. Mine was 5times normal. Initially told I couldn't change the station unless it was 10times normal. After I informed GP pain was so bad I would have to stop work they changed the statin. Not absolutely sure of spelling of test as it was 10years ago. My understanding is that some statins are water soluble and some oil(fat) soluble and this can effect how they act on you.

RAS54 profile image
RAS54 in reply to RAS54

It was sometime ago but I'm sure the creatine kinase blood test will show if this is cause of pain. Mine was 5times normal. Initially told I couldn't change the station unless it was 10times normal. After I informed GP pain was so bad I would have to stop work they changed the statin. Not absolutely sure of spelling of test as it was 10years ago. My understanding is that some statins are water soluble and some oil(fat) soluble and this can effect how they act on you.

bassets profile image
bassets

Apparently it is high. It should be 5 or under and it's 6.6.

Teresa156 profile image
Teresa156 in reply to bassets

I’m sure others will give their advice then, if they are in the same boat. Good luck.

wilsond profile image
wilsond in reply to bassets

Hah! Mine was 13.5. That's high. Seriously yours is just over the border. Consider lifestyle first ,say for 6 months, with agreement from.GP( although they do get 'encouragement ' from Govt)Then see. (?)

bassets profile image
bassets in reply to wilsond

Wow that is high. My son in law's was something like that. Although I'm a long-standing vegetarian I've been hitting the cheese and butter etc. too hard! My own fault so I am cutting out high cholesterol foods for a while. I have actually started the diet post Christmas and will see my new GP next week and will suggest this. Thanks Wilsond.

KMRobbo profile image
KMRobbo in reply to bassets

Not medically trained but I understand that food s high in cholesteroL (eg EGGS) DO NOT RAISE CHOLESTEROL. I understand it is foods high in fat that cause yiur own body to raise the cholestetol levels..

bassets profile image
bassets in reply to KMRobbo

Thanks - I do eat eggs and I'm glad to read this.

Cabinessence profile image
Cabinessence in reply to KMRobbo

Correct, high cholesterol foods in and of themselves do not necessarily raise blood levels. The body's response to eating stuff that causes inflammation is what raises levels. It does this to repair the damage caused by the inflammation. Big culprits include sugar and alcohol. Worse by far than either of these two is linoleic acid. All seeds oils (other than macadamia) are really high in these and they cause even more inflammation when heated. So all the year's I've spent eating "good" nuts like walnuts and almonds have actually done me more harm than good probably. Here you go zeroacre.com/blog/are-seed-...

KMRobbo profile image
KMRobbo in reply to Cabinessence

LOL - you just cant win! Everything that was seen as good now turns out to be bad! (Again)

bassets profile image
bassets in reply to KMRobbo

You're right, we can't win.

SamuelJB profile image
SamuelJB in reply to Cabinessence

Totally agree inflammation cause liver to increase cholesterol most of the problem comes from liver with around 20% from food we eat. I take care to avoid sugar alcohol and processed foods take plant sterols. Things like garlic and lemon and but D3 with Vit K2 reduce plaque formation aswell. I had bad reaction to statins however others are fine and it works for them so it individual choice.

gbn_ profile image
gbn_ in reply to Cabinessence

Hi Cabinessence. I alwaus thought almonds and walnuts were good too. I buy the "raw" versions of almond and walnut butters, with nothing else added with no salt, along with peanut butter same way, and I pour off all the oils on top. So these are really not good for you??

LaceyLady profile image
LaceyLady in reply to bassets

My problem is, I’m a low carb high protein dire betic 🤯

secondtry profile image
secondtry in reply to bassets

Mine has been at that level for 20+ years never changes much. 8 years ago my arteries were checked and no problems spotted.

bassets profile image
bassets in reply to secondtry

That's good to know :)

SamuelJB profile image
SamuelJB in reply to secondtry

Yes high cholesterol does not necessarily cause heart attacks or strokes. The type of LDL dictates the rick not just high LDL. For me inflammation is most significant factor triggering plaque formation. I have moderate high cholesterol with high LDL I focus on avoiding inflammatory foods and take sterols and avoid sugar and alcohol. It an individuals choice. Thankful to dare not had HA or Stroke and AF controlled by Sotolol.

pusillanimous profile image
pusillanimous in reply to bassets

I just take 5mg a day, keeps my cholesterol around 4 - doctor does not want it any lower. I have never had side effects from it

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to bassets

Hi

My Cardiologist wants me @ 3.

But remember you have the total Cholesterol then subtract the good cholesterol.Good cholesterol isavocado, salmon etc.

cheri. JOY. 74. (NZ)

Desanthony profile image
Desanthony in reply to bassets

That's borderline and often the result I get - especially after over indulging at Christmas. Years ago when Statins were thought to be the new super drug and GP's were handing them out like sweeties and he put me on them. Never again, I was passing out regularly when going shopping and going to the bank. Since then my brother has been put on them after a CAC test which is probably more important than Cholesterol test as he actually needs them - he lives in South Africa so can't compare the health services and my sister (living in UK) has a slightly raised cholesterol reading like mine. She has the prescription but has decided not to take them though is not making dietary or lifestyle changes - she has never had a good lifestyle - drives everywhere eats mainly processed food and is very overweight - maybe she should take them as she is going to do nothing to change her condition and it is likely to get worse rather than better?

My wife whose Mum and Grandma suffered from various heart complaints and we now believe concerned high cholesterol both of them died young - her Mum dying at 34 from some such has never had a cholesterol or any other test from her GP - and has never been offered statins - even though a private test showed hers cholesterol to be borderline at the same time I was offered statins. she went to her Doctor with the results and was refused statins he was quite adamant he would not put her on them makes me wonder why her Doctor's practice was not one for throwing out statins at everyone?

This has been discussed on here before and if I can find it will post a reply I saved from someone - can't remember who.

In the meantime make those lifestyle changes - exercise and good diet, eat less saturated fat and processed food for a while and see if that makes a good change for you.

Desanthony profile image
Desanthony in reply to Desanthony

Copied from a previous discussion on Statins on here as promised.

"Interesting as the last thread on statins was taken down! This may be because it is a highly emotive subject but lets try again.

I took statins for many years without question unitil leg pains made me realise that they were not always helpful. Then I discovered something called QOF-- quality outcome framework on which doctors pay is calculated and includes a number of strategies where GPs have to have conversations with patients. Statins is one of those, hence so many doctors insisting that patients take them. The fact is that it is the conversatioan that counts not the taking of statins as my GP readily accepted and told me so maybe some honesty would help you to make up your mind.

There are a number of members here I know share my views but what annoys me is the almost blackmail and scare mongering approach your GP has taken. I am quite sure that for some people statins can be helpful but please, for the right reasons!"

Unfortunately I didn't copy out the posters name so can't credit them here. Sorry

bassets profile image
bassets in reply to Desanthony

Hi Desanthony. Thank you for your advice. Did you mean my 6,6 is borderline? I do intend to eat healthily from now on although as a vegetarian I can only cut out dairy and chocolate (both of which I love). I'll have to see what the doctor says as this is a new practice for us but I think I'd like to wait and see if it will come down naturally.

Desanthony profile image
Desanthony in reply to bassets

6.6 is not that high - I probably shouldn't have said borderline but my cardio and I consider that level for me as borderline for being prescribed statins we did have a discussion about statins long after my first experience with them (possibly about 10+ years after) and she looked at my results and the fact that the statins didn't change this reading in the couple or so months I was on them, and was happy with my not taking them. It also depends on the levels of good and bad cholesterol in that result - my good cholesterol is the highest number so especially after my experience of passing out whilst on Statins - stopped them (never passed out either before or since). It certainly made sense for me not to take them. I am also hit by the coincidence of the 6.6 result that was my result, my wife's result and my sister's result and yours. I was immediately prescribed statins, my wife's Dr adamantly refused her statins (despite her family history and tested level of 6.6) and my sister was immediately prescribed them? We have no history of heart disease in our family - other than my Mum having a weak heart after getting rheumatic fever when she was a child - I don't think that is passed on? My brother was given a CAC - Coronary Artery Calcium test/scan and was found to have calcium deposits in the arteries of the heart so with this positive evidence he was put on statins at 75. I think if offered this and also found to have similar results would probably give statins a go again.

I believe that processed food and salt is bad for us and avoid it as much as possible eating fresh food cooked from scratch as much as possible - there is always added sugar and salt to add taste to processed food. I now never use salt in cooking vegetables and don't use salt at the table apart from the twice yearly event of eating chips - sometimes my wife craves them - I don't really like them. Our greatest weakness is strong cheese so have to limit our intake - hard over Christmas when we were given a huge hamper of the stuff as well as buying the usual treats we now have a cheese drawer in our freezer (!). My cholesterol sits defiantly at 6.6 no odds what I do and the statins didn't change this so some of this must be genetic. I also had a friend who could do nothing to alter her high cholesterol she was slim ate very sensibly and never drank anything stronger than water - statins made no difference to her cholesterol score and she died of heart disease - but at nearly 80 rather than in her 30's like most of her Dad's family this was definitely genetic as her Dad's family all died young from heart disease. My wife's cholesterol can waver from 4.5 - first test to 6.6 and a third test at 3.5 - the 6.6 test results were from a test done just after Christmas funnily enough - test done on 4 January and the pharmacist giving her the test results joked about the effects of the usual Christmas blow out with her - though he still referred her to the Dr who then refused to prescribe statins. The 3.3 test was in the middle of summer when my wife is practically a rabbit as she loves raw veg and salads and hardly eats meat. I think I was prescribed statins in the early 2000's so when I was around 60 so, 20 years ago and I still haven't had a TIA, stroke or heart attack and although maybe doing all my exercise a little slower and maybe not with so much gusto or enthusiasm - and definitely not as much patience as I used to (really get annoyed at the young 'uns in the gym sitting on the weight machines just scrolling through their mobile phones when I am waiting to use the machines) despite prostate cancer at 70 (I think that is long enough ago now to say I am cured) and side effects of Hormone Therapy and my AF I am still doing all the things I used to 20 years ago . I do think we should have a better discussion with our GP's or who ever we are sitting opposite when this subject comes up rather than just be told you're levels are X.X and you should be on statins - some of us probably do need to be, some of us probably need to be monitored, make lifestyle changes and think about going on them at a later stage if cholesterol levels rising. Then again maybe some of us do not need them at all and would have a worse quality of life because of possible side effects.

I would give lifestyle changes a go for a 6 months and see how you go. If your cholesterol doesn't change in that time and you feel you need to do something about it then give the statins a go.

Whatever works for you.

bassets profile image
bassets in reply to Desanthony

Thank you for your very kind, considered reply. I think you’re right and that’s what I’ll do. :)

Bagrat profile image
Bagrat in reply to bassets

Last time about 4 years ago mine was 7.3. I tried and failed on 2 diff statins. aged 10 yrs. I also have this nagging feeling that at my age Ive gotto die of something, which is over simplistic I know

bassets profile image
bassets in reply to Bagrat

Difficult to know which way to swing isn't it?

femalegannet profile image
femalegannet

hi, I’ve too have been told I should be on statins but am reluctant. I’ve been trying plant sterols for 3 months and had a lipid test yesterday to see if they are working. My cholesterol was 5.4 but cardiologist thought it would be best.

bassets profile image
bassets in reply to femalegannet

Thank you. Please let me know if this is working?

femalegannet profile image
femalegannet in reply to bassets

will do

KMRobbo profile image
KMRobbo in reply to bassets

I have bee taking sterol capsules formany months and my cholesesterol lsvel has reducec quitr a bit but stll at 6.2 and GP/ nurse want ti duscuss it. Begiing to rhink they get paid for pushing statins out! Hiwever if I was 13.5 I think I would trial them!

bassets profile image
bassets in reply to KMRobbo

Good to hear that the sterold have worked for you - thanks.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to KMRobbo

Hi

Yes USA pushed them and the goverment gets payment for someone new on them.

cheers JOY. 74 (NZ)

KMRobbo profile image
KMRobbo in reply to JOY2THEWORLD49

To me thats a good reason NOT TO TAKE THEM!

bassets profile image
bassets in reply to KMRobbo

Ok!

Bagrat profile image
Bagrat in reply to KMRobbo

They get paid for encouraging you to take them but if you say no, I don't think the pay reduces. Bear in mind that all health care planning is to make it more economical. So if statins keep people out of hospital, regardless of their quality of life, that is the way they'll go I fear

bassets profile image
bassets in reply to Bagrat

I suspect you're right.

femalegannet profile image
femalegannet in reply to bassets

Hi bassets, my latest test showed cholesterol was now 5.2. Gp was still pushing me to have a statin and see how I get on.

Ive agreed she can prescribe it and I’ll think on it a little longer and take it if/when I’ve made up my mind. 🤔

bassets profile image
bassets in reply to femalegannet

That sounds sensible. I hope it suits if you decide to take it. I was talking to an old friend at the weekend and he has had to try three types to find one that he can live with. Best of luck :)

SamuelJB profile image
SamuelJB in reply to femalegannet

I am in sane place too cautious about statins and focusing on avoiding inflammatory foods and sugar and alcohol. Take Vit D3 with K2 to inhibit plaques and Apixavan with Sotolol for AFib control. Read that there are different types of LDL and it is possible to have high cholesterol and high LDL and have no risk. Rest needed on LDL to check it out. Hope you stay well and off course take statins they do work and reduce cholesterol.

BobD profile image
BobDVolunteer

Intersting that I watched a TV programme last evening about diets and why they don't work. In it they did discuss cholesterol and how diet and what you eat has little or no effect on your cholesterol levels. This is a relatively new discovery apparently but it is now known that your cholesterol levels are genetic so if you want it low then choose your parants wisely.

bassets profile image
bassets in reply to BobD

Oh dear! That's a blow. What programme was this please?

BobD profile image
BobDVolunteer in reply to bassets

Think it was called sopmething like " The lies about diets and gyms". Deleted the recording now. sorry. As I have always said here. diets don't work but life style can. In fact most diets actually incease weight over time due to the yo yo effect. Go back fifty years and there was very little obesity here in UK.

bassets profile image
bassets in reply to BobD

This sounds sensible. I can't remember many overweight people when I was growing up.Thank you.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to bassets

Hi

Yes but on the other hand they leaning you towards prediabetic. Then the diet is forced keep carbohydrates and sugar.

Statins lead on to oter things happenings.

cheri JOY

FancyPants54 profile image
FancyPants54 in reply to BobD

It's not a new discovery, not by decades. But it might finally be getting through to someone other than the geeks amongst us. Cholesterol is not the enemy. Inflammation is. Cholesterol is there to make repairs and to help us synthesis vitamin D from the sun and to feed our brains. One day statins will be debunked I'm sure of it.

bassets profile image
bassets in reply to FancyPants54

Thanks for this - food for thought.

BobD profile image
BobDVolunteer in reply to FancyPants54

I do hope so!

secondtry profile image
secondtry in reply to FancyPants54

Totally agree, cholestrol has been demonised and may turn out to be the saviour to combat dementia etc.

pusillanimous profile image
pusillanimous in reply to BobD

Yes ,there are certain groups that are genetically prone to high cholesterol. In South Africa, Afrikaans people being one of the groups. It is believed that just one early settler family of Dutch Huguenots is responsible for causing it among their descendants.

bassets profile image
bassets in reply to pusillanimous

Intersting, thank you. I wonder why?

Desanthony profile image
Desanthony in reply to pusillanimous

Amazing - descended on one side of the family from French Hugenots (possibly on 2 as my Mother's family also of french descent but not gone into this yet) and on another side from Polish Jews (I have no religion though brought up Christian CofE) my brother became muslim to marry his second wife and her son has become jew and changed his name and everything - such a mixture! Have been told by my daughter-in-law an ICU nurse in the US that there is some belief that women of jewish descent are more likely to develop collitis - which my sister did - also my Dad whose Mum was of jewish descent. Is this true too? So interesting .

pusillanimous profile image
pusillanimous in reply to Desanthony

I too believe that it is the case that Jewish women are prone to colitis - in fact a Jewish friend of mine developed it , Ashkenazi Jews I understand, are among the groups who often have elevated cholesterol - I worked for a Jewish specialist in Oral rehabilitation and most of his patients were Jewish and many of them had high cholesterol. Funnily enough,I am also descended from French Huguenots on my father's side and my doctor can only think that my high cholesterol is genetic, although there is no proof !

Desanthony profile image
Desanthony in reply to pusillanimous

Its a few generations since we were practicing jews and we have married out of the jewish line a lot going back to my great great grandparents. though my Dad did look a lot like Kirk Douglas - thought we may have had a family connection but he was descended from Russian Jews and we are descended from Polish Jews - so less likely. None of us look like my Dad neither do the grandchildren or great grandchildren - though a few are quite good looking but nowhere near as gorgeous as my dear Dad - the dimple on the chin etc!

pusillanimous profile image
pusillanimous in reply to Desanthony

Here in South Africa we've had some gorgeous Jews, Laurence Harvey (Zvi Moshen Skikne - Lithuanian) - My boss was alright too (Russian) ! there are many clever and rich ones too (Elon Musk) the chap whose just married Earl Spencer's daughter, for example !. Our patients were all very, very rich (needed to be to afford my boss) and incredibly generous. I know this has nothing to do with AF, but I love the people. My dad was born in North London, and his best friend was 'Uncle George' (Jewish)- pals since they were schoolboys until death. Better return to the subject before we get into trouble !!!

Desanthony profile image
Desanthony in reply to pusillanimous

My brother lives in South Africa. David Suchet's grandfather or great grandfather I think lived in South Africa and a picture of his (great) grandfather in a snazzy cool linen suit with briefcase and cane looks just like David Suchet as Poirot. They too were of Jewish descent. My Dad spent most of his young life in Bethnell Green and then they moved to a big house in Reading on London Road now I think headquarters for a bank

pusillanimous profile image
pusillanimous in reply to Desanthony

I was born in Sunninghill, Ascot Berkshire (left when I married a South African resident.) Used to go to Reading shopping regularly - spent one year at the London Rd Campus of Reading Uni!

Desanthony profile image
Desanthony in reply to pusillanimous

Small world! I think Grans address was 10 London Road, You can still see a building that was - maybe still is the baths a little further down the road where I used to go as a child with Gran.

LizLancashire profile image
LizLancashire in reply to BobD

I was told this too by my GP. I tried really hard with diet to avoid statins to no avail. GP said high cholesterol is 95% hereditary 5% diet.

FancyPants54 profile image
FancyPants54 in reply to LizLancashire

Actually a symptom that used to be used to diagnose hypothyroidism in the days before the TSH blood test was invented, was high cholesterol. Doctors never take any notice of signs and symptoms anymore. Just blood tests, that can be fallible or variable. But back then high cholesterol was a red flag for hypothyroidism and as soon as the hypo medication reached a good level the cholesterol fell. I have seen this happen to me too. This instance has nothing to do with familial hereditary genetics.

Goosebumps profile image
Goosebumps in reply to BobD

I had a ‘special’ lipids blood test to look at whether there was more risk of genetic cholesterol issues. The test was suggested by the cardiologist rather than the GP and it came back negative. One less thing to worry about.

I think they did the test because both my father and grandfather had heart issues. I clearly didn’t choose my ancestors well.

bassets profile image
bassets in reply to Goosebumps

I've never heard of this, but it seems like a good move as my dad died of a heart attack. I wouldn't expect one for a while nowadays even if this was suggested with things as they are. Thanks for the information :)

SamuelJB profile image
SamuelJB in reply to BobD

Yes agree mostly from liver response to arterial inflammation. Also read as we age hormone levels drop and as cholesterol is needed to produce hormones your liver react by raising blood cholesterol. As we know this is complex and always take medical advice especially with family history of high cholesterol and HA and Strokes.

lovetogarden profile image
lovetogarden in reply to BobD

I chose badly when it came to parents. 😂 ❤️ Both had very high cholesterol, same with my brothers. I think they are/were on statins, as am I. (one brother died recently) I was put on them when I had a very tiny TIA a few years ago. They have cut my levels in half. If I’ve had any new aches and pains, I haven’t noticed. But taking them has reduced anxiety about having another TIA or stroke, since there have been a few too many of them in my family history.

BenHall1 profile image
BenHall1

me

bassets profile image
bassets in reply to BenHall1

My son in law has very high cholesterol and is on a big dose od statins these days like his mum.

Popepaul profile image
Popepaul

Like you I have reservations about the use of polypharmacy to maintain good health in later life. My GP practice recently suggested that I start taking a statin in order to lower my risk for CVD/Stroke. I looked into the reported benefits and risks for prophylactic use of this class of medication. To my mind the risk outweighed the suggested benefits. The statistics that support their use are often given in terms of a reduction in relative risk The absolute (individual) risk reduction is very often much less than the figure quoted. Also these medications are not without side effects.I do not doubt that statins can be beneficial for many who take them. It is a choice we take.

Regards

bassets profile image
bassets in reply to Popepaul

Thank you. I'll think about it some more.

SamuelJB profile image
SamuelJB in reply to Popepaul

I agree with all you say. Personally stating in the past produced very bad side affects for me so I rely on controlling inflammation and inhibiting plaque formations. I am in Abixavsn and Sotolol for Afib.

Janith profile image
Janith

l take a statin on MWF … any more often than that causes my muscles to hurt. cholesterol seems okay always. Best, Jan

bassets profile image
bassets in reply to Janith

Thanks Jan, interesting way to take them!

Aprilbday profile image
Aprilbday in reply to Janith

That is good to know. I get terrible kidney pain taking the statin everyday.

Vrouse profile image
Vrouse

I was put on statins following a stroke caused by AF. My cholesterol is fine but they were prescribed as a preventative to reduce the risk of further strokes. I have never had any problems with them.

secondtry profile image
secondtry in reply to Vrouse

My wife the same after a mini stroke. It may reduce her energy.

bassets profile image
bassets in reply to secondtry

Sorry to hear your wife has had a mini-stroke. I hope she's doing well now?

secondtry profile image
secondtry in reply to bassets

Thanks, she is much better.

bassets profile image
bassets in reply to secondtry

That's good x

Aprilbday profile image
Aprilbday in reply to secondtry

My energy is gone when taking statin!

secondtry profile image
secondtry in reply to Aprilbday

Yes, I believe that is a common experience but not sure why??

lovetogarden profile image
lovetogarden in reply to Vrouse

This has been my experience too. Prescribed after a TIA, no problems with them.

mjames1 profile image
mjames1

A newer study shows that statins can lower the risk of both heart attacks and strokes for those with a fib.

I was taking statins long before that study because of high cholesterol that was resistant to both diet and lifestyle.

Yes, statins can have some side effects for some, but consider what, having a stroke or a heart attack would be like.

By all means try diet and lifestyle first, but if you can't lower your cholesterol within a few months, acknowledge that you need some pharmaceutical help.

"Lowering cholesterol and treating atrial fibrillation have been thought of as separate issues, but this shows a link between the two. Treating one could help the other,” Dr. van der Zee explained."

medicalnewstoday.com/articl...

Jim

secondtry profile image
secondtry in reply to mjames1

I long for the day when studies have to declare transparently who financed it either directly or indirectly (eg the researchers received past funding or future promises of the same) and also where the income from the reporting journal comes from. Our decisions on 'take it or not' are then likely to be more beneficial. Highly unlikely I know but hope is the bird that sings when the night is still dark 😁.

bassets profile image
bassets in reply to secondtry

Yes it would be nice if everything was transparent. It seems that secrecy is still the rule and I wonder what is nor being said. Hard to decide what's what without all the data.

gbn_ profile image
gbn_ in reply to mjames1

Hi Jim. Earlier when in the hospital for my AF along with the usual other blood tests, they did a lipid panel. Cholesterol--122, ldl--63, hdl--46, cardiac risk ratio--2.65, trigl--64. they wanted me to consider a statin, but I told them I'd think about it.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to gbn_

Hi

Um let's have the decimal points in your figures.

I have to guess that your cholesterol is 12.2 and your Triglyerides is 6.4.

Cholesterol is high! Probably 5 in the normal range

Triglycerides are high - should be under 2. As 2 is in the top of range.

JOY

gbn_ profile image
gbn_ in reply to JOY2THEWORLD49

Hi Joy. I am using U.S. standards, not decimals, these are my total numbers.

mjames1 profile image
mjames1 in reply to gbn_

Did you ask them why? Those are outstanding numbers.

Jim

gbn_ profile image
gbn_ in reply to mjames1

Hi Jim. Thanks for the response. I thought they were good too. I just figured they wanted to do their usual push with medications with the ones they already put me on for the AF, but I got my report results right before they mentioned statins, so I knew ahead of time what my numbers were. When I had my first doctor appointment about 3 weeks ago, I brought the subject up. Not too much was actually said about it but I did bring up about LPa levels which really should be looked at but there is no real way as of yet to bring those levels down. I believe it refers to the actual size and shape of the ldl particles as opposed to the actual levels of them. The doctor actually agreed with me on that point. Doctors just don't check for it, much to my dismay.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to gbn_

Hi

In NZ we have clear indications when we are high. We will have an H beside it and normal levels in brackets.

I think anove 5 is H and High for Cholesterol.

I know above 2 is H and High for triglyerides.

EASY to check.

I took a 10mg Avorstatin for a week prior to blood test and Cholesterol fell to 3 after one subtracts the good stuff from bad.

I researched a Health magazine and it said CHOLESTEROL cannot be measured.

My stroke was caused by a stray clot during my AF.

On scanning my carotid arteries they were squeaky clean.

When I talked to my Dr she said (also had AF before ablation) we don't know if you have cholesterol within your heart. But she agreed that Avorstatin and thyroxine are not good taken daily in my meds.

She offered me the other ...? forgotten.

cheri JOY. 74. (NZ)

Friend 84 passed last night. Was it because she took anti COVID virus pills (2) or stopped 20mg statin or COVID tired her out?

Or was it her agressive MS? Or age 84.

cheri JOY 74. (NZ)

She could not get her last vaccination back in May 23 which contained the omicron or latest although she got COVID positive on the night before I had my 6th jab which contaied the new JN1 strain.

bassets profile image
bassets in reply to JOY2THEWORLD49

Thanks Joytothe world49

gbn_ profile image
gbn_ in reply to JOY2THEWORLD49

Hi Joytotheworld49. Very sorry to hear of your friend passing. I realize there are different measurments with cholesterol numbers depending on different global guidelines and country. Which health magazine did you read that mentioned cholesterol could not be measured? I'm curious because where would the clinics get the different numbers from or how to see and report if numbers are either high or low? I had a heart attack in 2009 with almost the same lipid panel as the one I just posted, really good numbers. However, I've also read that many people with low cholesterol have heart attacks, it happened to me.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to gbn_

Hi

Sorry some years ago when I questioned the use of statins.

I was given them back in 2008. Bt when I research them I didn't carry on with them. Just Metopolol. I was carrying probably another 10kg than now. But when the local Dr resigned because of health I had to go to the ain centre where the Dr doubled the Metoprolol from 47. ? doubled. I couldn't breathe. Told to stop and if worried get to hospital quick.

Unfortunately this alert was NOT put in my notes. Therefore not transferred with me. After stroke in 2019, previous Metoprolol was stopped in 2010 because I went too low, I was offered it again. 3 x 27.? pills. I said no but endocrinologist left me on them but could reduce.

Immediately I was breathless on any exertion.

I reduced to 2 and then 1 but rapid pulse of 186 carried on during day until I demanded to see a public Cardiologist. She changed me to Bisprolol. The 24-Heart Monitor showed pauses during the night which weren't seen with the new drug.

But with a pulse of 156 Day remained still uncontrolled AF H/Rate.

At 2 years 3 mths my Locum Dr sent me to a private Cardiologist who introduced CCB Diltiazem. 1/2 dose of 180mg was too much bringing down H/Rate to 51 within 2 hours.

Advice from NZ Heart Foundation's nurse said reduce Diltizem to 120mg. Take it AM. Reduce Bisoprolol to 2.5mg PM for BP.

Since then profile was

110-130 / 69. 88-96 H/R Day and remained low H/R Night over the 3 x 24hr H/monitor. (47bpm)

Lost 6kg over last month now profile is

110-130 / 69. 60s H/R Day and remained low H/R Night (47bpm).

I feel much improved. Systollic can creep up to 145 nearing end of its 24hr control with Bisprolol until I take another 2.5mg.

10 mg Avorstatin does lower my Cholesterol end total down to 3.5. Using it for a week before blood test as I am anti-statins.

(To keep the peace!)

cheri JOY

Finally Metoprolol is on my banned med list).

I've been discharged on the outpatients list. Too many need new help. I don't have heart failure as no symptoms but just me pausing when walking at times. (Told body waiting for restoration of oxygen ). Abnormal structure of heart shown on ECHO accompanied AF controlled but persistent.

gbn_ profile image
gbn_ in reply to JOY2THEWORLD49

Hi Joy2theworld49. I may be having the same problems with metoprolol. Prescribed 50 mgs. twice a day while in hospital, but with first doctor visit after being back home she upped dose to 75 mgs. twice a day only because at first visit with her my heart rate was elevated which probably was because of being a bit nervous being there for first time. I find that I tire easily and will soon find out for sure because it's currently snowing here and I'll have to go out to shovel soon, I also seem to have increased anxiety with it and trouble sleeping also. So, you are currently on Diltiazem 120 mgs. once in the morning along with Bisprolol 2.5 mgs. once in the evening and you are feeling better? I was also told while in hospital that I have heart failure which caused slight swelling on leg, ankle and foot. After ECHO it showed abnormal lower heart chambers not pumping out like they should to empty completely which was causing the swelling. Put on water pill 40 mgs. once a day to help with that. Also xarelto blood thinner 20 mgs. once a day. My next doctor visit will be in 3 weeks and I'll mention about trying a different medication instead of the metoprolol because of the current issues with anxiety and sleep so I'll see how that goes with suggestion with switching to maybe something else. At that time I'll find out if my current prescription plan would cover something different. I am currently looking for any type of suggestions to bring up with doctor to help me feel better with certain medications.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to gbn_

Hi

Your Metoprolol level I've never known anyone to be on more than 97mg total.

AFers patients are better on Bisoprolol BB the alternative to Metoprolol. I had pauses at night***

I wouldn't have been able to lift a shade let alone use it!

I don't have heart failure as no symptoms like flutters, palpations or pain.

I take BB for BP. High Systollic probably because of soft systollic heart murmur.

Cardiology in October reported 145 Systollic but never said it abnormal Diastollic was 89 then 89 H/ Rate but the ECG was 130/69 and 65 H/R.

When having profile done keep still and no talking as it makes a difference.

**Only a Cardiologist can put you on a different class of med and probably a change.

I'd go to a private recommended Cardiologist as soon as possible and usually you can get in 1-2 weeks.

I have a severe dilated left atrium. Probably because left with a high Heart Rate and hypertension BP.

What was your profile printout before meds and now.

I have a BP Microlife BP Cuff. It takes A1 batteries. (4).

The Cardiology and Dr for an AF patient should take levels H/R physically.

Because of the dilation I have a resulting Right Ventrical bottom Chamber moderate regurgitation.

It was nice to hear that I don't have heart failure now. But controlled AF H/Rate.

Best to understand all tests, results, amd keep them in your mind to be them improved to project a better result/ difference to your heart structure.

You will not be able to have a cardioversion, ablation or anti-arrhymnic alterating drugs if your heart is not structurely normal. Mine is not.

cheri jOY

gbn_ profile image
gbn_ in reply to JOY2THEWORLD49

Hi Joy2theworld49. They did a cardioversion with the paddles while in hospital, it worked but only for a day, went back to AF. No private cardiologist needed, they are all located at Berks cardiology here, they work with both major hospitals here where I live, there are quite a few of them, my health insurance (Medicare) covers all of them, and I can switch if one doesn't seem helpful. The only thing I have right now is an oximeter that shows oxygen levels and heart rate, I look at it often. If my heart does flutter, I can't feel it, only symptom was slight swelling in left foot which brought me to diagnosis with AF. Yes, I'm really going to question about the current dosage of metoprolol, I'll post with any changes or comments from current doctor about it.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to gbn_

Hi

Oh thank goodness that you have insurance. I don't, lost it at aged 64 years I think.

Diltizem can give swollen feet etc but it doesn't happen with me. Put them up at night I say.

Those water pills are extremely nasty on the body taking out valuable minerals, like magnesium, etc.

Only when I drive in the heat 3-4 hours with stops that I get a bit of swelling.

I think you had a weight issue. Well, statins can raise your weight.

Dr can make mistakes. Post operative without my PRADAXA taking returning the surgeon was putting me on an anti-inflammatory ifuprofen even 100mg was best but I reminded him and said that I had asked my Dr to give me a few different ones. I had used tramadol for 1.5 days only, 2 x 500g paracetamol for 3 days and that was it. I had had a nerve block put into my shoulder during operation. That did the trick.

Giving you a cardioversion before an MRI or ECHO is really bad. Some do it to show whether an ablation would work.

Weight, age and length of time in AF persistent also are factors against the mentioned procedures.

Best wishes.

SAD JOY

Now reading up on PAX.... I am on calcium channel blockers so no thanx to that if I ever get COVID. News 7000 scouts here in WAIKATO and already some are testing positive to COVID. Oh dear.

gbn_ profile image
gbn_ in reply to JOY2THEWORLD49

Hi Joy2the world49. Sorry for the late reply. Never really had a weight issue, but I saw you mentioned the water pills. Did you ever, or are you now, taking them? Just curious did they ever affect your weight any? I take 1 a day and I make sure my potassium and magnesium is kept up with fruits and vegetables along with a magnesium glycinate supplement.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to gbn_

Hi

Hate them.

No, bur Cardiologist checked my ankles and said I had sknniny ankles!

Earlier I had based down in our free hospital bus.

I took them in South America as travelling in unconditioned bus . Ankles and wrists swollen. Overweight and sitting around in hrat on the Tucan bus. Then someone changed our new bottles of water with tap water and I got diarrhoea something awful. But the last leg to Rio transferred and in a condensed bus I promptly got a cold then hubby got ita bit later.

Head Cold.

No not on Diaretic pills. Horrid.

Not sure why one would loose weight over them.

cheri JOY

Feet up at night best.

Singwell profile image
Singwell in reply to mjames1

Yes Jim but the article doesn't really demonstrate that re AF. It states that the statins might assist with protection from stroke risk "these data add more support to use statins in AFib patients to decrease risk of stroke and TIA [transient ischemic attack] events". It doesn't say it addresses AF itself. Important difference. I guess if you cannot take anticoagulants this might he a helpful consideration. But has anyone compared instance of stroke in those with AF and not taking statins, with those who are? I doubt it. If so, that would be a more reliable indicator.

Auriculaire profile image
Auriculaire in reply to Singwell

Huang's study does do this. But the results are not that great as they are bound to have been reported as relative risk reduction . See my reply to Jim.

Singwell profile image
Singwell in reply to Auriculaire

Thanks. Will do

mjames1 profile image
mjames1 in reply to Singwell

I'm m not sure if I understand your point. Just like anticoagulants, don't treat a fib neither do statins. But both can decrease your chance of strokes if you have a fib. And apparently statins also chance of heart attacks if you have a fib. So just because you're taking thinners doesn't mean you shouldn't be taking statins.

Jim

Singwell profile image
Singwell in reply to mjames1

Thanks Jim. It was more about clarity that statins don't address the AFib that I wanted to make clearer. And if there's no indication of heart disease then perhaps no need for that extra protection. Personally I won't be taking them without a clear indicator of heart or arterial problems.

mjames1 profile image
mjames1 in reply to Singwell

I certainly wouldn't take them if my lipid profile didn't merit it. However, to wait for "heart or arterial problems" is akin to taking thinners only after a stroke. Statins where indicated, are meant to help prevent strokes and heart attacks in the afib population with high cholesterol.

Jim

SamuelJB profile image
SamuelJB in reply to Singwell

Agree low cholesterol does not prevent heart attacks or stroke but does prevent reoccurrence after you have had these. Anticoagulants and antiarrithymia Drugs can control Afib and keep Ha and Stoke risk low.

Auriculaire profile image
Auriculaire in reply to mjames1

The average reduction for ischaemic stroke or embolism elsewhere was 17% rising to 43% after more than 6 years use. This will be relative risk. The absolute risk reduction will be much lower. This was a presentation to an ESC conference and I cannot find it as a published peer reviewed paper . The researcher Huang is a PhD student at Hong Kong Uni. She does have a published paper on use of statins being associated with lower heart failure rates in AF patients. Previous studies have been inconclusive on statin use for AF patients. Similar large studies need to be done in other ethnic groups with different dietary patterns to see if these results are reproducable.

mjames1 profile image
mjames1 in reply to Auriculaire

Did you see the citation at the bottom and follow the link to a previous study?

"Dr. Nikhil P. Warrier, board-certified cardiac electrophysiologist and medical director of electrophysiology at Memorial Care Heart & Vascular Institute at Orange Coast Medical Center, not involved in this research, highlighted to Medical News Today that previous research had been published on this topic.

When commenting on the new study, Dr. Warrier noted that “these data add more support to use statins in AFib patients to decrease risk of stroke and TIA [transient ischemic attack] events which can be one of the most catastrophic outcomes associated with AFib.”

Jim

SamuelJB profile image
SamuelJB in reply to mjames1

Thanks Jim my goodness Afib and Statins what a statement makes me sit up and really be cautious about taking Statins with Afib. Thank you.

mjames1 profile image
mjames1 in reply to SamuelJB

Not sure if I understand your comment. The study suggests that anyone with atrial fibrillation and high cholesterol should definitely be on statins.

Jim

Auriculaire profile image
Auriculaire in reply to mjames1

Yes I did read this. " Given the lack of solid and pooled data, nor specific clinical trials, on this issue, our aim was to perform a systematic review and meta-analysis of observational studies on the association between statin use and different cardiovascular endpoints." Observational trials - low standard of evidence. Study authors say at the end that RCTs are needed. Absolute reduction in all cause mortality was 10% but given observational nature of studies chosen confounders might be involved. No association found with other endpoints of which ischaemic stroke was one and the CV mortality was reported as relative not absolute.

SamuelJB profile image
SamuelJB in reply to mjames1

Thanks Jim I need to read this as much appreciated. Weighing up the options for non food related cholesterol from live increasing. Very helpful.

mjames1 profile image
mjames1 in reply to SamuelJB

Some of us respond very well to diet and lifestyle changes. But others, including myself, find that cholesterol levels are very resistant to both diet and exercise. The only diet I've ever had that has reduced my cholesterol significant is a very low fat, low protein diet which I found too difficult to adhere to. The bottom line is if diet and exercise do not work for you then statins should be seriously considered.

Jim

bassets profile image
bassets

Thanks mjames1, that's a sensible thought. They must be better than the awful consequences without them.

bassets profile image
bassets

Thank you very much to everyone who has replied - you have all made it easier to decide on a course of action about taking this medication. It looks as though the most sensible way to go is lose weight, adopt a more sensible diet and see what that will do in a few months and if this fails, possibly start a low dose of statins.

Hammerboy profile image
Hammerboy

A friend of mine recently had a heart attack and was taken to hospital . After an Angiogram it was found his coronary arteries were narrowed by plaque and he had stents put in . His blood test results showed a cholesterol level of 3.7 which I found that very interesting bearing in mind that’s my current level of cholesterol and I’m having angiogram next week prior to being considered for an aortic valve replacement. I’ve been on statins for about a year since I had a spike in my level to 6.5 and my cardiologist recommended them . I have no side effects from taking them

bassets profile image
bassets in reply to Hammerboy

Thank you, that is interesting. So the plaque wasn't caused by cholesterol? Or was it? Glad you are having no side effects like others here. I'm just wary of taking yet another pill to add to all the rest. has your cholesterol level improved after this time?

Hammerboy profile image
Hammerboy in reply to bassets

It seems so but he wasn’t given an explanation . As for me my cholesterol level has remained around the 3 mark since I’ve been on the statins but again I don’t know whether my high level was a one off at the time . I used to have low cholesterol but once diagnosed with AF I have more blood tests due to taking anticoagulants so I guess they feel it’s better to keep it that way

SamuelJB profile image
SamuelJB in reply to Hammerboy

I have heard of low cholesterol and high levels of plaque being trigger for HA or Strokes. I am focusing on reducing inflammation of arteries and reducing plaque formation. Vit D3 with Vit K2 on Apixaban and Sorakol fit Afib. I abound inflamatory foods such as sugar and alcohol and processed foods

Hammerboy profile image
Hammerboy in reply to SamuelJB

Yes that seems right , I always assumed my cholesterol level is down to the cakes and biscuits Ivenjoy a bit too much . I think I’ll find out during my angiogram next week

bassets profile image
bassets in reply to Hammerboy

I think that's me too!

bassets profile image
bassets

Yes I suppose it's something that comes to light because of this condition and better to keep it low. I wonder if the scare stories about statins are sorts of urban myth? But as there's no smoke without fire, there must be people who have bad side effects from them as with all meds.

SamuelJB profile image
SamuelJB in reply to bassets

Yes statins work but I had serious ears bad reaction. Others I know have had no reaction and it’s good that it works for them. It individual choice really taking medical advise on board before deciding.

Peacockmumma profile image
Peacockmumma

once you hit a certain age they give you a blood test and Chuck you on statins…Dr Sanjay Gupta the York cardiologist doesn’t believe they prolong your life by much..obviously depending on how high your levels are obviously. Mine was 5.6 and am on statins now. Looking back on my history it’s always been about 5 ish…so ..personally if they help me with afib I’ll carry on altho my episodes haven’t decreased. A doctor told me 10 yrs ago as my level was just over 5 to cut my eggs back to 3 a week! 🤣🤣..I didn’t. Drs don’t know anything about nutrition. .

bassets profile image
bassets in reply to Peacockmumma

Thanks :) Sanjay Gupta seems to be a decent, clever doctor who gives his time freely.

Peacockmumma profile image
Peacockmumma in reply to bassets

His YouTube is so reassuring

bassets profile image
bassets in reply to Peacockmumma

Yes he has a fabulous bedside manner.

Singwell profile image
Singwell in reply to Peacockmumma

Ye gods - eggs don't contain harmful fats.

Peacockmumma profile image
Peacockmumma in reply to Singwell

Tell me about it..hubby and I eat loads

SamuelJB profile image
SamuelJB in reply to Peacockmumma

I would listen to Dr Gupta and am wary of big pharmaceutical business. Cholesterol is essential to health. I choose to reduce inflammation and formation of plaques. Have heard there are two types of LDL and it is possible to have healthy LDL at high levels. This is consistent with evidence that some individuals can have high cholesterol and not HA or Stroke. Equally that same can have catastrophic HA abd Stroke more research needs into causes of inflammation particularly processed foods.

bassets profile image
bassets in reply to SamuelJB

Yes, I've looked at him on tube. He always makes sense - thanks.

Tropicaltaurus profile image
Tropicaltaurus

Hi Bassetts, i was put on statins before i was diagnosed with AF. My cholesterol was on the high side of normal but because a head MRI i had for aura migraines showed mild small vessel disease my GP recommended them. I have had no problems on them but I'm only on the lowest dose. My cholesterol levels are now on the lower end of normal. It is my understanding they help with general heart health as well as cholesterol

bassets profile image
bassets in reply to Tropicaltaurus

Thanks Tropicaltaurus, good to know you're ok with these ;)

oscarfox49 profile image
oscarfox49

The medical establishment view is that those who have any sort of enhanced cardiac problem or insufficiency should meet a higher standard of 'bad' LDL cholesterol than the next person who is apparently risk. That is why I am in the same situation as many people with AF and also after a stroke, not caused by 'blocked arteries' but by irregular heart beat, in being told I must further decrease my LDL (calculated) level even when it is very low.

Having said that, I take Simvastatin 10 mg nightly, but have been told to increase it to 20 mg. When I did I got far more symptoms of digestive upset and disturbed sleep. I am sticking to the 10 mg and will just have to argue it out with my doctor.

But tens of millions of people take statins every day across the globe, and mostly it seems to reduce the risk. If you can tolerate the drug, then it is probably better to try. If it makes you unwell, don't be afraid to reconsider the decision.

bassets profile image
bassets in reply to oscarfox49

Thanks Oscarfox49, yes that's probably why my GP wants me on them. I just wish the reasons were more cut and dried. And what happens if you stop them for some reason?

oscarfox49 profile image
oscarfox49 in reply to bassets

Yes, there is some evidence that there is a 'rebound' effect when statins are abruptly stopped.... pubmed.ncbi.nlm.nih.gov/211... But this was of patients with acute cardiac problems. the same report says: "However, no increase in adverse outcomes was observed in patients with stable chronic coronary artery disease following statin treatment discontinuation."

I think the problem is that we all become habituated to any medication we take regularly and for any length of time and if we then stop them, it is at least intuitively possible that with the liver function changed with the absence of the drug, our levels of cholesterol could increase beyond what they originally were. I remember reading somewhere that when you take statins 'you take them for the rest of your life'. Worrying

bassets profile image
bassets in reply to oscarfox49

That's definitely something to think about, thank you.

DiyChas profile image
DiyChas in reply to bassets

Would advise not altering statins without advising your GP before hand.

IanMK profile image
IanMK

My routine blood tests don’t show elevated cholesterol levels but a cardiac CT scan did show evidence of narrowed arteries due to atherosclerosis. Although I had previously rejected the offer of statins, I decided that I shouldn’t tempt fate any longer.

JoniM profile image
JoniM in reply to IanMK

Interesting. Mine is opposite…my LDL cholesterol is somewhat high and doc’s been recommending statins which I’m trying to avoid. My CT cardiac calcium score (assume it’s the same one you’re talking about ) was 0. I’m 72 years old and my doctor was shocked. It’s considered equivalent to arterial age of 39. She said never mind with the statins. If the score goes up after retesting I will reconsider.

DiyChas profile image
DiyChas in reply to IanMK

I believe anyone with high cholesterol should have a heart CT scan and Angiogram (if warranted).I was doing a lot of running and road biking and found I couldn't keep up going uphill.

I pushed for CT scan and then referral to cardiologist for council on Angiogram.

Had I waited, I might have had a heart attack, as one artery was 90% blocked and another was 70%.

Had 2 stents inserted and the 90% one blocked.

But I was fortunate, as a collateral artery developed to take over. And I believe I didn't have a heart attack due to my very high areobic activist for quite a few years, even tho I had hypertension and cholesterol.

Bottom line, if you feel a drop in your areobic levels, regardless of age, get a cardiologist referral and push for an Angiogram.

bassets profile image
bassets

A sensible move IanMK. Are you taking them now and if so do you have side effects?

IanMK profile image
IanMK in reply to bassets

I started several months ago but after a month my blood tests were showing high ALT and GGT levels so I stopped and waited for them to subside. I started again on a lower dose in mid-december and I'm having another blood test next week. I'm 69 next month and feel I'm in relatively good condition compared to some I see. I do, however, have a CRT device to help me along 😉.

bassets profile image
bassets in reply to IanMK

I would be interested to know how you go on with the blood test - and thank you.

Singwell profile image
Singwell

I recently posted about this. (See my last post). My cardiologist had actually advised my GP to take AF out of the QRISK calculation because he says AF is not a risk in the way that ischaemic heart disease is. So, ask your GP to recalculate and see if the score lowers. If your cholesterol is highish make sure your thyroid is optimal in function. And remember- age is a factor. My QRISK score recently went up even though my cholesterol had lowered. Because I'm a year older. Ageing isn't a disease. Hope this helps.

bassets profile image
bassets in reply to Singwell

It dos help, thank you.

Auriculaire profile image
Auriculaire in reply to Singwell

The QRISK scoring system has been shown to consistently overestimate real world risk for cardiovascular events. It is the usual one size fits all medicine by algorhythm crap that is creeping in across the board . Thank goodness neither my GP nor my cardiologist seem to bother with it.

Singwell profile image
Singwell in reply to Auriculaire

I tend to agree. I also object to taking heavy duty drugs 'just in case'. Anticoagulants the data is compelling, including newer studies. But statins I would only consider after results of CT scan andnharr morphology issues

SamuelJB profile image
SamuelJB in reply to Singwell

Agree cautious that risk is scored when I hear of people with low cholesterol taking HA of Stroke because of plaques which are triggeeed by inflammation of arteries. Processed foods and sugar and alcohol cause inflammation and lice then produces more cholesterol to try to repair arteries. It’s individual choice and on Apixaban and Sotolol for Afib but no statins as yet. Still open in thinking and may still take the decision despite bad statin reaction in my past.

Midnight2022 profile image
Midnight2022

I’m on AF meds and statins and have had no ill effects from statins tho I do have regular blood tests to check for kidney and liver

bassets profile image
bassets

Thanks, good to know.

BrotherThomas profile image
BrotherThomas

I was started on Atorvastatin, 20mg daily about 9 years ago. I did not have high cholesterol and never have. My GP prescribed it as a "precaution due to my age ". No side effects that I'm aware of in all that time.

Peacockmumma profile image
Peacockmumma in reply to BrotherThomas

And of course they get paid for dishing them out!

BrotherThomas profile image
BrotherThomas in reply to Peacockmumma

Indeed they do!

SamuelJB profile image
SamuelJB in reply to Peacockmumma

Absolutely big pharma and money. Cautious.

bassets profile image
bassets

Glad you've had no side effects, thank you.

LadyZ13 profile image
LadyZ13

I'm on statins plus many of the other heart drugs (congenital heart defect leading to stroke, then surgery, now HF) - it's genetic, my cholesterol was 6.1 in Jan and calcification of the LAD was spotted on a CT, so they decided to stop that getting any worse with 80mg statin daily. I started all the drugs at once but once my guts had settled I didn't notice any side effects. I'm 39, fit and healthy (other than the heart impairment). I'd asked my doctor about dietary changes to reduce cholesterol and she laughed, I already ate well and it would only move the needle a tiny amount, the statin would be more effective. So now my cholesterol is 2.9 and they're going to halve my dose in March, a year into the script. Hope that helps!

bassets profile image
bassets in reply to LadyZ13

It does help, thank you. Glad it's working for you :)

Sleepyzz profile image
Sleepyzz

have been taking them for two years with no problems, my cholesterol wasn’t super high but dr felt it was high enough to be beneficial. When I saw cardiologist he said it was good that I was on them.

bassets profile image
bassets in reply to Sleepyzz

That's good to know thank you :)

sdgb profile image
sdgb

my cholesterol was 6 but due to having PAF and slightly raised BP my Qrisk score was higher. I’m 53 and my mothers side have all died of strokes and she has vascular dementia.

My cardiologist who I have known longer than I have been his patient and trust, said he is in fact on statins and advises all his patients like me to go on them.

I started two weeks ago and have had no side affects at all. I still have to wait for a blood test after three months to check everything. But I feel fine

Someone on here posted a link to a video from the British heart foundation re statins and it was extremely informative and changed my view point. Statins dont just lower your cholesterol, they have other benefits. Good luck

bassets profile image
bassets in reply to sdgb

Thanks for this information. /I hope everything goes well for you from now on.

Dudtbin profile image
Dudtbin

when i first saw a cardiologist after being diagnosed with af she changed all the drugs the dr had put me on. Bisoporol wasnt working and she took me off statins. I never did get round to asking why!

SamuelJB profile image
SamuelJB in reply to Dudtbin

Interesting being taken off statins. Open minded always hope all goes well.

bassets profile image
bassets

Thank you that's reassuring :)

Nugger profile image
Nugger

Been trying to get me on them for 15 years,have several fit friends the same way.The ldl cholestrol is split into 2 types that they never tell you,80 percent of ldl is good & only 20 percent is bad.

A better way is to divide your triglycerides by your hdl cholestrol & if its 1.5 or lower,you'll live till your 100 😆

Also look up Ankle brachial test,this will tell you if you have any atherosclerosis 👍

bassets profile image
bassets in reply to Nugger

Thanks Nugger, I'll try both .:)

SamuelJB profile image
SamuelJB in reply to Nugger

Excellent yes I agree not all LDL is bad and there is also a link to inflammation triggering liver to produce more cholesterol to repair damage. Thanks for sgaring.

Cha275rL profile image
Cha275rL

I’ve been on statins for years with no side effects. My cholesterol level was 7.2 and was advised to take them. I refused at the time and tried to reduce it myself, but I’ve never really had a bad diet, but tried hard, and when they tested it again it had gone up. Doc said it was more than likely hereditary, as most of my family had heart attacks or strokes, so I didn’t think I had a choice really.

bassets profile image
bassets in reply to Cha275rL

Yes it can bet hereditary, I know. Bad luck but at least they caught it :)

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

Statins inyerfere with my thyroxine I take for Thyroidectomy and 12 right lymph nodes with 2 affected.

Directions say that I could have 20mg Avorastatin.

I said that I would take 10mg.

I sometimes. take it if cholesterol is 7 but we all need it. Also 7 is taken down to 5 with good cholesterol.

Read all about it fors and against.

It is a personal choice.

This forum has discussions but research is important.

Tonight I have just learnt that my girlfriend of 84 has passed. She 84 years suffered MS and walking was difficult. She got COVID tuesday before Christmas, it started with chest pain. Then sore throat. She struggled and then Friday she started on anti-viral med. Her statins now reduced to 20mg were stopped.

She tested neg COVID last Monday.

She became very tired.

Did statins have a role not sure.

The plus is that it keeps inflammation around the heart at bay. Diane'sDr gave her no insructions to restart the statin.

cheri JOY. 74. (NZ)

bassets profile image
bassets in reply to JOY2THEWORLD49

Oh I'm so sorry your friend has passed. What a shock! I hope you're ok?

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to bassets

Hi

Unfortunately she was missing the last 2 COVID vaccinations. Because these contained the new varient anti-strains the omicron and JN1.

She never have got it in the first place.

But getting over that where she was isolated in her retirement village home, only to be so terribly tired still with some breathing problems.

She has a daughter further away who is under hospice on a morphine pump when a brain tumour was inoperable, cancer and radiation or chemo didn't reduce it.

IT'S ALL VERY SAD.

I'm OK but I'm sad that my friend sine 1980s will not be there to visit.

We played tennis but Diane suffered from MS which has taken it's toil on her.

But she had a disability scooter and zoomed around town getting her groceries

Cheri JOY

bassets profile image
bassets in reply to JOY2THEWORLD49

Poor girl, and her daughter. It is very sad. You will miss her, but try to enjoy life as much as you can. I'm sure she would want you to. Best wishes x

Tapanac profile image
Tapanac

I think I’ve been taking them since about 1995

All the best

Pat x

bassets profile image
bassets in reply to Tapanac

Thanks Pat, it's good to know you're fine with them x

Buttondog profile image
Buttondog

Hi

I have AF and have just started statins (10mg every other day). So far OK. I’m on a

few other things so it took me a while to decide. My cholesterol is 5.2. GP though it

worthwhile to reduce stroke risk but wouldn’t affect AF. Better to aim for under 4. You can always come off them. Good luck

bassets profile image
bassets in reply to Buttondog

Thanks for this Buttondog - it's interesting that your dose is every other day. Glad you're ok with this.:)

Gatun profile image
Gatun

I refuse to take statins because they are effective for only 1% who take them and are push upon citizens as a protocol by our National Institute Health who receives funds from Big Pharma. Suggest you look up DR David Diamond from University of South Florida who has compiled extensive research on statins and it's effectiveness. Another good read is: "The Great Cholesterol Myth" by MD's Bowden and Sinatra,

Vonnegut profile image
Vonnegut in reply to Gatun

And there is the Great Cholesterol Con - book a friend gave me which is a good read too!

SamuelJB profile image
SamuelJB in reply to Gatun

Agree

bassets profile image
bassets

I'll have a look at both these before deciding what to do, thank you .

Vonnegut profile image
Vonnegut

I’d heard many people didn’t get on with statins so whenever I am told my cholesterol is up, I take red yeast rice capsules until the next test when results are always fine again! I have never been overweight in my life and have a healthy diet so if my cholesterol is occasionally a little high it must be because I am too fatigued to engage in all the activities I used to engage in but am early 80!

bassets profile image
bassets

Wow you are doing two well! So the red yeast is ok with your other meds?

Qualipop profile image
Qualipop

My first statin upset my stomach. Second one no problems at all.

bassets profile image
bassets in reply to Qualipop

That's good to know, thanks.

Moongold7 profile image
Moongold7

Please ensure you get RELIABLE medical advice re statins as they cause muscle pain and other problems, and once you start them you can't come off them! Patients aren't today for some reason often told about these things before they're put on them, which in my view is very wrong, as you have absolute right to receive advice of all related to the medications you're being prescribed. Doctors cannot force you to take something against your wishes. I almost started statins and then decided to do some investigations on the Internet. There are excellent advices and warnings from even consultant cardiologists such as Dr Sanjay Gupta of York Cardiology, U.K., regarding statins. He gives clear advice on just who needs them. Heart patients who have no evidence of high levels of build-up in the arteries apparently don't need statins and are advised against starting them. Go onto YouTube and type in his name and you'll find his many videos on various associated subjects - these will remove much natural anxiety and give you correct information. Hope it helps!

bassets profile image
bassets in reply to Moongold7

Thank you I will have a look at this :)

SamuelJB profile image
SamuelJB in reply to Moongold7

Agree and have listened to his advice and the research he refers too. Inflamation is key issue not just high cholesterol.

Moongold7 profile image
Moongold7 in reply to SamuelJB

It seems inflammation is at the source of many of our medical problems today, unfortunately!

Ascb profile image
Ascb in reply to Moongold7

*can* cause. They haven't caused it for me.

Moongold7 profile image
Moongold7 in reply to Ascb

Maybe you haven't been taking them for very long? I know others have suffered much muscle pain over considerable lengths of time from taking statins. It's good if they don't cause these things, of course!

Ascb profile image
Ascb in reply to Moongold7

I've been taking them for many years

Moongold7 profile image
Moongold7 in reply to Ascb

Well, that's good then. Each person and situation is different and that's why care and reliable medical advice needs to be ensured.

Ascb profile image
Ascb in reply to Moongold7

Obviously

Moongold7 profile image
Moongold7 in reply to Ascb

Exactly.

Aprilbday profile image
Aprilbday

This discussion was a productive discussion- thanks for your post

bassets profile image
bassets

Thank you too. I still need to decide what to do...

Tomred profile image
Tomred

2400 mg plant sterols and intermittant fasting lowered mine, 1200 morning 1200 evening, lowering carbs from white bread etc is good.

SamuelJB profile image
SamuelJB in reply to Tomred

Doing the same daily and hoping it helps naturally.

Ascb profile image
Ascb in reply to SamuelJB

It depends whether it's a genetic thing, if it is then any amount of tinkering with food and supplements won't help.

SamuelJB profile image
SamuelJB in reply to Ascb

Yes agree with you the problem is nearly always liver producing higher levels of cholesterol. I know there is research ongoing into LDL and why it is possible to have high LDL with low risk. I think processed foods with additives contribute to inflammation and the liver responds. If eating clean reduces inflammation it might help in some way to reduce the liver producing too much cholesterol.

bassets profile image
bassets

Thanks that's very interesting.

DKBX profile image
DKBX

Take 5mg rosouvastatin along with the usual af drugs. No problems.

bassets profile image
bassets in reply to DKBX

Thanks - that's good to know:)

Snowgirl65 profile image
Snowgirl65

I've been taking both for years. The only side effect I have with Atorvastatin is that it makes me sleepy, so I take it in the evenings and it makes me sleep like the dead.

bassets profile image
bassets

There's a thought. Are you awake in the daytime or are you sleepy then?

Jackiesmith7777 profile image
Jackiesmith7777

my husband is .

Ppiman profile image
Ppiman

I do and have noticed no side effects whatsoever. I think these have been overly exaggerated and social media, for whatever reasons.

Steve o

Ascb profile image
Ascb

Yes I have been on atorvastatin for a few years. No issues with it. It was good enough for my dad who lived to the age of very nearly 93 so it's good enough for me.

DiyChas profile image
DiyChas

Statins are normal for cholesterol concerns.Bisoprolol is normal for AFib if your heartrate is higher.

There are possible side effects with both (as most medicines).

You should consult your Cardio (if possible) or GP, whenever you detect uncomfortable side effects with either.

I am on both and good results with statins but uncomfortable with 5mg bisoprolol and reduced to 2.5 with little HR impact and Cardio agreement.

bassets profile image
bassets in reply to DiyChas

Thank you :)

bassets profile image
bassets in reply to DiyChas

That's clear and practical - thank you.

frazeej profile image
frazeej

Statins will lower your cholesterol, and in addition they are anti inflammatory, and also act to stabilize plaque in coronary arteries. Many benefits to statins, but you've potentially struck a hornet's nest here!

JimF

bassets profile image
bassets in reply to frazeej

I have, unknowingly. Thank you.

bassets profile image
bassets

You're not kidding!

Lacontie profile image
Lacontie

I’ve taken statins for years with no side effects apart from early days aching muscles which is common but after being told about Q10 the muscle aches were gone in a few days!

I also have Afib and on Apixaban which doesn’t seem to have issues with statins . Everyone is different but statins are so commonly used and proven to keep cholesterol in check generally positive for most people .

bassets profile image
bassets in reply to Lacontie

Thank you, that's useful. I take Q10 and magnesium normally.

2learn profile image
2learn

Hi I had a small stroke and so GP wants me to take statins although my bad cholesterol is only 2.9, below the NHS recommended 4. GP says cos of stroke they would like it below 2.5. I haven't succumbed as yet as I have chronic arthritis and side effects of statins can be to cause joint and muscle pain. I have enough of that already.

bassets profile image
bassets

Can't blame you. Perhaps lifestyle changes might help?

SCCDL profile image
SCCDL

My doc put me on them because of my high c-Reactive protein level. I take a very small dose and my chloesterol levels are excellent.

bassets profile image
bassets

Thank you - good to know.

bassets profile image
bassets

Thank you to everyone who has replied to this post - I didn't expect so many!.I'm talking to my GP on Friday so I'll have to see what's what then.

pd63 profile image
pd63

Started statins Feb 18 after a stroke, atorvastatin 40 mg, cholesterol levels were normal when tested after stroke, but standard practice to prescribe after stroke levels have stayed normal.Only side effect is occasional nighttime cramps in legs so I'll carry on.

P.S. Made full recovery from stroke

bassets profile image
bassets

I've started them too with no side effects to speak of, but this might interest you. I've begun using a cream called Sweet Sleep by Sweet Bee Organics which has helped my legs as it has magnesium. The only problem is it's not cheap. Hope this helps a bit.

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