Removed by admin. People are giving their opinions on this site all day long, how do you prove authenticity?
I rest my case... : Removed by admin... - Atrial Fibrillati...
I rest my case...
Written by
TonyB1972
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60 Replies
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This used to be a free thinking country what happened? 😳. This censorship only goes to prove we are on a slippery slope to losing are freedoms. I don’t agree with what you have to say but I will fight to the death for your right to say it. My grandfather used to say.
I was impressed with the cardiologist’s view during the interview, having researched him it seems he has an excellent reputation and won many awards. Dr John Cambell interviewed him on the same subject very recently. Interestingly his links don’t seem to be taken down.
But listen to the language - no mention of the ‘v’ word - pharmaceutical intervention is used instead.
Two thoughts. 1. It seemed like you wanted us to click on this item without being upfront about its content. Known as clickbait in the social media biz. Especially as you indicated it's been taken down off YouTube. Felt like it was snuck in under the radar?
2nd thought - how relevant to this discussion forum?
That said, admin left the initial thread up so people could see it happened and maybe if they're interested then they can DM you. So you haven't been silenced. Admin have a difficult job to do. I run my own communites so appreciate their task.
I started a forum in 2002 and have had trouble with the 'Freedom of speech' brigade. Most members are respectful of each other and forum rules, but you get one or two who think they can say whatever they want and get upset when the moderators step in.
It's not censorship and it's not being silenced. People are free to go and post their stuff elsewhere if they want, but should respect the rules of each site.
900,000 views is not validation.
So far as I know, no one is allowed to give specific medical advice. But I have in fact seen lots given - this drug is awful, that drug has side effects, these tablets are marvellous… and so on. We shouldn’t do this in my view as each individual requires specific medical attention directed at their unique cardiac issue.
Steve
I have only seen opinions on what people take. Including yourself. And myself
Hi Belinda - as you say we don' always see eye to eye! However I try hard never to state an opinion as if it were a fact; and I try to provide scientific and rational support for anything I do say.
Steve
I find that the actual experiences people encounter and live through are much more important than scientific data. As I stated in another post I never expected to have any bad effects from the vaccines. But I am. So is my ex. We still are functioning though we both have pretty bad days. Sadly the Drs can't tell us anything other than THEY don't know enough. So we hope we get better. Who knows. Want I want, and look at all the replies here, is for people to discuss the vaccines and the virus. Everyone has their own beliefs. This is a virus we all have never encountered before. I hope we never do again. But we can never say never. We don't know. That's why I ask people to be opened minded. Not even the greatest scientists in the world know. If they did there wouldn't be a need for continuous research. I was not trying to make my opinions fact. No reason for anyone to think that. I Just want people to know they is much to be learned about what has been happening. There is more information coming out about the serious effects from these vaccines. At least here in the USA. Take care.
.
I do take your point and feel sad that you two are going through this. I can't agree concerning the scientific method however since everything we take as a prescribed medicine depends entirely on that for so much, from its discovery to working out its side effects. Individuals will always vary in how they react to a given medicine and, more so, perhaps, how they react to the same stimulus. Some will report feeling next to nothing while others will report feeling awful - even though both felt the same thing. Science can show the importance of psychology in this by substituting placebo controls and double blinding the active drug and so on. So much science has been done on this. There is no question, for example, that lipid lowering drugs like statins simply do not create the side effects people who take them claim. It took science to show this by carrying out double blind placebo controlled studies in which the placebo create more claimed side effects than the active drug.
Also, I think the doctors and scientists do know most of what matters. Of course an individual doctor might not - and the intellectual capabilities, or even whether they care to find out, between doctors also varies a great deal. But the scientists do know the range and the incidence of side effects from the vaccine and what kind of effects the vaccine (as well as the disease) create. For example, blood clots are entirely documented; cardiac myopathies and kidney effects, too, even the most unusual effects such as the vaccine causing such as arteritis are known and counted.
But, millions upon millions of doses have been given, and many to elderly folk who would have become ill without the vaccine being injected. There is clear evidence that so many "side effects" of the vaccine are nothing to do with the vaccine. Again - science shows this through studying using placebo vaccines and looking at non-vaccinated groups.
But all of this might well be water of a duck's back if you have suffered unduly - I can understand that. That doesn't change the fact that a rational (i.e. scientific) approach is the only way forward. Anecdote and hearsay simply aren't sufficient.
Steve
That isn't really medical advice. It's people recounting their own experiences with drugs or their experiece with ablation. It's only if people tell others what dose of say Bisoprolol they should be taking that it amounts to medical advice.
Yes and no. Not always. Amiodarone and PPI drugs are to that I have mentioned. Also, I would say, bisoprolol - prescribed so very frequently to such large numbers of people with great success.
Steve
And also probably the most badmouthed drug here! I would not want to take Amiodarone because of the photosensitivity . I spend a lot of time outside in my garden and it's very sunny here. I'd frankly sooner be dead than have that taken away.
I think you're unlikely to be given the drug for a long enough time to worry about missing your garden. I think these days it's more low dose and short term, but might be wrong.
I imagine yours to be a beautiful garden in an equally beautiful part of the world and, sitting in it in a reverie listening to, I don't know, Debussy, while sipping a glass of claret must be a delight...
Steve
I don't listen to music in the garden - other than birdsong and the hum of insects. As for claret I am limited to one sherry sized glass of wine with my main meal and we rarely drink Bordeaux except for sweet whites. More likely Cahors ( nearer) for red. My garden is beautiful but it requires at least 2 hours a day of work to keep it looking good . I work every day it doesn't rain from spring to autumn unless we are away or go out for lunch. Even in winter if it is sunny I wrap up and work outside. We live in the Limousin which is beautiful though not the most spectacular region of France. Sadly with climate change we no longer enjoy the bountiful rainfall this region was famed for. We chose it because it was always green and I wanted an English style garden - not a collection of dusty small leaved plants that you often see in French gardens in the hotter south. One of the draw backs used to be the humidity of the summer heat but this year that has been much less. At one point some communes in our department were being supplied by water tankers!
My friend is a Cahors wine fan. He loved the region when he visited often for its nature, birdwatching and also to experience the SNCF in its rural areas. He loves trains and especially French ones. He grew to love the wine, dry as it is, and introduced me to it many years ago as one that really needs a bit of age and a good airing before being drunk, and then at its best only with a good meal.
Steve
We only drink wine with our main meal. On another topic could you tell me how you experience your runs of ectopics as opposed to afib ie can you describe the difference in what you feel? I have had two episodes recently of what I think might be more prolonged ectopics. Normally my afib episodes start with a few . Then a bit of tachy. Then the afib kicks off -all within 1or2 minutes. I can tell I'm in afib just taking my pulse and I get a constricted feeling in my upper chest just below my throat. The afib lasts between 8-12 hours normally . But these two episodes were different. I had some tachy but when I took my pulse it did not feel the same as afib and no constriction. Plus after 5-10minutes it went away. It felt more unpleasant than afib but luckily did not last.
I haven't, to my knowledge, had AF since last June, for reasons I don't understand, and, since an attack with a really high rate of maybe 180bpm after my flutter ablation in 2019, I have only had it since with a relatively slow tachycardia of 85-135bpm. More often, I have that rate but with multiple ectopic beats in place of AF. I feel very much the same with each. In fact, I tend to think the cause of my symptoms is the high heart rate rather than any arrhythmia that is going on at the same time. The rate is always higher than it should be for what I am doing and, although hardly excessive, it fails to return to normal at all quickly, even at rest.
I haven't even had the high heart rate much at all of late, either, and was feeling quite relieved, but this last fortnight or so, it has returned. Walking with my wife back home from a friend's last week, I felt anxious and slightly out of breath and checked my pulse, which was 145 bpm, which is most unusual. Today, during a casual walk, it went to 125bpm. The feelings I get along with this are chest discomfort, a kind of tingling along my shoulder blade, a slight tightness in the throat near my Adam's Apple, a pressure under the left lower rib - there are sometimes more symptoms but those are the main ones. Much of this feels gastric in origin rather than cardiac and I am never sure what is happening as I do have a small hiatus hernia and suffer reflux. I used to blame that, as did my GP, but I am coming to think the heart might be causing the stomach issues not the other way round. I wish I knew. I do also have LBBB and a "wide QRS" which my GP blames for the various issues I have. It's all rather worrying for me, but that must be the life of many people on this forum.
Steve
Thank you. I don't know if these new episodes are my heart trying to go into afib and resisting or just something additional I will have to put up with! No point in worrying too much about it. It's not nearly as bothersome as the daily skeletal pain. Old age sucks.
It does. Dealing with joint pain and similar is tough. My wife has lower back trouble and now a poorly shoulder. There’s little that helps.
I wonder, instead of trying to go into AF, whether past events of AF and tachycardia haven’t “stretched” or altered the heart muscle a little and caused various foci for ectopic beats to form? It would be hard to show just what is causing them but there seems to be quite a bit of evidence that the heart reacts to any kind of distortion and stretching.
Steve
I am supposed to go and see my cardiologist again. My GP gave me a letter in July and it's well over a year since my last visit ( once you get on his books you are supposed to go for a check up at least every 2 years even if you have no symptoms ). I don't really fancy another echo - last time he could not complete it as the probe was hurting my ribs too much. I wasn't that bothered - I'm used to the rib pain - but he obviously was put off by my flinching! He muttered about doing a cardiac MRI the next time but I don't fancy that either as I don't like being injected with the contrast.
I find Tramadol works quite well for my pain but it messes with my guts so I try to limit it to once or twice a month. Also it makes me itch when it wears off. I thought about taking it for the echo but not sure whether it would affect the results.
You sound like you have a lot to cope with. My wife manages well and is spritely for her age (66) but her lower back limits her somewhat. She finds nothing helps much pain wise. She takes naproxen only occasionally. She hates anything that makes her feel "zombie-like" as so many of the drugs seems to do (amitriptyline was one, and Pregabalin - oh how she hated that).
Steve
Fluoroquinolones cause cartilage degeneration. Most docs only know about the Achilles tendon ruptures but they can cause problems in cartilage anywhere. They can even affect tiny tendons in the eyes and the tooth ligaments. The rib pain started after my second exposure to Cipro in 1999. I have had it ever since on and off. The worst thing about it is when it occurs in the sternum it mimics heart attack pain. If I took any notice of the "all chest pain should be investigated " mantra I' d be at A& E every week! My bad back started in 1990 . Again I am sure the doc had prescribed Cipro for sinusitis as the antibiotic was followed almost immediately by Achilles tendonitis. I remember this clearly as the physio treatment was agony - far worse than the actual tendonitis. The back pain has come and gone since over 30+ years but now is permanent. The doc says there is no treatment other than cortisone injections. But these are dodgy. They can precipitate worse damage if you have too many and sometimes don't work at all. My mother had several and only about half actually worked - for a few months then they wore off. You get used to pain. It becomes the new normal.
I've seen lots of people online complaining about Pregabalin. My doctor prescribed it for me once - I think for a sudden odd swelling I got down one side of my face. I looked at the info sheet and threw it away. The swelling went down by itself.
Most ailments do resolve on their own; indeed, a good many prescriptions are wasted (and even drugs considered effective) when all that has happened is a natural healing process.
You have suffered unduly and inadvertently at the hands of the medical profession, that is for sure.
Steve
Oh I consider myself pretty lucky really. A lot of floxies have been far worse affected than I have. It is getting better but it has been very slow - 7 years since the last exposure . The afib started immediately after that one but I somehow don't think that will get better!
I had no problems when on amiodorone for 3 months around the time of my second cardioversion - no problems with photosensitivity and we were working out in the garden in a hot, sunny summer here building a shed. the first few days I did slather sun tan oil on all the time but then for about 6 weeks forgot and didn't burn - I wouldn't advise this and really I should put the sun tan cream on all the time whether taking amiodorone or not - as my wife is sick of telling me. Not every one gets side effects, some people get one or two to a greater or lesser degree and some get the whole boat load to a higher degree. Fortunately we are all different so we just come here to ask advice on what others have found to help.
Your post in this thread shows the reason why the content was removed, but the post wasn't.
Admins won't remove something just because one or two people complain.
Maybe you should have this conversation with Admin?
I agree with you - yes, you are right. I could have worded it better but I was thinking specifically of comments say, regarding the toxicity of amiodarone, a drug I nearly had to take; or the toxicity of PPI drugs for stomach acid, which I have to take. That isn't "advice", I agree, but it is strong negative stuff that, in my experience, hasn't proven to be the case and, even if it had, I would need, in the end, to work with my doctor for a resolution.
Steve
Sitting around watching YouTube videos is hardly "thinking".
I don't know what this was about. But I do know that this website doesn't want us giving medical advice. So maybe that's why the link was removed?
The issue is relevant to this site because, although I didn't have any of the jabs, I did get a very mild Covid infection in late February this year. (I've had worse colds.)
I now have 'Long Covid'. This started in August and has really affected my quality of life. Tiredness, 'brain fog', aching muscles and, worst of all, a return of the palpitations I thought I'd got rid of two years ago.
I had an X-ray, blood tests and an ECG and my GP said I've had a mini stroke and need to take it easy for a while. I now have to take an aspirin every day and I carry a GTN spray with me.
I've been trying to get the numbers so that I can decide whether I was right in not having the jabs or would it have reduced my chances of getting Long Covid?
Long Covid seems to affect people who have had such things as Glandular Fever in the past (I've had it twice.) more than those who have not, so whether I've had the jab or not might be irrelevant.
I've found that the latest thinking is that the FIH enzyme (oxygen sensitive) in the muscle is what directs how much oxygen is taken up by the muscle and this is reduced in those with Long Covid. Endurance athletes have a lot of FIH.
Once the oxygen in the muscle is used up (aerobic) the muscle uses the sugars that are stored (anaerobic) and a by-product of this is a build up of Lactic Acid and it is this that causes the pain and the feeling of 'heaviness' in the muscle.
The heart is a muscle so that could explain why I have a dull ache in my chest.
I'm currently trying to discover how to increase my FIH - assuming that I can.
Please keep this discussion going but don't include anything that could be taken too personally and upset people.
We need forums like this so that we can become aware of issues and changes, new procedures etc.
Attack the problem not the person.❤️
George
I hear ya George. My sister also declined the jab...and not because of distrust of the medicine..she gets the annual flu shot, all he kids are vaccinated...but sadly she gets her advice from an American politician who shall not be named, and she almost died because of it. She spent 2 weeks in the icu, and was lucky to come out of it. They had to call the police as well, as she was screaming and thrashing about the hospital staff trying to get an O2 mask on her..or "a face diaper for sheeple" as she referred to it. It got ugly fast.
Anyway, we don't love her any less, didn't mock or berate her, because there is no point in that. We are not going to change anyones mind..especially if they consider the health community the "deep state" , so we just let it be and share all the things we have in common 🙂
Perhaps what's needed is a Health Unlocked forum specific to COVID sufferers. That might be a good place for people to share experiences. I'm sure there must be groups already for long COVID sufferers.
I mean honestly, just go somewhere else. I come here to discuss aFib. You are so tiring.
Elli86 in reply to
then why the hell are you commenting?
in reply to Elli86
Because I can't block you here and have to see your crap every day, that's why. Deal with it or STFU.
Elli86 in reply to
😆😆 your unbelievable you really are. How did you spend your Saturday night? I sent 400 childish eye rolling emojis because I can’t come up with a logical argument 👏👏👏 well done! Congratulations.
That's a thought, but I've always had good, thoughtful replies on this forum - perhaps because we are 'of a certain age' generally speaking and have mellowed enough to have got past the stage where we are all just looking to make our point (often political) - which is what I've seen on so many other forums that I usually don't join them.
By all means, go join Parler or Truth Social where there is no moderation - no one is stopping you. It's really as simple as that. No one comes here to see this nonsense, they come here to discuss aFib. Even worse, there's no block button here, so we all must put up with your crap clogging up the feeds in order to discuss what we come here to discuss.
Who do you think you are? To complain of being moderated by the admins in a forum where you are making posts that are clearly off topic. I mean, at least attempt to pretend to make it on topic, but you don't even do that.
Complain all day. BOO HOO HOO. 😭 No one cares.
How old are you Karen? Sounds like you may need parental supervision
in reply to Elli86
If you don't get why people shouldn't be annoying and spam an AFIB forum with off topic nonsense, I don't know what else to tell you. But as I said last time, I asked you to stop talking to me. Stop.
Elli86 in reply to
The beauty of free speech is it’s totally irrelevant what you want Karen. If you don’t want criticism then stop behaving like a spoilt little brat and commenting with your childish emojis on threads where no one is even slightly interested in your opinion.
It shows how childish you are that you would get annoyed by what someone writes on a forum. Grow up! Learn to control your emotions like an adult.
in reply to Elli86
What you are doing is not free speech, you are deliberately picking me out so that you can be abusive.
As I said, continue to post off topic bullshit on an AFIB forum when as an adult you could choose to go elsewhere. And then cry like a baby when it's moderated.
And choose to continue to abuse me. Wonder how many people you do that to in your life.
Elli86 in reply to
😆😆 seriously! Only a true Karen could behave like you do and then play the victim card! Your unbelievable. Really living up to those American stereotypes. Doing your country proud 💪
in reply to Elli86
Behave like I do, by telling people they shouldn't post off topic on an afib forum. Oh I'm sorry. You're right. That is so wrong of me.
Elli86 in reply to
No it’s the way you say it. In your entitled, patronising and childish manner. How about talking like an adult and discussing things with people you don’t agree with instead of swearing and using ridiculous eye rolling or middle finger emojis. Typical response of a stereotypical Karen. Behave like a total baby and try to shut down the opposition, instead of having a discussion and then cry when they have a go back and play the victim card. Grow up Karen your ridiculous.
And your not the admin so stop trying to control the website. Don’t like something? Don’t read it! Pretty simple really.
in reply to Elli86
THIS IS AN AFIB FORUM. There are plenty of sites about COVID - AND there are plenty of sites now without MODERATION. Who is being childish exactly? Surely not the people are posting here completely off topic and then whining like babies that they get moderated? Like I said, go abuse someone else.
Elli86 in reply to
you do realise that the continual use of a specific word, in this case “abuse” doesn’t make it any more true and the use of CAPITAL LETTERS doesn’t make me or anyone else listen to you anymore than they would otherwise.
in reply to Elli86
"Behave like a total baby and try to shut down the opposition, instead of having a discussion and then cry when they have a go back and play the victim card."
If you haven't seen the multitude of posts I made having a discussion, then you are deliberately choosing to ignore them. Or you're simply delusional.
Elli86 in reply to
Or I simply don’t want to and have zero interest in reading your drivel. I had enough of that last time. I’ve simply read a post and see that yet again your posting childish rubbish and thought I’d entertain myself by saying something.
in reply to Elli86
You thought you'd be abusive.
Elli86 in reply to
Thanks again for your expert advice Karen. If your going to keep playing the victim card you’ll need to add a few more words to your lexicon. Repeating the word abusive will not get you very far.
in reply to Elli86
Who are you talking to, there's no Karen here. You keep repeating it. Is she your imaginary friend?
Elli86 in reply to
😆 Karen is a derogatory term for an interfering, patronising, busy body of a woman who likes to interfere in situations that shouldn’t concern her. But you knew that anyway didn’t you.
doctors themselves give opinions it is why the advise is to get a second opinion, right?
If you repeat a lie often enough it becomes journalism… “safe and effective “ was always unproven and false.. according to ONS figures the indirect effects have led to more deaths and more morbidity than Covid deaths itself.
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