Just Been diagnosed with PAF. Advice please.

[Redporti]

I have just been diagnosed with PAF & already have HFpEF. I’m going to start taking Edoxaban blood thinner & Nebivolol beta blocker. Is there anyone on this combination? Do I need to be monitored at a anticoagulant clinic or not? Still processing it all.

[BobD Volunteer]

Edoxaban needs no monitoring. Nebivolol is a beta blocker to keep you heart rate down during events. Many here take it.

As a newbie I urge you to go to AF Association website and read till you drop as knowledge is power.

[Redporti in reply to BobD]

Thank you for the info. I will definitely take a look at AF Association. My cardiologist talked about needing to go to a anticoagulant clinic but as you say the Edoxaban doesn’t need any monitoring so will run that past him again.

[jeanjeannie50 in reply to BobD]

How do you find the AF Association website Bob? I've just searched and searched.

[CDreamer in reply to jeanjeannie50]

heartrhythmalliance.org/afa...

There used to be a link on the forum page Jean but now I can’t find that either.

[jeanjeannie50 in reply to CDreamer]

Thank you CD, yes the link certainly needs to be on the forum page where it can be easily found.

[baba in reply to jeanjeannie50]

Top of the page, Home, Posts, Members, About.

Click on "About" and the website is listed.

Agree it should be more visible.

[jeanjeannie50 in reply to baba]

Thank you. I've just found another route. Home, click on afa.org.uk, then Patients and then Atrial Fibrillation. Something simple, with just one click, needs to be on the forum page. I've found it now, but in a few weeks or months I won't remember where it was again.

[CDreamer in reply to jeanjeannie50]

And we are long term users - what hope Newbies

[jeanjeannie50 in reply to CDreamer]

Exactly and it's so important.

[TracyAdmin Partner]

Welcome to the Forum and I am sure all the Members will welcome you aboard. Please visit the A F Association website - you will find a wealth of helpful information, including online resources, videos, contact details for our patient services team and details of our virtual HRC2021 A F Association Patients Day - of which you are invited to learn all about AF heartrhythmalliance.org/afa...

[Redporti in reply to TracyAdmin]

Thank you for the warm welcome. I’ve had a look at the site & already learning more about my medication.

[Cigarboxblues]

You can google/bing dr Sanjay Gupta who is a recognised authority on most of our particular medical issues. And with many tips and explanations PAF will become as clear as it could be.You, like all of us here will take comfort from asking anything and having like minded pals to calmly signpost you or share their experiences.

It’s very disorienting to start with but we all do end up living with it rather than ‘being’ us.

Welcome.

[Redporti in reply to Cigarboxblues]

Thank you. I will have a read. It’s so good to have all your support on this group.

[momist]

Just to clarify, that's Dr Sanjay Gupta of York Cardiology. There are several others, in other fields.