Not too sure about the accuracy of th... - Atrial Fibrillati...

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Not too sure about the accuracy of this.The Cure rate is unheard of at least to me. Your thoughts please

Daddyrabbit profile image
18 Replies

bing.com/videos/search?view...

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Daddyrabbit profile image
Daddyrabbit
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BobD profile image
BobDVolunteer

We know that life style changes can drastically reduce AF burden. For eaxmple if you are over wieght or obese dropping to a BMI of 25 or better may reduce the burden to the point that ablation is not needed. Would I say it is a cure? Not to my mind. As I always say, for every obese AF patient there will be another racing snake with exemplary life style. Explain that mr american doctor.

Yes we all need to make good choices on diet and life style, avoid excess exercise whilst maintaining fitness. Abstain from smoking and alcohol or at least only take it occasionally and in great moderation, same with stress. caffeine.etc. you name it. Will we live longer? Not sure but it might feel like it.

Desanthony profile image
Desanthony in reply toBobD

I had a friend who sadly passed away last year. She had AF from about early fifties. She was not an over exerciser but very fit and healthy and a phenomenal swimmer definitely below 25 BMI didn't drink alcohol, tea or coffee just water and practically vegetarian. She never stayed out of Paraoxysmal AF no odds what procedure/operations she had for longer than a couple of months if that. Seems it's just the way of this disease. Those of us who are lucky and can make a change in lifestyle that helps us live with this disease are very lucky indeed.

Daddyrabbit profile image
Daddyrabbit in reply toDesanthony

You are correct, I have friends and family members that live a perfectly healthy lifestyle. But they to or suffering with this disease. In my opinion you cannot depend on the doctors of today to focus more on finding a cure. Instead They rather write prescriptions are do expensive procedures that makes very little difference if any.It’s all about money NOT A CURE!!

BobD profile image
BobDVolunteer in reply toDaddyrabbit

Fortunately here in UK doctors are paid a salary not paid by how many procedures they do so there is little incentive for them to push for more work. If a UK EP offers a procedure it is because he thinks it will benefit you not him.

Lilypocket profile image
Lilypocket in reply toDesanthony

That's sad - she was too young. Is it proved AF was directly responsible or did she have other pathologies?Take care

Desanthony profile image
Desanthony in reply toLilypocket

She died of a bleed on the brain which of course could have been aggravated by years on anticoagulants. Her Dad died young from some form of heart disease as well as did his parents only outliving him by a few years. So it is likely genetic.

in reply toBobD

Unless I’m reading this wrong, I thought this video referred to a combined procedure involving a catheter and some other form of treatment. Like most of these promotional videos, it didn’t go into too much information, just sufficient to whet someone’s appetite so would need to know more before commenting. If it’s been around for 4/5 years as stated, the boffins here would be aware of it. Maybe it’s something the AFA could enquire about and let us know the outcome.

Interesting nonetheless, thank you for sharing......

in reply to

Found a bit more information, refers to something called Cryo Cath. Has a familiar ring!!

ejgh.org/new-procedure-give...

Daddyrabbit profile image
Daddyrabbit in reply to

Your assessment is correct, my reason for posting it is that he lied about the success rate and being 70 to 85%. The link you posted with further information proves that it actually being only 50%.

Daddyrabbit profile image
Daddyrabbit in reply toBobD

That was my point in posting this. When this so-called doctor said they were a 70 to 85% success rate I thought to myself what a liar he is. Many people in this group can attest to that.

I believe less invasive variations of the Wolf mini maze out of Cincinnati 2003 have an impressive success rate.

Below is a link to the early procedure.

ncbi.nlm.nih.gov/pmc/articl...

JohnMiosh talks here on the forum of his positive experience of the Mini Maze

Bambi65 profile image
Bambi65

His success rate of 75-80% over just 4 years is not that impressive at all. Dr. Wolf, performs the Wolf Mini Maze with 94% success rate over 10+ years, and you are off anti-coagulant for good in under 3 months.

johnMiosh profile image
johnMiosh

As badger says, this is the procedure I had nearly four years ago. It was part of a clinical trial, which should have reported last year, but was delayed due to research efforts being channeled towards Covid. The trial pitched this procedure against the standard cryoablation topped up with an rf ablation six months later. I understand that the results are very positive, with minimal AF from the minimaze group and 40% of the catheter group experiencing the return of AF. I have been promised a copy of the paper when it is finalised, and will report back here.

I have had no AF since a week after the maze procedure. I also made lifestyle changes, such as cutting out alcohol and caffeine and reducing my compulsive exercise burden. Although less exercise means my BMI has risen to 25.5m so there are swings and roundabouts.

CDreamer profile image
CDreamer in reply tojohnMiosh

Sounds like an excellent result for you.

My understanding was that this procedure was very effective for certain patients who met a particular criteria.

johnMiosh profile image
johnMiosh

The criteria were:Persistant or long standing persistant AF

Resistant to at least one drug therapy

No previous ablations

Atria >3 and <4cm

The minimaze is debilitating compared to cryoablation and requires a lot more recovery, but in my case I am happy that I had it. I still don't regard it as a 'cure', but it has given me a life back. The trial's own definition of success is three years AF-free, which I have managed.

johnMiosh profile image
johnMiosh in reply tojohnMiosh

A detailed view of my recovery after the minimaze

healthunlocked.com/afassoci...

Thanks very much for this thread. I think it’s along the lines of what my EP is proposing for me. Two surgeons will work on my chest and he will go in the other way. He seems to be suggesting it’s fairly routine. I’m in the U.K. If we all agree, I’m not sure how long the wait will be, but I’ll let you know how I get on

I’m encouraged by the last post - thank you!

MarkS profile image
MarkS

That video has disappeared, but if the procedure is a combined cryo and RF cath then that's been around for years. Prof Schilling used both on me over 10 years ago in the same procedure and it was successful.

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