Shaking inside.....: Hi, does anybody... - Atrial Fibrillati...

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Shaking inside.....

heartbreaker profile image
27 Replies

Hi, does anybody on here suffer with what I can say is inner shaking? It's driving me mad! Any advice please???.....

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heartbreaker profile image
heartbreaker
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27 Replies
CDreamer profile image
CDreamer

Oooh... that old Jitterbug sensation. Deep breaths to promote Rest & Digest mode, stay hydrated and keep calm. I get it when I have pushed myself too hard so I tend to view it as my body talking and saying time to switch off and rest.

heartbreaker profile image
heartbreaker in reply toCDreamer

Thank you CDreamer x

Samsung67 profile image
Samsung67 in reply toCDreamer

Hi I’m new to this forum , recently had ablation only been three weeks . I’m glad to hear your comments about shaking because I’ve been feeling the same thing . I feeling very weak too . Still can’t do much as i easily get too tired .

CDreamer profile image
CDreamer in reply toSamsung67

It often takes much longer to recover from Ablation than medics often tell people. If you read the AFA - recovering from ablation info - written by patients- it will give you a much more realistic time frame. Go slow & steady. You will often need more rest than you thought you would, think months rather than weeks.

heartrhythmalliance.org/res...

Oldiemoldy profile image
Oldiemoldy in reply toCDreamer

So true! This group/board saved my sanity in the weeks after my ablation...

Samsung67 profile image
Samsung67 in reply toCDreamer

Thank you for your advise , it really help me understand more about ablation . They don’t tell you much about it when I was in the hospital. I learn more here and thank you go for all your advise .

Inkyblb profile image
Inkyblb in reply toSamsung67

I had ablation about 8 weeks ago. I too had that shaky feeling for a few weeks. Also was sooooo fatigued and short of breath until about 10 days ago. I would say I am about 75-80% now. Those info sheets the dr. gives about going back to work in 4-5 days... UGH - I could never have done that. It's hard to rest, especially when you think you should be further along, but so important. I got so tired of trying to explain to people how I was feeling!!

Kaz747 profile image
Kaz747

Yes, I know exactly what you mean. Like CD says, I try to focus my breathing and meditate to see if I can get the feeling to disappear.

heartbreaker profile image
heartbreaker in reply toKaz747

Thank you Kaz x

meadfoot profile image
meadfoot

Yes I have it, sometimes out of the blue and other times if I have overdone it, it feels quite weird and unnerving, resting takes the edge off eventually,

Ppiman profile image
Ppiman

Do you mean "heart shakes" or just a general "buzzing" type feeling? I have both and associate them both with the fatigue and stress I suffer owing to my insomnia (aka rubbish sleep!).

Steve

Flimmeri profile image
Flimmeri in reply toPpiman

Steve you need to take cannabis oil and say goodbye to insomnia. You will sleep like a baby, lol. I have suffered serious insomnia for years. Only got a decent sleep with the sleeping pill. My doctor's approved cannabis and even said it's most likely better than the stuff I described.

Ppiman profile image
Ppiman in reply toFlimmeri

I’ve thought about it but “mind” drugs seem to affect me badly so I’m reluctant to try. I was once given citalopram to help calm things but it did the very reverse and made me ill.

Steve

Desanthony profile image
Desanthony in reply toPpiman

Me two Ppiman. though I did take cbd oil for pain a few years ago with the help of the pharmacist and tried varying strengths up to really high without it being cannabis. Didn't do anything for either my chronic pain or lack of sleep. It seems it helps some people which I am glad of just that I am not one of them. I did take cannabis in cookie form by accident whilst staying with my wayward son sometime ago and the effects on me were interesting to horrendous and I had to be blue lighted to hospital and "cleaned up" we laugh about it now but really not funny

Ppiman profile image
Ppiman in reply toDesanthony

No - not funny at all. The trouble with drugs that enter the brain is that they can flip the brain into permanent overdrive - and that fear stops me taking anything. I just wish there were a better answer to insomnia though. I keep reading how common it is, but, you know, I'm not sure that it is.

Steve

Desanthony profile image
Desanthony in reply toPpiman

No insomnia really sucks! People also tend to think of it as a you know the odd night or two of little sleep but its so much worse than that. Never found anything that really works for me and there is always the thought that I will become addictive all sorts of antidepressants were suggested and a few tried but felt like rubbish for most of the day afterwards and I really would rather feel awake during the day. My (other) son keeps on telling me to snooze at lunchtimes but its just not my style. I do try but generally get caught up in doing something I want to finish or get done and don't even take an hours rest, reading or something which I also think might help.

Ppiman profile image
Ppiman in reply toDesanthony

Spot on. I so wish that I could snooze or take a nap in the daytime but for whatever reason, I struggle to - and, if I ever manage one, I waken feeling terrible, a feeling that hangs on for ages.

It’s a genuine curse.

Steve

researchx profile image
researchx in reply toPpiman

insomnia is unhealthy. its an adrenaline overdrive-and I have it bad.I dont think i have afib,just svt of some kind-but I sometimes get the internal shake-like a motor in my chest.I havent had any bad svt attacks for a long time but still feel overdrive a lot..My cardiologist wants to see me sleep well so she trys to keep my metoprolol up,so if I need to increase, she is all for it.I also have ambien again . I feel so relieved with it but you must be careful as it is a hypnotic .. loranzapam is what a different cardiologist let me have once and he said he thinks there is nothing wrong with it. to get some rest.---and as ER dr once said he doesnt agree with drs who dont prescribe benzos for me if I needed it...luckily I have meds now and I am thankful to sleep.other than that, food and wine can sometimes make me doze, but wine can be bad for afib..other than that,if you have muscle or arthritis pain, baclofen is good for naps and is mild feeling. And please be careful with cbd and pot if you try-I can tell you that I have bad reactions(1st a feeling of relaxation-then all hell breaks loose after a bit)good luck and let me know if you get better sleep...p.s.magnesium works for some people like CALM drink. sleepy time tea--damiana and other herbs,...worth a try

Ppiman profile image
Ppiman in reply toresearchx

Thanks for all that useful information. I'm very grateful to you for taking the time to tell of your experiences. UK doctors seem especially against benzodiazepine drugs and will even only give the much safer "Z" drugs at a push. I wouldn't try cannabis without its being prescribed as I fear its other effects, some of which, I read, can be very individual, long term and difficult to deal with.

Thanks again.

Steve

jeanjeannie50 profile image
jeanjeannie50 in reply toPpiman

Sunshine coming through the window making me warm and watching a covid report - I'm gone!

CDreamer profile image
CDreamer in reply toPpiman

Insomnia - some years ago I consulted a Sleep Psychologist whom I first met at the hospital CPAP clinic. She has since gone on to study Sleep in a big way and is now one of the UK’s leading experts. She helped me enormously and I now can normally get 6-7 hours good quality sleep, although last night was only 5.

Anyway she is speaking at a locally organised event on Zoom - well worth a listen - this is the link to book.

eventbrite.co.uk/e/the-8-ho...

Ppiman profile image
Ppiman in reply toCDreamer

Thanks so much for that link. I look forward to reading it. I, too, was treated by a "leading" expert on sleep but all he could say was that I needed to get my anxious nature under control before he could help me. He recommended me to see his colleague, a clinical psychologist and, he told me, another leading national expert. Guess what (no word of a lie...)? He told me that I needed to get my sleep problems sorted out before he could help me. Eventually I was sent to another "leading national expert" (the Leicester area seems to have lots of these!), this time it was a CBT therapist who eventually did little more than give me photocopies to read and tell me that she couldn't really help my insomnia as that wasn't her area of expertise.

My GP is far better than the three of them, putting these "experts" to shame. I've concluded that the understanding and treatment of sleep disorders is still in its infancy and that we know truly little and can do even less to help. We seem still to be in the dark but are unwilling to admit it.

Steve

doodle68 profile image
doodle68

I have all sorts of weird sensations since developing P-AF , some of them quite scary.

I do my best not to focus on them , like an itch that can't be scratched they seem to get worse if I do so instead I try to divert my attention to something else and employ 'calming' techniques including slow deep breathing .

TamlaMotown profile image
TamlaMotown

I do get that feeling so I'm pleased others do too because I thought it was just me & my family would just look at me strangely when I mentioned it. It's a weird sensation & used to cause me huge anxiety but it's gone on for so long now that I've grown used to it & just wait for it to pass.

Like Doodle says you get such weird & not so wonderful feelings when you have AF

Kn177yn0ra profile image
Kn177yn0ra

Yes, I get this, mostly in the morning. It’s a buzz all over and is very uncomfortable. It feels like blood is crashing through my veins!

jeanjeannie50 profile image
jeanjeannie50

I used to have that feeling, but not since my last ablation. It felt like an old motor engine idling and spluttering. Had the trembling/buzzing heart feeling too but that was more rare.

Jean

EBayne profile image
EBayne

I just found out that Vitamin B6 can be toxic to some ppl and build up in your system and lead to tremors. Usually pyridoxine hydrochloride form. I checked out all my supplements and am taking WAY too much. 200 mg or more can really mess with you. I got tested and have way too much in my system. Stopped taking it yesterday and hoping that this will be the answer.

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