In AF now and like support please

[Lovetheoutdoors]

just used Kardia and it showed Im in AF Pulse 131

As this is the first time since diagnosis and leaving hospital when should I be concerned.

[MarinaT]

We are not medically trained and can only speak from experience. I have been in continual af at around 158 bpm for 5 days. I just keep taking my pip (pill in pocket) and try to keep calm. I have never gone to a&e with af. If you have any chest pain, you must contact 111. What meds are you on? Try to relax. Hope it reverts to nsr soon.

[Lovetheoutdoors in reply to MarinaT]

Yes after about13 hours it has now eased thank goodness. I’m on apixaban blood thinner. I had awful heart burn with it which only added to the discomfort. New to this guess it’s something I will need to adjust to. Trust you stay well most of the time x

[Lovetheoutdoors in reply to MarinaT]

Out of interest what pill do you take

[MarinaT in reply to Lovetheoutdoors]

Hi. I take Flecainide and Bisoprolol as and when I need them. I also take Apixaban.

[jeanjeannie50 in reply to MarinaT]

Marina it's not good for you to have a pulse that high, for so long. When I was once admitted to hospital with a rate of 160 which I'd had for around 8 hours, a nurse asked me why on earth I hadn't gone in earlier. However, I can understand your reluctance with the present situation.

Is your rate more or less a steady one at 158, or up and down?

How are you feeling?

Jean

[MarinaT in reply to jeanjeannie50]

Hi Jean,

It has been more or less around the 158 - highest was 184. I have reverted to nsr in the last hour following further pills. I feel a lot better and can actually do something without losing my breath! Thank you for your concern. As you say, I am very reluctant to go to A&E in the current crisis. I wilk be speaking to the arrhythmia nurse at the JR tomorrow. Take care.

Marina.

[jeanjeannie50 in reply to MarinaT]

Good to hear. x

[Lovetheoutdoors in reply to MarinaT]

Trust you're ok now. I'm in MK hospital. Came in after talk with GP. Heart was in AF. Being monitored as they are trying out different drugs. Feeling fragile

[MarinaT in reply to Lovetheoutdoors]

Hi. I am feeling better today, thank you. I do hope you are OK too. I live near to MK, so if you need anything, let me know. Try to relax and rest. Take care.

[Lovetheoutdoors in reply to MarinaT]

That's very kind of you. A neighbour is bringing some bits over to reception as not allowed visitors. Just be glad when meds sortefd. Can t take beta blockers so they are trying something else. X

[Lovetheoutdoors in reply to MarinaT]

Just re-read your post. You said about speaking to your arrhythmia nurse. How did you get on? And that's great that you have a dedicated person to speak to. How do you get one?!

[MarinaT in reply to Lovetheoutdoors]

Hi. When I first went to the JR following diagnosis, they gave me a leaflet with the names of the nurses and their contact details. They are available Mon to Fri. If they are unable to answer the phone, I send an email with my Kardia readings and they show them to the consultant. I then get a call back from the nurse and/ or the consultant. He can then change my medication as required.

They want to see me as soon as it can be arranged as I may need a pacemaker. When I need to take a betablocker with my Flecanaide, I end up with a hr of about 35. Hope you are feeling better. Are you still in MK?