A and E

[wilsond]

Trip to A n E Godaughter in SVT again last night and a.m. Her Granny looking after poorly baby sister......hope they get her sorted soon. She's only 9.. And on flecanaide even though unlicensed for under 12s..made up into syrup according to her weight..and she has just had a growth spurt...fingers crossed

[JaneFinn]

Oh I’m so sorry to hear this 😢

So horrid at such a young age Sending love, positive vibes and prayers she’s better soon - and that you keep well too xxx

[wilsond in reply to JaneFinn]

Thank you she is back in nsr and demanding cake...!

[JaneFinn in reply to wilsond]

Oh that’s so good to hear!

(Love the resilience of youth 😊)

Thanks so much for letting us know xxx

[Padayn01]

So so sorry to hear this please keep us updated

[wilsond in reply to Padayn01]

She has been cardioverted again and has gone back into nsr. She was only 3 when she was diagnosed! Hate seeing her suffer...thank you

[jeanjeannie50]

This is heartbreaking to hear. I just wonder why more young people are suffering from this type of heart problem now. My AF nurse told me last week that they are dealing with a lot more young people in their clinic now. Oh to know why this is!!

How is she today?

Jean

[wilsond in reply to jeanjeannie50]

I wonder the same too? Our overprocessed food? Depleted soil? Someone could make a lot of money and fame if they found a cause!! Thanks Jean,hope you get sorted soon too xxx

[Auriculaire in reply to jeanjeannie50]

Exposure to too much EMF?

[jeanjeannie50 in reply to Auriculaire]

Yes, I've just been reading about that!

[meadfoot]

Oh bless her, how horrid for her and all the family. I so hope things ease very soon for her and there is some way forward to improve her young life and that in time some clever medics find a solution to such problems. 💖

[wilsond in reply to meadfoot]

The plan is for ablation when shes older. I hope you are in better place than recently too.,,? Xxx

[meadfoot in reply to wilsond]

Here's hoping for short term improvement and that long term the ablation sorts things out once and for all for her. Best wishes and hugs. Ps. I am manageable currently thank you for asking. Please don't let this upset knock you off course heart wise if you possible can. X

[wilsond in reply to meadfoot]

Thank you did have a little cry earlier poor little poppet...but have stayed steady heartwise. She's home now and settled. Thank you and glad you are a little better xxx

[Turquoise19 in reply to wilsond]

Yes what a poppet, really hope she will be out playing with all her pals v v soon.

[BobD Volunteer]

Sorry to read that. Methinks there must be some genetics at work. My eldest has never been diagnosed with AF but has had a few funny turns and my father had similar later in life that was never diagnosed. It would be so nice for somebody to find an answer as too many younger people are suffering arrhythmias these days.

[wilsond in reply to BobD]

I think so too, my mum had AF, Gran had it......

[SuzieA in reply to BobD]

My son was diagnosed and has had 2 ablations ( the machine broke during the first one) and thankfully he has been clear for 5 years. Fingers crossed it stays that way. Hope the little girl is free if it all soon x

[wilsond]

She can come home later if all stays stable. They did another cardioversion,shes very tired and tearful, at missing first day back bless her! She was diagnosed at 3, poor little thing. She is under Birmingham Chldrens hospital,seem very good. When she is 12 or so,ablation planned. Thank you all xx

[Padayn01 in reply to wilsond]

i hope she be ok, its frighting for an adult to suffer with irregular heartbeats let alone a young child, my thoughts and prayers go out to her i really hope she be ok

[wilsond in reply to Padayn01]

Thank you. She's home now xxx

[JaneFinn in reply to wilsond]

Oh bless her, what horrid timing for her at the beginning of the school year 😕

Hope she doesn’t have to miss too much xxx

[wilsond in reply to JaneFinn]

Thank you hopefully back on Monday all being well. X

[Padayn01 in reply to wilsond]

Take her time been through a lot

[CDreamer]

Oh dear! Such a young age, poor darling. Tell her chocolate (70% cocoa butter only) always makes it better I find!

[wilsond in reply to CDreamer]

Thank you..bit of a day..mummy teaches quite far away..granny..my friend had a little one pooing and being sick...my God daughter in Svt...!! All hands on deck...drama over for now..I'll tell her about the choc..sure she will be amenable...thanks CD xx

[Jalia]

A very worrying time for you all. Such a juggling act these days with children , school and work never mind illnesses such as these cropping up.

Pleased that God daughter is on the mend now. x

[wilsond]

Thank you Jalia xx

[Hilly22]

Oh no, the poor little darling. I do hope all is well now, and for her little sister too. Like you say, it never just rains ... xx

[wilsond in reply to Hilly22]

It was a bit like a field hospital down there....plenty of washing now! All calm on the Western front today it seems. Thanks Hilly

[Gillybean123]

What a shame. That must be hard. She won't understand how she feels. And flecanide as well. Hope,she gets sorted real soon.Give her lots of hugs. X

[wilsond in reply to Gillybean123]

No she hates it..understandably. But outside svt episodes ,she leads a normal life,Plays netball,footie etc. Xc

[Ianp66]

How awful at such a young age, and we dare complain much older, puts it in perspective. Hope she's well soon and it's doesn't stress you out too much x

[wilsond in reply to Ianp66]

I know,it just seems so unjust. It does affect us all a bit ..her heart goes up over 250.pmin,scary fir adults let alone someone who just turned 9! Thank you x

[Nan1]

I was so saddened to read your post Wilsond and I’m glad to know she is feeling better now. My Grandson aged 14 has recently had an ablation for the same problem. He has had no problem since so fingers crossed it has been successful.

[wilsond in reply to Nan1]

Oh that's reassuring thank you x best wishes to him too xx

[sweetiepye]

I am so sorry to hear of a child going through this and an ablation down the road. On the bright side, as she is young perhaps there will be a cure for her. Tell her there are people all around the world who are wishing her well . Pam

[wilsond in reply to sweetiepye]

I will show her this later thank you ,she will like that xx

[sweetiepye in reply to sweetiepye]

Hello Sweet Girl, There, I've given you a user name. I hope you have a great school

[sweetiepye in reply to sweetiepye]

I was typing year when my cat Charlie sat on the keyboard . She tries to catch the cursor . Her name is Charlotte, Charlie for short. Be well, Pam

[wilsond in reply to sweetiepye]

Haha..cats....! Mine often changes tv channels for me! Ozzy.

Sweet girl ..love it! Just told her xx

[LMor]

I’m so sorry she is going through this. It’s so frightening for everyone. My Svt too started at such a young age except I told no one...I would collapse when one came on and my heart would race at 200 plus beats a minute. It would last anything from 20 minutes to an hour and I still did not tell a sole. (No idea why). I finally had my ablation in February of this year after being rushed in twice last year with my svt’s now lasting 3+ hours and given adenosine. I don’t know if this helps, but after the ablation my surgeons words were “you have a birth defect and everything went well”. So maybe the little one was born with it and will at some point need an ablation. Hopefully that will correct the hearts ability to go into Svt. I wish you all well and I hope she gets better really soon x

[wilsond in reply to LMor]

Thank you fir sharing your story,she was diagnosed at age 3 so pretty sure must be genetic. Nice to read positive outcome! Xx

[Jennyquilt0]

Sorry to hear this n one so young to have to go through this stuff . Hope she stays in nsr and your baby gets well too. Thinking of you with all good wshes

[wilsond in reply to Jennyquilt0]

Things have settled down apparently for both thank you xxx

[MydogBrandy]

Ooh bless her, let’s hope she is not too young for an ablation, I wouldn’t know. All I can say is after 18 years of svt episodes , 9 trips to A n E in 2 months last year , then ablation in January this year, now 9 months on I haven’t had an episode and feel wonderful. Give her our love x

[wilsond in reply to MydogBrandy]

I will tell her your good result thank you xx

[Becksagogo]

Oh bless you. What a day for you too. One good thing is that your God Daughter is young enough to recover quickly and after a couple of days at school it will be just a distant memory. Take care.

[wilsond in reply to Becksagogo]

She gets several episodes a year unfortunately but always bounces back..bless her . Thank you xx

[wilsond]

Update...all good. Changing flecanide syrup dose, school Monday,

Very impressed with all your replies!

Thank you all for your kind words and support xx