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Vagally Mediated PAF - a Patient's view

secondtry profile image
13 Replies

I recently came across this article again, although now 19 years old I think it might help some enquiries here afibbers.org/victor2.html I have found it very useful.

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secondtry profile image
secondtry
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13 Replies
BobD profile image
BobDVolunteer

Interesting but as you say 19 years old and in AF terms that is a lifetime. A lot has changed since then. but much still applies.

Ppiman profile image
Ppiman

That was very interesting, thank you. It seems to me to be still relevant and it's surprising, apart from ablation and maybe some investigative improvements, how little has changed in terms of treatment. I only wish that my persistent AFl was amenable to tablets.

Ijacp profile image
Ijacp

Thanks for posting. What an excellent article. Especially for me. I’m a 51 male and have had VMAF for approx 14 years now. Was getting it on average once a month at beginning with episodes gradually increasing in duration over the years from a few hours to 36 hours at longest. Then this year, 2019 they became more frequent. Once a week then more. No obvious reason why. This last week it’s been most nights. Saw cardiologist at Freeman for first time about 10 years ago, got flecainide PIP which never used once, just rode each episode out. She recommended daily aspirin which I took until a few years ago when NICE guidelines changed and my GP (who also has AF) recommended I stop aspirin. Went back to GP a couple of weeks ago and he re-prescribed flecainide which I will get around to taking for first time soon but under supervision at A&E for first time hence I’ve not yet been there. Now waiting for an EP appointment at Freeman as I now want to pursue the CA option. So hello everyone, just joined this group and that’s my story and that article appears to also be my story! I had already done a lot of my own research, I take magnesium, potassium and fish oil supplements. The big takeaway from the article for me is the difference in VMAF to other AF and the fact that it might (hopefully) not progress to permanent. I’ve also now discovered Dr Gupta. Appears to me that not much has changed since the article was written. It’s very insightful. Thanks for reading and good luck to everyone.

secondtry profile image
secondtry in reply toIjacp

So pleased you found it useful. I would look at taking CoQ10 supplement as well.

Ijacp profile image
Ijacp in reply tosecondtry

Thanks secondtry - I just ordered some Wenxin Keli but CoQ10 is also on the list

secondtry profile image
secondtry in reply toIjacp

WK that's a new one to me, I haven't heard it mentioned before will put it on my research list and mention it to my Naturopath who is part chinese trained.

Ijacp profile image
Ijacp in reply tosecondtry

I just picked it up from internet and it sounded promising - would be interested to hear what your Naturopath thinks and I’ll post some feedback once I’ve tried it.

secondtry profile image
secondtry in reply toIjacp

Thanks!

Westsidestory profile image
Westsidestory

Very good article and oh so true , my symptoms , spot on ! Hope all gets sorted , having been plagued for forty , having ablation on Monday ! 🤞

secondtry profile image
secondtry in reply toWestsidestory

Good luck!

Westsidestory profile image
Westsidestory in reply tosecondtry

Thankyou will let everyone know how I got on with the ablation , 🤞

Faraday954 profile image
Faraday954

This describes me almost perfectly! I was diagnosed at 40, had episodes lasting 45 minutes every 3-4 months, then once a month until I started metoprolol a year ago. Every single episode happened when I was lying down to fall asleep. Makes it hard to go to bed, even though things have improved since starting beta blockers!

I have noticed I tend to get skipped beats when I bend down and drink cold water, but I thought I was imagining things. Nice to know I’m not the only one!

secondtry profile image
secondtry

Absolutely you are not the only one. It is amazing how relevant the Vagus Nerve is and how most medics (not trained to advise) don't even mention it.

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