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Atrial Fibrillation Support

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New here but an old hand

Gillyflower1965 profile image
24 Replies

Hello , Kirsten here, I'm a graduate of papworth after having an ablation Pvi several years ago, I'm just beginning to be plagued with ectopic beats,last thing at night and in the morning before I get up which is leaving me with a lack of sleep and breathless .

I know it won't kill me but it was a long road to get to abalation last time and it would be good to have some companions on this bit of my journey . I am referred to see the cardio so again so we will take it from there ,

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Gillyflower1965 profile image
Gillyflower1965
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24 Replies
Barry24 profile image
Barry24

Hi Kirsten,

I have ectopics, as many people do post ablation. Have you tried the decaf route or watch the video on this forum by Dr Gupta about breathing. These two things may help.

Best Wishes

Barry

Gillyflower1965 profile image
Gillyflower1965 in reply toBarry24

I don't do coffee coke or anything with caffeine in , I do use the breathing it's helped x

Barry24 profile image
Barry24 in reply toGillyflower1965

What about magnesium, l have been on it for about 3 months now, help a bit with the ectopics, good for the heart and helped with my sleep.

Gillyflower1965 profile image
Gillyflower1965 in reply toBarry24

I'll give it a go what do you take

Barry24 profile image
Barry24 in reply toGillyflower1965

I take 150mg a day. The RDA is around 300mg according to the NHS website.

I tend to eat a lot of veg which also contains magnesium.

Luludean profile image
Luludean

Hope you see someone who inspires confidence.

Gillyflower1965 profile image
Gillyflower1965 in reply toLuludean

So do I Xx

Luludean profile image
Luludean

Who do you see there ?

Do you live near Cambridge, I was seeing if an AF group could meet here.

Gillyflower1965 profile image
Gillyflower1965 in reply toLuludean

Not any more , I'm now in Durham

Diamonddaisy profile image
Diamonddaisy in reply toGillyflower1965

Hi from. Another newbie. I live in Durham too. 1st afib I August so new at all of this, my appointment to see cardiologist is in March after 4days in uhnd.

Gillyflower1965 profile image
Gillyflower1965 in reply toDiamonddaisy

daisy , you are not aloneifyou need any thing just shout up , I'm Kirsten elder on Facebook if you want to add me . I had a fib ten years ago ,had lots of different tablets, and a crappy time before I had my ablation, I still take tablets and just lately a lot of ectopics. I think these are down to having a very stressful year at work last year, it's my body going slow down a bit pet, so for a while that's what I will do send much love x

Gillyflower1965 profile image
Gillyflower1965 in reply toDiamonddaisy

How are you doing ?

BobD profile image
BobDVolunteer

Hi Honey. You found us again.! I know I don't need to say anything to you other than peace and love. Call me if you need to chat.

BobXXXX

Gillyflower1965 profile image
Gillyflower1965 in reply toBobD

Hi my love , another week of so I'm going to watch all Sanjay guptas videos knit lots and try not to be afraid , it is just lovely to feel "not alone" Although I know I never am my darling xx

BobD profile image
BobDVolunteer in reply toGillyflower1965

You can knit me a willy warmer any time. (probably get that deleted by admin LOL )

Gillyflower1965 profile image
Gillyflower1965 in reply toBobD

You always get me into trouble

Luludean profile image
Luludean

Wow this is jollier than the usual messages!!!!!!!!L

Now not too much excitement!

BobD profile image
BobDVolunteer in reply toLuludean

We go back a long way!

Gillyflower1965 profile image
Gillyflower1965 in reply toBobD

A very very very long way Bob is my twin, I'm 52 and he isn't we are ablation undies we have been through a lot together .....undies should have said buddies but it made me laugh so I left it .. Seemed appropriate x

BobD profile image
BobDVolunteer in reply toGillyflower1965

Ablation undies it is for every now. And yes quite appropriate with your mind. (and mine)

Spearof66 profile image
Spearof66

Hi Kristen

Watch the sugary snacks,alcohol and as Barry said no caffeine

All the best

Matt

robert7 profile image
robert7 in reply toSpearof66

my cardiac nurse also said drink de caf tea and cut down on ventilin (i also have copd as well as a/f ) but you know a little bit of what you fancy will do you no harm ..life is too short to dot the Is and cross the Ts

Gillyflower1965 profile image
Gillyflower1965

Mangnesium and all things Sanjay Gupta have been very positive , he is wonderful

Gillyflower1965 profile image
Gillyflower1965

Well it's back, if I go to work and am busy and stress with work it's yuk, stay off sick calms down lovely , but I need to work, I'm trying mindfulness and the mag taurate with a good effect I think the stress of worrying about how I am going to work is my trigger.. Any bright ideas

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