Still waiting: I am still waiting for a... - Atrial Fibrillati...

Atrial Fibrillation Support

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Still waiting

paddygal profile image
3 Replies

I am still waiting for a follow up appointment, post cardiograph. Ive had a letter to say I will have an appointment with the consultant within three months, that was 4 months ago.

I understand there are waiting lists, but I am scared, the AF is there, intruding into every part of my life. I feel grateful for just waking up every morning, the AF gets worse at night.

I get dizzy, light headed and extremely tired, not great symptoms when I drive nearly 40 miles to work in a Prison healthcare. I am struggling, feel isolated, and desperate for some reassurance from professionals.

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paddygal profile image
paddygal
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3 Replies
meadfoot profile image
meadfoot

Can you afford to pay for a private appointment. More to the point can you afford not too. The NHS is getting worse and waiting times going through the roof.

Please follow through its no more than you deserve. We need to push or many of the population will just fall by the wayside.

Chase up your appointment I had to do do last week for a gastro app and I had been forgotten apparently,.

Thomas45 profile image
Thomas45 in reply to meadfoot

12 years I went into AF, high heart rate. Went to hospital, kept in overnight, put on Amiodarone which didn't agree with me, had echo 3 weeks later, then waitited 10 months for specialist's appointment, during which wait I was blue-lighted to hospital 3 times. NHS is much better now.

Beehive1 profile image
Beehive1

Please follow up on the appointment. I waited when advised I would receive an appointment and when I eventually chased, they initially said they had no record of my conversation with the registrar. This was despite said registrar issuing me with Bisoprolol and rivaroxaban (even though I advised I was on Clopidogrel following a stroke!) When I said I was raising a complaint they found the registrar's notes and made an appointment for the following month. There is a part of me that 'blames' the prescribing of bisoprolol without getting any history for my subsequent bradycardia and need of a pacemaker. When common sense prevails I feel there was probably an underlying reason. Unfortunately my meeting with the registrar occurred a week after my stroke and I was in no fit state cognitively or physically to query anything at that time.

Sorry for ranting but I know first hand about falling off the list and the stress it causes.

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