PAF & tachycardybrady

[trouble]

Does anyone have permanent AF and tachycardybrady syndrome and know whether a pacemaker can work?

[BobD Volunteer]

A pacemaker alone probably not but if once settled an AV node ablation were performed you would then have a steady ventricular rate (pulse) whilst the atrium would do whatever it wanted without affecting the rest of your heart. You are then PM dependent of course.

[trouble in reply to BobD]

A huge thank you for your response - I now know what the cardiac team might have to do before I can have a replacement hip op.

[BobD Volunteer in reply to trouble]

Have they tried normal PVI ablation?

[trouble in reply to BobD]

Thank you for continuing to think of ways I can be helped.

I haven't been offered anything by cardiac since AF first diagnosed. I will add PVI ablation to what I'll discuss with the consultant in April. I had AF diagnosed via an ecg and Dr wrote asking cardiac dept to see me 5 years ago. Was offered warfarin but the NOACs were due to come in so saw a consultant privately and he said you don't need any anticoagulant - we'll put you down for cardio version. 2 weeks later I had a massive stroke! It's only when I had an ecg machine on for 5 days last year after I complained about having no quality of life that the tachycardybrady was diagnosed and that has affected the mitral valve. I'm having now echo's every 6 months to check how much it's has worsened.

I'm a breast cancer and stroke survivor with what I believe diabetes type 2 caused by statins, then tachycardybrady and now I need a hip op! The posts I read on unblocked daily help me enormously.

[Mazza23 in reply to trouble]

How strange telling you no anticoagulant and then putting you forward for a cv they won't do a cv unless you are anti coagulated or they do a toe AF is one of the main causes of stroke hope you are doing well x

[trouble in reply to Mazza23]

Thanx for your reply. You're right with what you say but I only found out after having had the stroke and funnily enough - on this site was where I got the info.

I'm doing great now - from not being able to walk or talk I can do both but short term memory is shot as is mobility from arthritic hip. Also taking too many tablets that have side effects as most of us know about!!!!

Fortunately one of my daughters was with me when I was told I did not need to go on anticoags and offering me cv. Perhaps the waiting list on cvs was long and with NOACs coming in within a 3 - 4 weeks, the consultant thought to wait till then before putting me on anticoags.

I spend alot of my time now trying to get thro' to Doctors to put everyone found to be in AF on 1/2 a dose of anticoags until tests confirm severity etc etc. to prevent strokes.

[Mazza23 in reply to trouble]

I have found on my journey with AF you have to speak up for your self and read all you can doctors are humans and can make mistakes they have spent years training and some don't like being questioned be the humble patient but I always say it is my body and I want to know everything but in the end I think they come to respect you for it I lost my sister because she would not question the way she was being treated, I almost had a fight with a doc in emergency who insisted she was going to give me a drug I knew would kill me so look after yourself hope things get better x Marie