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sotalol as Pill in Pocket

dizzielizzie1 profile image
16 Replies

My GP gave me 40mg of Sotalol as a PIP and told me to take one tablet when necessary. My Afib problem is rhythm control. I did some research and found out that Sotalol can help with rate and rhythm problems BUT you have to take it at a high dose for it to help with rate control. It can also cause dangerous ventricular arrhythmias. I have used it once but it didn't help much. Anyone using this to help with rhythm problems.

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dizzielizzie1
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16 Replies
CDreamer profile image
CDreamer

My understanding is that Sotolol is no longer NICE recommended for lone AF. And surprised that your GP prescribed it as i thought that it should only be prescribed in secondary not primary care.

I would suggest that you Look up the NICE recommendations, print out a copy and take back to your GP.

cks.nice.org.uk/atrial-fibr...

Whimsicalitys profile image
Whimsicalitys in reply to CDreamer

What is Sotolol? I'm in the US and never heard of this drug... Thanks!

CDreamer profile image
CDreamer in reply to Whimsicalitys

drugs.com/cdi/sotalol.html

Whimsicalitys profile image
Whimsicalitys in reply to CDreamer

Not too sure I'd want to be on this drug! I had rapid AF in October...I was in and out of hospitals... one got it right. I am on a blood thinner, one for BP .... water pill... I haven't had an afib attack since then... thank God!!

BobD profile image
BobDVolunteer

Sotalol should not normally be prescribed for AF except at consultant level since 2014 NICE guidelines. I suggest you speak again to your GP and ask him why he has done this . At the dosage you are taking I believe it will have little effect on rhythm and merely act as a beta blocker.

Incidentally there is no science which suggest that rhythm control is better or worse for treatment than rate control and the latter is the first line of attack in most cases. Since all treatment is merely about improving quality of life you pays your money and takes your pick really.

in reply to BobD

Good to see you are back BobD

Clarrie profile image
Clarrie

I was prescribed Sotalol by cardiologist and take 80mg twice a day and can take an extra 80mg if I get an attack of AF. Sotalol suits me better than Bisoproplol and Flecainide.

NiceNana profile image
NiceNana

Sotalol didn't suit me. I was given Bisoprolol when I was first diagnosed and carried on getting attacks every six weeks. On my first visit to see a cardiologist he changed it to Sotalol and my attacks increased to every two weeks. That is when I found this forum and asked to be referred to an EP. I've not had any problems since my ablation 15 months ago and, apart from Rivaroxaban, I'm not taking any medication.

dizzielizzie1 profile image
dizzielizzie1 in reply to NiceNana

Hi NiceNana, I was given Bisoprolol by my GP when first diagnosed with PAF, it didn't suit me and made me very breathless. My hospital doctor ( a member of the cardiac team) changed me to Diltiazem, which did nothing for my rhythm problem, so my GP agreed that I cold stop it. Currently, I am not on anything apart from Apixaban, with Sotalol as PIP ( which doesn't work either!!)

NiceNana profile image
NiceNana in reply to dizzielizzie1

Does your hospital have an Electrophysiology department? My first consultant at my local hospital was a general cardiologist. As BobD says - it is like getting a plumber to look at your electrics. I told my GP that I was not happy with the treatment, so asked to be referred to an EP at a different hospital. I'm so glad that I did.

Good luck.

dizzielizzie1 profile image
dizzielizzie1 in reply to NiceNana

I've never even seen a consultant in 3 years. I asked my GP two months ago for a referral and he said ,'' I can refer you if you want, but I know what the consultant will say ' just take Bisoprolol and Rivaroxaban.' I felt a bit deflated and backed down. My PAF isn't nearly as bad as some people's on this forum, so perhaps my GP thinks I don't need to see a specialist.

NiceNana profile image
NiceNana in reply to dizzielizzie1

I don't know your circumstances but I know that I did the best thing for me by asking to be referred. I am lucky that I have a lovely GP who told me that I could go to either Manchester or Liverpool, where both had EPs. She had studied for a while at Liverpool Hospital, and said Dr Todd was very nice, so I went there. I agree, and would recommend him to anyone.

I wish everyone had a GP like mine.

liddie profile image
liddie

On my last visit to the Cardio I was signed off as stable. However when I received the report of my visit the cardio had made a note recommending that if I get any symptons I should take an extra PIP , sotalol 40mg. I already take 3x sotalol , along with other pills, a day and I don't think this is very helpful. Who do I see for advice?

Sixtychick profile image
Sixtychick

I take 40 mugs of Sotalol twice a day and I had to be in hospital to start my treatment, in case of adve she effects. I was ok. Yesterday I was told to take an extra tablet if me AFib returned. I was prescribed sotalol for SVT .

Hatten28 profile image
Hatten28

Hello Dizzie, I was interested in your comment regarding Sotalol,about two years ago I had a bout of AF which lasted for over two days, I was booked for an ecg at the Docs so was not too concerned, but very wearing on the body and making me feel completely washed out. After seeing the Doctor and having the ecg, I was told I am in af constantly but sometimes it flares up , I was advised to take another two sotalol tablets that night which I did, I already take 80 per day. The result was me in bed in agony in my chest fighting for breath, thought I was dying, did not call an ambulance as I thought it would be ok if I didn’t panic, when I recovered and told the doc she was annoyed that I did not call for help at the time, also the kind people on this forum said I should have called for help, but thought I could control it as I used to guide my son through bad asthma attacks at night, lesson learned by me.

Had a third pacemaker installed and have been really good ever since, hope I have not jinxed myself by saying that!

dizzielizzie1 profile image
dizzielizzie1 in reply to Hatten28

Hi Hatten--I hope your new pacemaker does the trick. I only ever took a few Sotalol tablets then stopped. I now have persistent AFib and take Bisoprolol and Apixaban.

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