Feeling blue because AFIB rides again... - Atrial Fibrillati...

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Feeling blue because AFIB rides again...

cdeterra profile image
17 Replies

I felt the symptoms returning, but like a toddler I refused to admit it to myself.

Last night I had a full, nasty attack while sitting in the bleachers at a festival with my family. It was terrifying because we were far out in the country, very much removed from any medical assistance. The feeling of looking into the eyes of my 12 year old son as he rubbed my arm and told me in a wobbly voice, "It's okay Mom. It's okay. I'm here for you Mom."

Hell.

It's been EXACTLY a year since I ended up in the hospital the first time with heartbeats nearing 300 for days on end that the docs could never get under control with medications no matter what they gave me. Finally having ablation after fighting with my insurance company, but in the meantime missing months of work. The idea of going through all of that again is just more than I can stand right now.

Sorry...I just needed to vent to people who would understand.

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cdeterra profile image
cdeterra
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17 Replies
meadfoot profile image
meadfoot

Oh bless ya. I so feel your despair. Been there too many times scared witless, worried about being so far from medical assistance, seeing my family upset and trying not to show it. It is horrendous.

My hospital experiences have been similar too days of worry and feeling dreadful converted chemically eventually and ntravenous morphine for excrutiating chest pain. Days and days in hospital. (Last visit early hours of last Monday but had a fairly speedy return to nsr so came home without days in coronary care).

The fear of the next episode is a trial to say the least. We never know when, where or the intensity of another episode so we live with a virtual time numb strapped to our chest.

So I understand completely how you feel. Have you thought of seeking psychological support. I have just started seeing someone who specialises in helping people with acute and/or chronic health issues of all kinds.

The sun will shine for you again take heart we are all in the same or similar boat and here to understand and support each other. Take care, big cyber hug sent to you.

Dee

BobD profile image
BobDVolunteer

Bad luck. Not nice I know but things could be a lot worse though no doubt you can't see that right now. Vent as much as you like but do something positive, like ring your EP and speak to his secretary about the way forward.

Bob

Harrycat profile image
Harrycat in reply to BobD

My doc is completely blank when I asked if there are any EP nurses or clinics in Aberdeen, in other words, no idea, end of conversation.....

Rellim296 profile image
Rellim296

I hope that you will find it isn't as bad second time round and that this will be a short term problem. It all contributes to the overall picture - not one any of us likes, but perhaps this time it can be sorted for you. I do hope so.

Just a long-shot maybe, but the anxiety of an attack can make it a lot worse, it certainly does in my case. Let's face it, you'd have to be pretty daft not to be scared if your ticker ain't ticking as it should, that's normal especially when you have you young son with you! I've had some real bad attacks, and my GP gave me some anti-anxiety pills only to take in such situations, as they are addictive. I've only had to resort to them a few times and they helped a LOT, as in say an 80% reduction in the attack, I was amazed (and pleased). Funnily enough, now I know my "head" makes things worse, I only very rarely have to take one.

Hope you get it sorted soon.

Koll

cdeterra profile image
cdeterra in reply to

Koll, until I read your post I forgot that my doc had given me a scrip for a med to help with anxiety. I had been feeling so good I completely forgot about it. Thanks for the reminder and the support!

dedeottie profile image
dedeottie

I do know how you feel. I am currently in the same boat but feel better now I have booked a private appointment with my E.P. for this Thursday. Otherwise I would have to wait till November to see him. I need to feel that I know what the plan is from here then I will feel back in control. Hope you get some help soon.x

rosyG profile image
rosyG in reply to dedeottie

Hope all goes well for you Dedeottie and that you are not as bad as previously let us know what the EP says

Take care

dedeottie profile image
dedeottie in reply to rosyG

Thanks Rosie. I hope you are well. X

cdeterra profile image
cdeterra

Thanks everyone for the supportive words. I know what I have to do and I'm ready to do it. I guess I just felt "attacked" by the attack because I didn't want to believe it. I'm 51, in great shape, and feeling fine, going along happy as you please, and WHAM...AFIB was back.

It helps so much to log into this community and know that there are others out there who understand the anxiety, and frustration that goes along with this thing. So glad I found this resource!

Dave1961 profile image
Dave1961

Its a bastard isn't it?

AF free for so long and then just out of the blue it hits. I hate that about this disease!

It must have been so awful seeing your son scared like that :(

And you have every right to vent. I know we feel like we should be strong all the time but sometimes we just have to say WTF?!?! lol

Sending you lots of cyber hugs {{{}}}

What a discouraging bummer! Sending you peaceful thoughts.

nikonBlue profile image
nikonBlue

Aww, just remember you are NOT alone. We keep being told not to worry yet when in the midst of a full blown AF 'episode' all that goes out the window and it can be terrifying. More so in front of children. I work with out of school club and have had to tell the kids a little of what happens, without scarying them....it's to prevent them from panicking! I'm sure your son was very brave and his support must have given you loads of comfort.

I myself have PAF and I feel, it's a case of 'let's try this next' with the medical guys as the meds I am on control it for ages them wollop...it's back!

I have the added thing of being adopted therefor have no medical history which may or may not have helped.

I hope you are well again and good luck with whatever comes next and tell that son of your's that he did well to comfort his mum as he did!

take care

Blue :-)

cdeterra profile image
cdeterra

UPDATE:

Ended up hospitalized with a rather horrid episode, and the cardiologist and electro-physiologist determined that a recent increase (by a different physician) in one of my migraine medications was the culprit. They have since reduced the medication back down to the prior dosing schedule, and I'm starting to feel good again.

Hallelujah!

:) Fingers crossed that this ends the "blue period" for me!

In the meantime, thanks to all of you for your support. This community means so much to me!

dedeottie profile image
dedeottie

Fingers and toes crossed.x

Steve2810 profile image
Steve2810

Cdeterra, u need to get yourself alivecor ecg machine that works with your mobile, it used to pick up my af every go as i was always in af, it really does work!now i had ablation it always comes back as normal when i do the ecg and hopefully will stay that way, its so reassuring and calms me down that little bit more if i feel im having a funning turn to know my heart is beating ok, and if it does revert back u can catch it early, i think its brilliant

Abbott14 profile image
Abbott14 in reply to Steve2810

I agree,I have one as well.

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