Cadasil

Does anybody have any experience of above condition please

[Hidden]

Googled it, hereditary stroke? Honestly had never heard of it, sorry...

[Christo4 in reply to Hidden]

Lis

Sent you a posting under "more tests"

Christo

[Hidden in reply to Christo4]

Hi, sorry I don't understand your message

[Hidden]

Thanks for replying. It's a blood vessel disorder that runs in families. It was hard to find and wondered if anybody else had any experience of it.

[bahunt75]

CADASIL is a rare neurological genetic vascular disorder. It causes stroke in young adults.It is often misdiagnosed as other neurological disorders such as MS, ALS, Parkinsons, Alzheimers and others. see curecadasil.org

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Thank you Bahunt, I found this site too, I have also found a paper by one Dr called Dr Muir who wrote a lot of data about its prevalence in Glasgow which makes for a lot of interest for me as this is where my mothers family is from. Also he has received a grant from the Stroke society to study furthermore testing of this disease . I have been very tiered for the last few days so resting then I will look further and take up with the stroke society as I have a home appointment with them on the 1st July.

[bahunt75]

There is are several support groups on Facebook for CADASIL one is CADASIL support UK. Do you have CADASIL?

[Hidden]

I have some sort of blood vessel disorder, trying to find which one, I have had about 5 mini strokes now all leaving there mark. Younger family members showing similar signs. We. Have a Heamotoligist in contact with specialists in a America asking for advice and opinions. It's always a worry whether to press for answers as the truth can have more consequences than being in limbo