cyclists?: Any cyclists in this group... - Advanced Prostate...

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Geno2853 profile image
20 Replies

Any cyclists in this group? My incontinence is getting worse. Looking for advice. Thanks.

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Geno2853 profile image
Geno2853
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20 Replies
MoonRocket profile image
MoonRocket

I do bike ....i get mostly stress incontinence, which I use a TENA pad to soak up. I use the thin pad for mild incontinence. For long rides I'll bring 2 spares in case I need to change.

Oatmeal2 profile image
Oatmeal2

What type of saddle are you using? My husband and I do a lot of cycling and he made his own saddle to have a large opening down the center to keep all the pressure off. A lot of saddles now have small splits in the center of the saddle but they still are not wide enough to keep pressure off. Also, he does a lot of kegel exercises when he is off the bike to strengthen the pelvic muscles.

spencoid2 profile image
spencoid2

I ride my bike where I can yank it out and pee any time. I have urgency but not incontinence. When driving and it is not easy to just yank it out I use an external (Texas) catheter. I can pee on the ground without drawing any attention.Or i put the tub e in a container if there is no place to pull over. I have a tube that goes down my leg and a valve on the end so I don't dribble if I do leak a little. Also a vent on a tee to help the pee flow through the tube. You might get your pedals wet but at least no wet clothing.

Still_in_shock profile image
Still_in_shock in reply tospencoid2

I just use a wide mouth bottle. When I get home, Ill put it in the fridge to cool, and I save it for hot days, I call it Urinade!!

Sorry J-O-H-N, I had to do it, its a joke we wrote for MXC, 20 years ago.🥸

spencoid2 profile image
spencoid2 in reply toStill_in_shock

Sounds pretty bad but not as bad as a ground up Alligator or whatever they make that stuff out of.

j-o-h-n profile image
j-o-h-n in reply tospencoid2

I guess you meant Gatorade, a fruit-flavored drink especially for athletes, designed to supply the body with carbohydrates and to replace fluids and sodium lost during exercise.

Don't believe any of that cause it's a croc of shit......

Good Luck, Good Health and Good Humor.

j-o-h-n

dhccpa profile image
dhccpa in reply toStill_in_shock

Some will get PISSed off, but I got a mild chuckle out of it. Nothing on the floor so far and underwear still dry!

j-o-h-n profile image
j-o-h-n in reply toStill_in_shock

Love it, will use it..............Thanks.

I pour mine in small paper cups, put them in the freezer, they're called peepops...........refreshing any time of the year.

Note: Yearly contest......whoever finishes the most in one year .......... wins a year's supply of personalized paper cups......all he has to do is change his name to Dixie.

Good Luck, Good Health and Good Humor.

j-o-h-n

traxcavator profile image
traxcavator

You could take up Ironman. In those, it's acceptable to pee while riding.

Shotgun2322 profile image
Shotgun2322

I also cycle a lot. Everything was fine until salvage radiation then incontinence started getting worse. I have a good saddle so I don’t think that’s the problem. I recently started a pelvic floor training program with a physical therapist. Interestingly a lot of isn’t about tightening my pelvic floor but relaxing it. It seems to be helping quite a lot but progress is slow. Talk to your urologist and see if you can get some P.T. It might help.

Mgtd profile image
Mgtd

Since I am not a cyclist I am not sure if this method will work but on long flights we used piddle packs. These have changed over the years from using sponges to using a gel and they are now working on a suction storage system. With the advent of women fighter pilots they developed a system for them also.

This became a real issue as the length of missions went from a couple of hours to extended times with the advent of modern refueling and extended combat operations.

You may want to search on UTube for videos which discuss this or use google to get a better description. Hope these work for you.

j-o-h-n profile image
j-o-h-n in reply toMgtd

Wow that's amazing........ all these years I though they pissed through a hole in the floor of the plane, and that's why it's called a COCKpit.

Good Luck, Good Health and Good Humor.

j-o-h-n

Mgtd profile image
Mgtd in reply toj-o-h-n

Yep in the old days on some multi engine aircraft we actually had honey buckets and a tube to let the piss out. Problem was the tube would freeze.

And then there was having to shit in your inflight lunch box. So they got smart and put you on a special diet three days before long flights . Peanuts and hard cheese. Stopped the need to poop but you were stuffed up for days.

j-o-h-n profile image
j-o-h-n in reply toMgtd

Funny!!! Good plot for a 3 stooges comedy........

Good Luck, Good Health and Good Humor.

j-o-h-n

FrostGyre profile image
FrostGyre

What do you typically eat and drink in a week?

babawinter profile image
babawinter

I'm lucky in that we mostly ride in rural Vermont and the mountains of Colorado so a quick pull off for a pee in the trees is usually easy. Also, I wear two pairs of bike shorts - an old thin pair underneath the usual pair on top - helps with absorption of the urgent leaks. Also, the split saddle (hole in the center) helps. Prior to my diagnosis, I raced in triathlons and learned how to "wing it off the side" while riding 20 mph. While there are porta-johns at each aid station in the Ironman in Hawaii, those of us in the elite waves were reluctant to lose the time necessary to use them. Kind of gross at first, but you get used to it. Thankfully, no need to go that fast any more!

j-o-h-n profile image
j-o-h-n in reply tobabawinter

I always wondered why my Christmas trees smelled like piss....thanks for solving the mystery....

Good Luck, Good Health and Good Humor.

j-o-h-n

Geno2853 profile image
Geno2853

Thanks everyone for their comments. I had RP in 2013, followed immediately by radiation. My leakage wasn’t bad for a while. I wear pads and usually went through about 1 a day. In the last few months things have gotten worse, especially on the bike. Now, it seems that the leakage is constant on my bike. The pad gets saturated after about an hour and a half on the bike. 2 hours max. On long rides I now stick extra pads in my jersey and try to find somewhere to change the pad and a trash can to discard the soaked one. I pondered the idea of a condom catheter with a tube that just drains out my shorts constantly. My riding group no doubt would recoil. After reading your comments I stumbled onto the concept of an external clamp, like this:

a.co/d/8any8ZN

I’m in the process of trying to schedule an appointment with a physical therapist with experience in incontinence. Anyone have additional thoughts or comments? What about this external clamp idea? Thanks.

Image of clamp on Amazon
RS265 profile image
RS265 in reply toGeno2853

Forget pads, Weisner clamps work a treat. You may have to play with positioning but once aligned you will be dry until you release it. I both cycle and ski. Before my AUS implant the clamp was my go to control device and I still travel with one in case my AUS fails, as they sadly do at some point.

j-o-h-n profile image
j-o-h-n

Geno, many of us member's main issue is that we don't have much to clamp onto. So far we went through clothes pins but now we are experimenting with rust proof paperclips........

Good Luck, Good Health and Good Humor.

j-o-h-n

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