Multiple Myeloma was first suspected because there were more than 5 metastases that showed up in an MRI. We wasted a couple of months going down that rabbit hole.
The APC diagnosis was confirmed in January of this year. The oncologist put me on Firmagon in February and Zytiga plus prednisone in March.
The PSA went from a high of 160 down to under 4, after 3 or 4 months on ADT.
A couple of months ago my PSA started creeping back up. Now it is at 20.
Testosterone is less than 7. The normal range is 241-827.
After having had a Foley urinary catheter in place for more than a year, it was finally removed in late October, a week after a Bipolar TURP had been performed.
The oncologist thinks that the PSA may start going down again since the catheter is no longer stirring things up.
If the PSA does not start going down again quickly enough, he does not want to change everything at one time.
He discussed changing to Eligon and Xtandi; not sure in which order yet.
I am not eager to dash headlong into the castration-resistant marketplace.
Has anyone here had a similar experience?
If so, what did you try and what were the results?