Good morning warriors:
Several of us on here have written that Dr. Alan Bryce, at the Mayo Clinic, has moved on to another position at Another unnamed firm. I have just come off Plavicto, it failed, and obviously I'm very concerned about what the next step will be. Is anyone on here have any recommendation for an MO In the Phoenix area that specializes in Advanced prostate cancer treatments?
Any of your input would certainly be appreciated.
Thanks,
Tom
I admin a group for spouses on FB. I will ask there for you.
Thanks so much Beth Page
You're welcome. I know that we have several members who were using Dr. Bryce because one told me that he was leaving 9/23. My inquiry is up. Now we wait.
Thanks
One member who informed me a couple of months ago that Dr. Bryce was leaving on 9/23 has responded that her husband is now seeing Dr. Parminder Singh. They both like him. Dr. Singh was up to date on her husband's (stage IV) case the first time they met with him. In her words, "We feel confident." She did add, "however it sounds like he will be overbooked for a while." My group is more active in the evenings and mornings than midday. Hopefully, I'll have more.
Thanks Bethpage:
I have heard good things about Dr. Singh but I've been told I cannot get in to see him until the middle of November. I think he is the only oncologist that has any real experience with prostate cancer left at Mayo Phoenix. Very disappointing. Any further input would certainly be appreciated.
Thanks Tom
I just received another rec for a Dr. Wish(wdeep) Dhillon, Arizona Center for Cancer Care in Gilbert. The member and her husband highly recommend. He's an MO/hematologist. I don't see where he's a genitourinary oncologist. From his website: "Dr. Dhillon’s clinical interests include a broad spectrum of disorders including solid tumors, hematologic malignancies, and benign hematologic disorders. His special interests include pancreatic cancer, breast cancer, myeloma, lymphoma, prostate cancer, and lung cancer. Dr. Dhillon also specializes in treatment of blood disorders like blood clots, anemia, platelet problems and bleeding."
Hoping to receive more names.
Thank you for the info. Do you know if we need a referral from Dr Abdul (urologist/surgeon) at Mayo Phoenix, to see Dr. Singh? So far all we have heard is a referral to a radiology oncologist coming . From reading on here, it appears we need both specialists to manage treatments. Currently waiting for PSA to hit .2 for the scan to see where the Mets is.
I do not know.
I'm sorry, but I don't know the answer to that question. I admin a support group for spouses of PCa patients on FB. I simply asked for recommendations for tceinvestments because he has asked several times without a lot of feedback. I think Mayo or Dr. Abdul's office could tell you that?
Being a nobody when it comes to Pca. I though the threshold was 2.0 not 0.2 period.
Good Luck, Good Health and Good Humor.
j-o-h-n Friday 10/06/2023 6:08 PM DST
Thanks so much John. I always appreciate your humor.Tom
You are right John. It should have said 2.0. My brain is Swiss cheese.
Hey you'll go good with ham on rye.........deli mustard.............. BTW mine is chopped liver...
Take it one day at a time.........
Good Luck, Good Health and Good Humor.
j-o-h-n Friday 10/06/2023 11:04 PM DST
That happened to my MO at MD Anderson. I googled her and found she had started at Houston Methodist.
Thanks no such luck with that so far.
I see Dr. Galamaga at CTCA/City of Hope in Goodyear. Really like him and my care team
We are in the same boat. We didn't know Bryce was leaving until we received the email.
I'm sure you probably saw the second email sent that stated that Mayo is interviewing candidates, so it appears they don't have a replacement for him yet. It feels like it leaves those with the more aggressive cancers in the lurch and wondering what to do.
All the best to you. Please keep us up to date on what you find out.
Desert Daisy
Thanks for your reply. I did not see the second email. I’ve been in touch with Dr. Bryce's nurse and she indicated to me that they are very shorthanded. I will keep you posted. You please do the same. I would love to see the second email if you still have it.
Thanks so much for your input.
Tom
I copied the email and sent a message to you.
Thanks so much Desert Daisy
Have you tried Banner Gateway M D Anderson? Works for lots of folks.
No but I will check it out. Thank you so much for your input. Tom
I don’t know a good MO in the Phoenix area, but Dr. Gordon Grado is a fabulous RO (who worked on me) in Scottsdale I’m sure he could refer you if you contact him
Thanks so much. Tom
Here's a list you might want to review, unless you already have....
medifind.com/conditions/pro...
Good Luck, Good Health and Good Humor.
j-o-h-n Friday 10/06/2023 6:29 PM DST
Thanks, John
The one that left with the top of the list
he wouldnot say where he’s going.
My educated guess would be L.A. California........
Good Luck, Good Health and Good Humor.
j-o-h-n Friday 10/06/2023 8:17 PM DST
I may be wrong but I’ve heard Dr. Bryce has moved to City of Hope in Phoenix.
Papa Buzz I’ve heard you are right.
Thanks, Tom.
Tom,
Have you called City of Hope to see if Bryce is there?
Kay
hi Kay
no I did not call them yesterday. I did hear from someone else on our blog that he is there. I will check on Monday and let you know. I’m really not feeling too good but I will get after it.
Thanks for all your support
Tom
Thanks Tom. I'll let you know also if I find out anything. I'll try to call City of Hope tomorrow.
Kay
Thanks, Kay
My new Mayo MO in Phoenix is Irbaz B Riaz, M.B.B.S., M.S.. I was seeing Dr HO before he left Mayo this summer. I met with Dr. Riaz in late August for the first time. So I do not have much history with him but I liked him. I wish you well with your search.
Thank you Falcon
Was just notified I have an appointment with Dr. Riaz in late October. Where are you on your journey?
Thanks, Tom.
I originally diagnosed 2011 Gleason 7 , subsequent biopsy circa 2019 Gleason 8/9; started treatment in July 2023 with a double shot of Degarelix for starters prescribed by Dr. Ho. Dr. Riaz changed me to Lupron 3 month shots which I had the first this past August; Abiraterone was added August 2023 as well. I have had no surgery or treatments until July, 2023. I took minimalistic approach, wanting to go as long as I could without treatments and associated side effects for quality of life. Symptoms and pain were starting to increase and Dr. HO convinced me to start treatment. The double shot of Degarelix in July 2023 knocked my PSA from 183 to 16.4. I have not had blood work yet after my first 3-month Lupron shot. I had some numbness in the buttock area which has gone away since starting the treatment.
Wish you well.
Thank you I am scheduled to see Dr. Riaz the end of October. Did he seem to be an expert on prostate cancer or more of a generalist?
Thanks, Tom.
Tom, my apologies for the delay in getting back to you. He said he concentrates on prostate cancer. It was my first meeting with him so for me a little too soon to give more insight.
Best, Tom
Tom,
Just wondering, did you receive a portal message from Mayo? We haven't received anything yet.
Kay
I have not received anything on my portal. I also come to find out that not just Dr. Bryce left but this summer another doctor by the name of Dr. Ho left and that Dr. Riaz who is now supposedly taking over some of the patients has been on board since 1 August, I am very disappointed that I do not have any follow up with Mayo oncology until October 30. I really don’t think they care that much about their prostate cancer patient load and are just trying to cover their back sides because they have so few doctors very disappointing.
I agree. It doesn't seem that they have anyone to take over who specializes in prostate cancer. We haven't heard anything at all from Mayo as to who Dwight may be assigned to. After checking the City of Hope website, it doesn't appear they have anyone here who specializes in prostate cancer either. It's worrisome.
we scheduled an appointment with Dr. Wong at MD Anderson in Gilbert Arizona. I saw him once three years ago for a second opinion and liked him but Dr. Price was still there at Mayo. I know he’s excepting patients and his nurses are fabulous you might check it out. Some people on this blog also go to him let’s keep in touch.
thanks so much,
Tom
Hope your feeling better today Tom.
Kay
Much better Kay thank you. Pluvicto kicked my butt.
Hi Tom,
I called City of Hope in Goodyear this morning and they don't show that Dr. Bryce is employed there. 😞
Kay
Interesting. I wonder where he went. Thanks Kay
Hello, my MO at Mayo in Phoenix is Cassandra Moore.
I am on the PSMAdditions trial and she is the MO assigned as coordinator. She is nice and listens to me but since I am on a trial, I feel that adherence to the trial instruction takes priority. So I really don’t know how she would be treating me if I wasn’t on this trial. But for her to be assigned to head up this trial at this location speaks to her qualifications I suppose.
Thanks what is the PS MA additions trial?
Sure appreciate your input.
Thanks, Tom.
Hello Tom,
PSMAdditions trial is a clinical trial for hormone sensitive patients receiving SOC. The Addition portion is Pluvicto which I see you have already received.
I am relatively new to this dreadful disease. I was diagnosed just about this time last year. Although I don’t post much as I am not as knowledgeable as others like yourself but I am learning.
Hello PC 22
Just remember we’re all in this together.
Never be afraid to ask a question. The people on this site are the most caring I’ve ever been around in my life. We have one common goal. Beat the beast for as long as we can.
Good luck and God bless you
Thanks for the encouraging words. Please let me know how it goes with Doctor Riaz.
Will do PC.
Dr Bryce is at City of Hope. Started Nov 6. I was able to make appointment for Dec.
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