What’s on the horizon for treating bone metastases?

[rsgdmd]

mdlinx.com/article/what-s-o...

[NecessarilySo]

Keep in mind I am not a doctor so you should take this lightly. I like to dabble in things that people find unsolved or scientifically unproven mysteries. I have had PC since 2008, G7. I have had several bone mets that came and went, over the years, at least that is what I believe. They have never been diagnosed or treated, never been seen on scans, never biopsied. and so people might argue that they don't really exist. They have been evasive, small, but always accompanied by pain, if I press on them lightly with a finger.

My first bone met was on the tip of my tailbone, cocyx. That was in 2012. It fit my RO's description of a metastasis in that it was a constant pain, obviously not a temporary bruise or pulled muscle. It hurt when I sat on the hard plastic seats in the bowling alley, or with finger pressure. I learned that the pain faded during the period after consuming high-lycopene meal. And it started with a rise in my PSA three years after RT. I believe it was caused by my biopsy. It was accompanied by a pain in my rectum, also at the biopsy spot. My PSA rise led my RO to start me on Lupron. At the same time, I increased my intake of lycopene rich food. Within a month of starting Lupron, it vanished, and has never returned. I believe what happened was that the Lupron stopped growth of the mets, starving them of T, while the lycopenes increased my T cells which attacked the mets and killed them off.

Second bone met was on a rib, and that is still there, i.e., I can feel it and it has pretty much stayed the same for many years, since mid-2016. RO requested a scan-guided biopsy but it was not seen by the radiologist so we never got to the biopsy. Prior to the scan I intensified my lycopene intake greatly for about a month. So that rib met has persistently stayed and I can feel it with finger pressure, like a sort of bump on a rib, with mild pain. Lately I tried ridding it with magnets with what seems like partial success. I use heat also from very hot showers, from time to time. It's not worsening, and I would say it is slowly decreasing.

Third met was spinal. It started as a lymph node swelling between my shoulder blades, which grew and seemed to permeate my spine. I self-treated it with heat, and that seems to have been eliminated successfully, although it does seem to tend to return after long periods. It is deep inside my spine.

I have had skull mets which I also treated with hot showers. I don't know if that is bone mets but they could be. MO requested bone met scan but by the time they scanned they were not detectable. They showed on a PET. They also seemed to have disappeared after hot showers, as well as intense lycopene intake.

So that is my bone met history. I am into my 15th year with PC and 11th year with aPC. I am on Lupron quarterly, and my PSA is <0.1 and holding for past two years now. So I consider myself very fortunate and will continue my battle with optimism. I have Hs PC still.

[Hidden in reply to NecessarilySo]

Necess, exactly how much lycopene do you take and in supplement form or food or both. Also have you looked into infra red sauna, since the heat seems to help you. Jim does this a few times a week.

[NecessarilySo in reply to Hidden]

I try to get lycopenes in my food every meal, but sometimes I don't. I use 20 mg supplements twice a day, eat a lot of tomato-based foods. Spaghetti with pasta sauce, tacos with tomatoes and sauce, chili with tomatoes and bbq sauce, shrimp coctail sauce, catsup and dressing made with miracle whip and catsup on sandwiches like plant-based burgers, chicken sausage, no-yolk eggs, etc. V8 or gac juice. tomato soup. Black pepper. Paprika.

[Hidden in reply to NecessarilySo]

Thankyou!

[NecessarilySo in reply to Hidden]

Have used portable sauna 2 years now but stopped recently. I'm sure it helps but I think I don't need it now as all my mets are gone or nearly gone.

[Gl448 in reply to NecessarilySo]

Bone mets that can’t be found on scans and that have never been diagnosed that you cured with lycopene and heat sound like bone mets that never really existed.

I’d find your claims far more interesting if you’d ever actually had medical confirmation that any of the tender spots were PCa.

[NecessarilySo in reply to Gl448]

Sure, I understand. But consider this: doctor visits are quarterly, self-treatment is daily. A lot can happen between doctor visits. and cancer cells work full time 24/7. Also, doctors can err, and scans are hard to read.

[6357axbz in reply to Gl448]

Those were my thoughts when I first read this post.