When I left Omaha...after doing a treatment with LU-177....my hemoglobin and my platelets have been TERRIBLE....platelets around 6,000 and Hemoglobin around 7 ....that's actually seeming a little better. My Axumin pet scan showed that the cancer was all over my body (in bones) including my skull. I just got the results of my MRI I did of the brain on this past Monday....
I wondered why she didn't call me on Monday late in the day...or Tuesday...or Wednesday...and she just called me around 6 pm on today (Thursday). Turned out the news was SOOOO bad she didn't want to tell me until she did as much research as possible. She said the chances of prostate cancer in the skull...going into the lining of the brain was .05%
She says it will kill me. We are looking into a brain Radiation specialist to see what they will say. Has anyone had this kind of BAD luck? I told her...I'm 3 years past my 5 year mark with Stage 4 cancer...so I'm alive 3 bonus years already....even so, I'd love to live a few more years. This does NOT sound good. Anyone know anything about this? HELP. I am more upset about dying because it means leaving my baby, Sparky who's turning 8 this January 14th...AND leaving my husband (we've been together 44 years on Dec 2nd....because He has Lewy body Dementia and I am his caregiver. I've been doing so great....this bad news sounds...."bad?"
P.S. made a GREAT rib eye for dinner for Richard and I just had a couple bites of it...it was so good, I forgot to photograph it. Big hugs to all and any knowledge about my new "RARE" condition would be great to hear about. It's crazy because people keep telling me they can't believe I'm 64...let alone stage 4 with cancer...LOL.