To kill The Cancer: Hi I had Gleason... - Advanced Prostate...

Advanced Prostate Cancer

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To kill The Cancer

NOCanceros profile image
15 Replies

Hi

I had Gleason 3+4 2010 and i was i Germany they put insiode my prostate around 43 seeds L-125 after 6 yeras it comes back with Gleason 4+3 more aggressive.so the urology and the onkology decided to make HDR + external beam " Radiation"

IN 2017 april i did HDR + External Beam my prostae gland under the time i was taking PSA every 3 months January 2019 my PSA was rising to 2.7 i called the onkology he said you have to make F18PSMA PET CET i went to the University hospital of cologne in Germany and did this kind of test ,they showed me at the second day that i had 3 spot in my lymph nodes,he said you have a aggressive cancer , now i'm preparing soon to make another treatment may it will be a radiation to kill again the cancer cells.This is my short history,

There is now a trial called Lutentium 177 PSMA seaching for cancer cells and killing them specielly the skeletont cancer the problem its very expensive, This treatment is in Finland , Germany and Australia may be in another places too.

Always the problems the money because the treatment is expensive,

I hope i can answer questions ,.i'm here for help.

Regards

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NOCanceros
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15 Replies
NPfisherman profile image
NPfisherman

Are you on ADT? Zytiga? Talk with them about getting on ADT at least...I would stay on it for a couple years. Of course, it is whatever your MO and RO decide...Radiate the nodes, but get on ADT and maybe zytiga---there is patient assistance for zytiga where you pay very little...

Good luck,

Fish

NOCanceros profile image
NOCanceros in reply to NPfisherman

Thanks for your informations ,its a very useful for me...Nice to be here.

GP24 profile image
GP24

You could have the three lymph nodes radiated with Cyberknife in Cologne. The health insurance will pay for that.

As long as you are not castration resistant, the insurance will not pay for a PSMA Lu177 treatment and it is difficult to get that done in this situation.

NOCanceros profile image
NOCanceros in reply to GP24

Thanks GP24

Tall_Allen profile image
Tall_Allen

You have to take it one step at a time. The external beam radiation that you had with the hDR brachytherapy - did they treat all of your pelvic lymph nodes at that time? Is that why they are treating only the 3 lymph nodes now with SBRT?

NOCanceros profile image
NOCanceros in reply to Tall_Allen

Thanks Tall_Allen

NOCanceros profile image
NOCanceros in reply to Tall_Allen

Hello Tall_Allen

I finished my therapy on 3 of may with 23 sessions for my lymph nodes, i feel tired but i feel better for every day it comes,my Onkology Dr.weise he recommended to continue with Bicalutamid 150 until october 2019 i like to hear your suggestion.

Thanks

Have a nice time

NOCanceros profile image
NOCanceros in reply to Tall_Allen

Hello Tall _Allen

please if you gave any comments :

Recently i finished my therapy with 23 sessions for my lymph nodes in Germany in cologne in ( OTC ) oncology therapy center and my oncology dr. weise he recommended to continue with Bicalutamide 150mg until october 2019.Now my PSA is <0.10 µg/L

I did a lung examination

My result of lung examination:

2019-05-07 07:58 DT thorax with intravenous contrast, Author: Therese, Dahlman

No previous survey is available in our image archive for comparison. At DT urography 2015-06-29, no deviations were seen in depicted parts of the lung bases.

At today's examination (1 or 5 mm thick sections), some lung nodules cannot be detected. No enlarged lymph nodes. No pleural or pericardial fluid. No skeletal defects. Unchanged with DT urography, 2 liver changes, max 6 mm large, are located in the right liver lobe. One has the appearance of a benign cyst and the other has slightly higher attenuation but not typically metastatic appearance hemangioma ??

Thanks

Tall_Allen profile image
Tall_Allen in reply to NOCanceros

Looks good.

NOCanceros profile image
NOCanceros in reply to Tall_Allen

I Trust your judgement.Thanks

NOCanceros profile image
NOCanceros

Thanks for your reply - No treatment of the lymph nodes just that time HDR+External beam ,the onkology dr. he treated me for external Beam for 20 days and 2 HDR ,now my prostate no cancer inside but the cancer moved to my lymph nodes and i know my Gleason is 4+3 aggresive but soon i will do it to treat my lymph nodes.Now i'm taking Bikalutamid 150mg.

NOCanceros profile image
NOCanceros

I will talk to my onkology and asking him about the ADT or zytiga to hear his opinion.

j-o-h-n profile image
j-o-h-n

Where are you located now? My guess you're Espanol. Thank you for helping us fight this terrible disease Pca. We are here to help you. Many "experts" here, so just ask questions. I am not an expert I am a cómico.

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/24/2019 1:27 PM EST

NOCanceros profile image
NOCanceros in reply to j-o-h-n

Hello j-o-h-n

I'm located in Sweden ,the treatment in sweden is in very low prices but you have to wait 90 days to start the treatment if its approved and they do not have advanced treatment like Germany.

Germany is the best country when it comes to cancer treatment.

I told my urology to make a notice to the university hospital in south of sweden for Galuim 68 he never did it,and by the way every thing going very slowly ,i decided to do it and i did it in Köln in Germany in the university of nuclear hospital it took only 2 weeks ( F18PSMA PET CT ) so quickly to find 3 spot on my lymph nodes.April the first next month i will do 1xct and 23 fractions in a clinic,i will stay in Germany for 34 days . I hope to live more for every day i feel okej and i feel with other peoples who have the cancer problems.I read about trials for the Lutentium 177 PSMA they have a trial for patients for free of charge ,i'm seaching for that kind of trial.Thanks for reading.

j-o-h-n profile image
j-o-h-n

Thank you for your response and your information. I'm afraid that the United States is heading towards being a Sweden like country.

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 02/27/2019 6:16 PM EST

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