Diagnosed but no help!: Hi, I had an... - Adenomyosis Advic...

Adenomyosis Advice Association

845 members158 posts

Diagnosed but no help!

Adora12 profile image
1 Reply

Hi, I had an MRI scan in May to look for endometriosis/cause of my pelvic pain. They noted Adenomyosis. However there was no follow up appointment. I have just got off the phone with my GP and she said this was just inflammation of the womb and wouldn't be causing any pain or other side effects and not to worry. This seems a very different response to the hundreds of women online and their experiences. My symptoms include severe cramps, abdominal and pelvic pain, low back pain, pain during sex, severe bloating. (Previously extremely heavy, long, painful periods, but the POP pill has fortunately stopped this.) I just don't understand why she would be so dismissive?! Surely it's related. ☹️

Written by
Adora12 profile image
Adora12
To view profiles and participate in discussions please or .
1 Reply

I haven't watched this site for awhile. I'm 60 now. I had everything you described in my 20's. I could not stand for more than 20 mins without severe pain. Trying to take care of 3 children. I have read that adenomyosis is worse than endometriosis for pain. Inflammation is painful. All I can say is there are good doctors and those that treat it like a job. You must fit into their A÷B=C profile, or they won't help. Finding a caring doctor is hit and miss. I would say it's totally related. Do your research on the latest studies. I'm sorry to say, but we have to be our own advocates. Hang in there, it won't always be like this.

Not what you're looking for?

You may also like...

Excruciating lower back pain

Hi all xx🤗 Does anyone suffer with excruciating lower back pain due to adenomyosis? I have seen...
ajb1969 profile image

New user, 27, F, never had a baby, diagnosed with Adenomyosis!

Hi ladies.. I've recently been diagnosed with Adenomyosis after years and years of doctor visits...
traubelein profile image

Help! new to all this

Hi, this is my 12th week of continuous bleeding and pain, had an urgent gynae appointment last...
bonker07 profile image

How do you know it's adeno flare not something else? So much pain!

Hello ladies....hope you're not suffering too much today. 💕 My question is - how do you know it's...
Gill1977 profile image

Pain after period

Hello ladies-hope you are all well. After keeping a really detailed symptom diary I've noticed...
Gill1977 profile image

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.