At what age were you (or your loved o... - Acoustic Neuroma ...
Diagnosed at 15, now I'm 18 & going 💪though I'm still undergoing treatment
Diagnosed at 58 a week before Christmas. Luckily, a small AN but did have 75% hearing loss with tinnitus. On watch and wait for 1 1/2 years now.
My granddaughter has been diagnosed with a AN it is just under 4 cms. She is about to go and have it removed. 12 hour operation apparently. Is this excessive
I had an operation a few years ago that took 16 hours well worth it no pain but tumour started to grow again so had radiotherapy sorry I did sick and balance went worse. Hope all goes well.
I was diagnosed approx 22 years ago by a doctor at our local hospital who knew absolutely nothing about AC. He told me "you have a brain tumour it might be something or nothing BUT it's in the centre of your brain so..................." I thought it was a death sentence. he then referred me a to Neuro surgeon @ Queens Medical centre. In between times I researched what treatment may be available. The Professor wanted to operate as soon as poss - I requested a referal to Sheffield (royal hallam I think) so pleased i did. He advised that he could offer "Gamma Knife" a non surgical treatment on a day case basis. In the mean time he suggested monitoring annually with a hearing test & MRI which I've done every year since.
I would advise that you look into Gamma Knife before going under the knife
Stereotactic Radiosurgey is a very accurate and specialised treatment which we deliver using a Gamma Knife. The Gamma Knife is not a knife in the conventional sense, but uses a focused array of intersecting beams of gamma radiation to treat lesions within the brain. The technique was invented by a Swedish neurosurgeon, Professor Lars Leksell and provides an alternative method of treatment for a number of conditions, for which open neurosurgery may be either not practicable or carry a high risk of complications.
Within the central body of the Gamma Knife there is an array of 192 separate cobalt sources each of which produces a fine beam of gamma radiation.
The sources are evenly distributed over the surface of the hemispherical source core with the beams directed towards a common focal spot at the centre. (see What Is a Gamma Knife in the Treatment section) The resultant intensity of radiation at the focus is extremely high whilst only a short distance from the focus it is very low. This enables a high dose of radiation to be delivered to the abnormal tissues whilst sparing the adjacent healthy brain tissue.
HOPE THIS GIVES YOU FOOD FOR THOUGH - wishing you all the best
