Rare Disease Day, 2012

Rare Disease Day, 2012

Hello! Help us reach out to others and raise awareness about rare diseases worldwide. Rare Disease Day is on February 29, 2012, only 19 days away! Together, we can make a difference!!!

To learn more about ways to raise awareness and to take part in the world celebration of Rare Disease Day, visit rarediseaseday.org or one of several Rare Disease Day Partners:

EURORDIS

EU Commmission

EAHC

NORD

RadioOrg

NATIONAL ALLIANCE OF PEOPLE WITH RARE DISEASES (NAPRD)

CANADIAN ORGANIZATION FOR RARE DISORDERS

Hrvatska udruga za rijetke bolesti - Croatian Society for Rare Diseases

Cyprus Alliance for Rare Disorders (CARD)

RARE DISORDERS DENMARK (SJAELDNE DIAGNOSER)

ALLIANCE MALADIES RARES

ACHSE ALLIANZ CHRONISCHER SELTENER ERKRANKUNGEN E.V.

GREEK ALLIANCE FOR RARE DISEASE

National Association of Rare Diseases Patients GENETICS

RARE DISEASES HUNGARY - HUNGARIAN FEDERATION OF PEOPLE WITH RARE AND CONGENITAL DISEASES

GENETIC AND RARE DISORDERS ORGANISATION (GRDO)

UNIAMO - FEDERAZIONE ITALIANA MALATTIE RARE

ASSOCIATION LUXEMBOURGEOISE D'AIDE POUR LES PERSONNES ATTEINTES DE MALADIES NEURO-MUSCULAIRES ET DE MALADIES RARES

VERENIGING SAMENWERKENDE OUDER EN PATIËNTENORGANISATIES (VSOP)

FEDRA - Federaçao Portuguesa de Doenças Raras

Aliança Portuguesa de Associaçiones das Doenças Raras

Genetic Alliance UK

ProRaris

ROMANIAN NATIONAL ALLIANCE FOR RARE DISEASES

Russian Patients Union - Rare Disease Working Group

FEDERACIÓN ESPAÑOLA DE ENFERMEDADES RARAS

Rare Diseases Sweden (RIKSFÖRBUNDET SÄLLSYNTA DIAGNOSER)

Georgian Foundation for Genetic and Rare Diseases

5 Replies

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  • Tell us what you are doing to raise awareness. :)

  • I'm trying huni... Tracey Moorley

  • Thanks, Tracey!

    Thanks for all that you do for Behcet's patients everywhere!

    Hugs and wishes for good health.

  • Sharing with friends on fb:)

  • Thank you, Theresa!

    I hope you are feeling well!

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