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Cramp
Hi another question as I am rather fed up with cramp.....feet legs hands.....sometimes from my big toe up to my groin and my hands, wrists and arms very annoying. Is this common with AIH PBC overlap or could it be related to another autoimmune condition thank you XXX
Hi another question as I am rather fed up with cramp.....feet legs hands.....sometimes from my big toe up to my groin and my hands, wrists and arms very annoying. Is this common with AIH PBC overlap or could it be related to another autoimmune condition thank you XXX
Vespa27
in
PBC Foundation
5 years ago
Autoimmune hepatitis
I finally got the confirmed diagnosis of autoimmune hepatitis today. It's not a shock as I have previously had at least one autoimmune disease and I don't drink. Unfortunately the hepatologist I saw in early Dec has now left my local hospital so I'll probably be referred to Manchester royal hospital.
I finally got the confirmed diagnosis of autoimmune hepatitis today. It's not a shock as I have previously had at least one autoimmune disease and I don't drink. Unfortunately the hepatologist I saw in early Dec has now left my local hospital so I'll probably be referred to Manchester royal hospital.
GrandmaDylan
in
British Liver Trust
5 years ago
Giving cpr effectively with asthma?
CPR with asthma. I’ve searched and found lots of advice for cpr to a patient with asthma. I’m a sports coach with recently diagnosed asthma and first aid trained but not yet fully managed and my concern is that I might not be able to effectively give cpr. Is it possible to administer cpr with reduced
CPR with asthma. I’ve searched and found lots of advice for cpr to a patient with asthma. I’m a sports coach with recently diagnosed asthma and first aid trained but not yet fully managed and my concern is that I might not be able to effectively give cpr. Is it possible to administer cpr with reduced
chopsterz
in
Asthma Community Forum
5 years ago
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New research on PBC and light therapy
I was recently at my GI appointment and was telling her that due to my low mood and irritability, I'd started back on my light therapy. I have a litebook, which is a small portable device you sit beside you in the morning for 20 minutes while read or watch TV. Of note, it's also good for jet lag. Anyway
I was recently at my GI appointment and was telling her that due to my low mood and irritability, I'd started back on my light therapy. I have a litebook, which is a small portable device you sit beside you in the morning for 20 minutes while read or watch TV. Of note, it's also good for jet lag. Anyway
Lucky4
in
PBC Foundation
5 years ago
Is there anyone that has been diagnosed with Takayasu Arteritis?
Hi Everyone it would be great to hear of anyone that is suffering from Takayasu Arteritis. (Inflammation of the large vessels) I was diagnosed in summer 2017. It's very rare apparently! My immune system is attacking the large vessels. I take 20mg Methotrexate a week, I'm currently on 7mg Prednisone (
Hi Everyone it would be great to hear of anyone that is suffering from Takayasu Arteritis. (Inflammation of the large vessels) I was diagnosed in summer 2017. It's very rare apparently! My immune system is attacking the large vessels. I take 20mg Methotrexate a week, I'm currently on 7mg Prednisone (
Queenie-Stardust
in
NRAS
5 years ago
Pulmonary hypertension
I have widespread acute emphysema and have been placed on portable oxygen 4L which is all good, certainly helps when exercising. Yesterday I had a echograph completed and the specialist informed me - yes definite pulmonary hypertension and he will form a report to my doctor. Looking on google, this
I have widespread acute emphysema and have been placed on portable oxygen 4L which is all good, certainly helps when exercising. Yesterday I had a echograph completed and the specialist informed me - yes definite pulmonary hypertension and he will form a report to my doctor. Looking on google, this
Dampier
in
Lung Conditions Community Forum
6 years ago
AF and the flu jab
Could anyone tell me if your are entitled to the free flu jab if you have AF, the reason I ask was the doctors said yes but when I went to have it they said it wasn't on their list and as it was not written on my notes by the doctor they could not give it to me. I have been in constant AF since I was
Could anyone tell me if your are entitled to the free flu jab if you have AF, the reason I ask was the doctors said yes but when I went to have it they said it wasn't on their list and as it was not written on my notes by the doctor they could not give it to me. I have been in constant AF since I was
TheKnitter
in
AF Association
6 years ago
Hair loss treatments
Hi everyone! I’m new. I can’t believe I’ve only just found Verity and this forum! I recently got diagnosed although I suspected it for a long time as I have acne, body hair, and most recently I’ve noticed hair loss too. It’s all very depressing but I recently found hope by reading that Spironalactone
Hi everyone! I’m new. I can’t believe I’ve only just found Verity and this forum! I recently got diagnosed although I suspected it for a long time as I have acne, body hair, and most recently I’ve noticed hair loss too. It’s all very depressing but I recently found hope by reading that Spironalactone
Cafeaulait
in
PCOS UK (Verity)
6 years ago
Advice on hair loss due to methotrexate
Hello all, just wondering if anyone has some advice on how best to treat the hair loss that comes as a side effect of methotrexate? I’m currently on 25mg and expect it will go up due to it having no positive affect on my arthritis, but unfortunately causing hair loss, nauseousness and headaches! I’m
Hello all, just wondering if anyone has some advice on how best to treat the hair loss that comes as a side effect of methotrexate? I’m currently on 25mg and expect it will go up due to it having no positive affect on my arthritis, but unfortunately causing hair loss, nauseousness and headaches! I’m
EllenR-D
in
NRAS
6 years ago
More first aid - heart attack vs cardiac arrest
My post yesterday regarding first aid for cardiac arrest highlighted another common misunderstanding - the difference between heart attack and cardiac arrest. This BHF graphic makes it pretty clear, thought it might be worth sharing.
My post yesterday regarding first aid for cardiac arrest highlighted another common misunderstanding - the difference between heart attack and cardiac arrest. This BHF graphic makes it pretty clear, thought it might be worth sharing.
laura_dropstitch
Heart Star
in
British Heart Foundation
6 years ago
CPR/Defibrillator first aid for cardiac arrest
https://www.youtube.com/watch?v=L2z5bjrvYl8 This BBC Three video popped up in my Twitter feed this morning (courtesy of BHF) and I thought some of you might be interested in it. It's a really good public information film, I think, showing what to do if you are present when someone has a cardiac arrest
https://www.youtube.com/watch?v=L2z5bjrvYl8 This BBC Three video popped up in my Twitter feed this morning (courtesy of BHF) and I thought some of you might be interested in it. It's a really good public information film, I think, showing what to do if you are present when someone has a cardiac arrest
laura_dropstitch
Heart Star
in
British Heart Foundation
6 years ago
APS info please
Hi there, I have had 3 miscarriages a premature baby a dvt and suffer with Phlebitis. I am always tired and my muscles are stiff and full of knots. I was tested for APS 5 years ago and told i did not have it. is this definitive? I was taking aspirin at the time as anxious about dvts. Should i ask to
Hi there, I have had 3 miscarriages a premature baby a dvt and suffer with Phlebitis. I am always tired and my muscles are stiff and full of knots. I was tested for APS 5 years ago and told i did not have it. is this definitive? I was taking aspirin at the time as anxious about dvts. Should i ask to
pinkyandperky
in
Hughes Syndrome APS Forum
6 years ago
About to go Gonadotrophin injection need some advice
About to go on the Gonadotrophin injection in the hope it helps my body heal from my lap and help with my pain. Has anyone been on it I could use some advice.
About to go on the Gonadotrophin injection in the hope it helps my body heal from my lap and help with my pain. Has anyone been on it I could use some advice.
Jazz95
in
Endometriosis UK
6 years ago
Diagnosed with APS in 1998/99, on coumadin since 1996
I got a blood clot when I was 19. Doctors didn't know why, and put me on coumadin for 3 months. The symptoms improved, but then after the 3 months of treatment ended, I experienced burning in my fingers and toes. I took an asprin a day and the symptoms resolved. I stopped taking it thinking I didn't
I got a blood clot when I was 19. Doctors didn't know why, and put me on coumadin for 3 months. The symptoms improved, but then after the 3 months of treatment ended, I experienced burning in my fingers and toes. I took an asprin a day and the symptoms resolved. I stopped taking it thinking I didn't
craftymom77
in
Hughes Syndrome APS Forum
6 years ago
Correlation of lupus to silicone breast implants
With the latest news reports linking silicone breast implants to signs and symptoms of autoimmune diseases such as lupus, has anyone here investigated that correlation of your disease and potential cause from the implants? I was diagnosed with lupus last year and my signs and symptoms started two to
With the latest news reports linking silicone breast implants to signs and symptoms of autoimmune diseases such as lupus, has anyone here investigated that correlation of your disease and potential cause from the implants? I was diagnosed with lupus last year and my signs and symptoms started two to
Czarns1
in
LUPUS UK
6 years ago
Another question about CTEPH
Hey, about seven years ago, I had a massive saddle pulmonary embolism. Apparently it did a lot of damage to my lungs. I have recently been diagnosed with a moderately enlarged right heart. My ejection fraction is normal, and my PAP is 20.1. The doc said my PAP is completely normal. No Pulmonary Hypertension
Hey, about seven years ago, I had a massive saddle pulmonary embolism. Apparently it did a lot of damage to my lungs. I have recently been diagnosed with a moderately enlarged right heart. My ejection fraction is normal, and my PAP is 20.1. The doc said my PAP is completely normal. No Pulmonary Hypertension
blizzard2014
in
Lung Conditions Community Forum
6 years ago
Rivaroxaban or Warfarin?
What are the pros and cons of Warfarin against Xarelto (rivaroxaban)? I’ve been on Xarelto for 3 years and I’ve had skin issues constantly and dizziness which I think are side effects of it? Also, the issue of no antidote to reverse the affects of the drug is always a worry in the back of my head..
What are the pros and cons of Warfarin against Xarelto (rivaroxaban)? I’ve been on Xarelto for 3 years and I’ve had skin issues constantly and dizziness which I think are side effects of it? Also, the issue of no antidote to reverse the affects of the drug is always a worry in the back of my head..
Heidi07
in
Anticoagulation Support
6 years ago
First chemo session over
Phew! The nurse who administered was very knowledgable and competent and my two daughters were with me at home ( I chose to have it in my flat). A very unsettling experience thinking of the 3 toxic substances Entering the books stream; you amazing women who go through this in several whole sessions are
Phew! The nurse who administered was very knowledgable and competent and my two daughters were with me at home ( I chose to have it in my flat). A very unsettling experience thinking of the 3 toxic substances Entering the books stream; you amazing women who go through this in several whole sessions are
Chick44nzrn
in
My Breast Cancer Community
6 years ago
Does talking Aldactone effets T4 blood test ?
I’m taking Aldactone for about one week (for PCOS ) I wanna check my T4 and TSH level .
I’m taking Aldactone for about one week (for PCOS ) I wanna check my T4 and TSH level .
Mariem33
in
Thyroid UK
6 years ago
Are There Alternatives To Psychotropic Drugs?
You betcha! I'm JEG325 and I've been researching, studying and takiing supplements for 22 years! I have taken a lot of supplements nearly from the beginning. I don't believe in drugs and I refuse to use them at all, even aspirin! But today, let's talk about a few drugs that many of you, several of my
You betcha! I'm JEG325 and I've been researching, studying and takiing supplements for 22 years! I have taken a lot of supplements nearly from the beginning. I don't believe in drugs and I refuse to use them at all, even aspirin! But today, let's talk about a few drugs that many of you, several of my
JEG325
in
Anxiety and Depression Support
6 years ago
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