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Reducing Besremi dosing
Hi Community, I shared prior that I upped my Besremi dose from 150 to 180 the past two months. All was going well with several benefits which hadn't happened the past 18 months on Besremi: My JAK2 Allele dropped more than 20%, I have not needed a PB for months which means I now have normal iron
Hi Community, I shared prior that I upped my Besremi dose from 150 to 180 the past two months. All was going well with several benefits which hadn't happened the past 18 months on Besremi: My JAK2 Allele dropped more than 20%, I have not needed a PB for months which means I now have normal iron
Elizka
in
MPN Voice
11 months ago
Peripheral neuropathy
biomarker of sensitive neuropathy.29 Another study with the objective to assess the efficacy, tolerability and safety of vitamin K2 as MK7 in patients with peripheral neuropathy was conducted in 100 participants presenting with PN and suffering from either Vitamin B12 Deficiency (VBD, megaloblastic
anaemia
biomarker of sensitive neuropathy.29 Another study with the objective to assess the efficacy, tolerability and safety of vitamin K2 as MK7 in patients with peripheral neuropathy was conducted in 100 participants presenting with PN and suffering from either Vitamin B12 Deficiency (VBD, megaloblastic
anaemia
tomdickharry
in
Pernicious Anaemia Society
5 months ago
low iron and folate
My hypo daughter is clearly feeling tired. She leads a very busy life but from own hypo past experience I can see she is going downhill. Here are some of the results she received back in August when she was advised to take Spatone. At that time she had been taking iron tablets but had stopped because
My hypo daughter is clearly feeling tired. She leads a very busy life but from own hypo past experience I can see she is going downhill. Here are some of the results she received back in August when she was advised to take Spatone. At that time she had been taking iron tablets but had stopped because
mstp
in
Thyroid UK
5 months ago
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B12 Frequency Research
Three months ago I revisited "What you need to know about PERNICIOUS
ANAEMIA
AND B12 DEFICIENCY" by our wonderful Martyn Hooper.
Three months ago I revisited "What you need to know about PERNICIOUS
ANAEMIA
AND B12 DEFICIENCY" by our wonderful Martyn Hooper.
Wwwdot
in
Pernicious Anaemia Society
3 months ago
New diagnosis of PEI Advice please
I have Type 1 Diabetes, Coeliac Disease and Pernicious
Anaemia
. I've just had a call from my consultant to say I also have tested strongly positive for PEI. He has prescribed the enzymes and an acid inhibitor.
I have Type 1 Diabetes, Coeliac Disease and Pernicious
Anaemia
. I've just had a call from my consultant to say I also have tested strongly positive for PEI. He has prescribed the enzymes and an acid inhibitor.
TFH1
in
Chronic Pancreatitis Support
11 months ago
Vitamin B12 status in health and disease: a critical review. Diagnosis of deficiency and insufficiency – clinical and laboratory pitfalls
This is an extraordinary thorough review of B12 deficiency and B12 insufficiency, with an actual description of the difference, including severity of symptoms. One interesting factoid is quoted here: "In 1900, Russell noted characteristics of B12 deficiency that are overlooked with surprising frequency
This is an extraordinary thorough review of B12 deficiency and B12 insufficiency, with an actual description of the difference, including severity of symptoms. One interesting factoid is quoted here: "In 1900, Russell noted characteristics of B12 deficiency that are overlooked with surprising frequency
WiscGuy
in
Pernicious Anaemia Society
11 months ago
Uncooperative GP
At the time I was having very successful B12 loading injections for
anaemia
but after his death I was overwhelmed with work.
At the time I was having very successful B12 loading injections for
anaemia
but after his death I was overwhelmed with work.
Eulophia47
in
Pernicious Anaemia Society
3 months ago
How do I start on self injecting?
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
totallyFrustrated
in
Pernicious Anaemia Society
8 months ago
pregabalin and iron
Hello, I have tried googling if there is any interaction between pregabalin and iron but can’t find anything. I take an iron tablet due to low iron (morning and it has not helped) but will switch to iron bisglycinate at night after reading posts here. I stop eating at 6:30pm so I can take my pregabalin
Hello, I have tried googling if there is any interaction between pregabalin and iron but can’t find anything. I take an iron tablet due to low iron (morning and it has not helped) but will switch to iron bisglycinate at night after reading posts here. I stop eating at 6:30pm so I can take my pregabalin
e365
in
Restless Legs Syndrome
6 months ago
My take on the Nhs
It turns out as well as needing a triple bypass I had
anaemia
quite badly which I was unaware of . This meant they could not operate until they had discovered the source of the the problem . They gave me every test they could in that they screened my whole body I would say.
It turns out as well as needing a triple bypass I had
anaemia
quite badly which I was unaware of . This meant they could not operate until they had discovered the source of the the problem . They gave me every test they could in that they screened my whole body I would say.
Pollypuss
in
British Heart Foundation
4 months ago
Pernicious Anaemia is the worst
Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird symptoms . Have congenital heart disease too and after having complex heart surgery two years ago my health got critical. I have reduced kidney function too. Yikes. Anyone else got similar health issues. Am being treated for PA
Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird symptoms . Have congenital heart disease too and after having complex heart surgery two years ago my health got critical. I have reduced kidney function too. Yikes. Anyone else got similar health issues. Am being treated for PA
Sea-blue
in
Pernicious Anaemia Society
1 year ago
It's not the adrenals it’s AF!
I kept thinking it was because of my tapering: I was short of breath, felt “chesty” and dizzy. The monitor I wore showed <1% incidence of AF but still at risk for stroke- so Eliquis for me. Scheduled for a visit to the electrophysiology lab for assessment. I believe it’s getting more frequent. Stopped
I kept thinking it was because of my tapering: I was short of breath, felt “chesty” and dizzy. The monitor I wore showed <1% incidence of AF but still at risk for stroke- so Eliquis for me. Scheduled for a visit to the electrophysiology lab for assessment. I believe it’s getting more frequent. Stopped
Karenjaninaz
in
PMRGCAuk
11 months ago
My profile
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
BillCapita
in
PMRGCAuk
6 months ago
b12 injections done but don’t feel better
hi I’ve recently been diagnosed with b12 deficiency, no idea why my if was fine apparently and no sign of coeliac. Dr doesn’t seem to want to look into it any further which is annoying. But I’m finished with my initial injections almost two weeks ago and I don’t feel any better. Is this normal?
hi I’ve recently been diagnosed with b12 deficiency, no idea why my if was fine apparently and no sign of coeliac. Dr doesn’t seem to want to look into it any further which is annoying. But I’m finished with my initial injections almost two weeks ago and I don’t feel any better. Is this normal?
16131613
in
Pernicious Anaemia Society
11 months ago
Escape from Augmentation
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
davchar23
in
Restless Legs Syndrome
6 months ago
Floradix and Hemoglobin
Has anyone had experience using Salus forumula "Floradix" Fer + plantes to help support healthy hemoglogin levels in someone with CLL? My husband's iron levels have always run on the low side and now with the CLL pushing down on his hemoglobin and platelets combined with a reduction of heme-iron in
Has anyone had experience using Salus forumula "Floradix" Fer + plantes to help support healthy hemoglogin levels in someone with CLL? My husband's iron levels have always run on the low side and now with the CLL pushing down on his hemoglobin and platelets combined with a reduction of heme-iron in
Minou1
in
CLL Support
11 months ago
B12 results-please can someone advise?
My query is as I have pernicious
anaemia
I have been told I need these injections for life. Would the high reading be due to having the injection and immediately having a blood test taken? Would this be a false reading?
My query is as I have pernicious
anaemia
I have been told I need these injections for life. Would the high reading be due to having the injection and immediately having a blood test taken? Would this be a false reading?
Milsean
in
Pernicious Anaemia Society
1 year ago
Better Late Than Never
[i]Pernicious
Anaemia
is an autoimmune disease so inflammation can be everywhere[/i]. The brain is particularly susceptible. So, this can be a complication of PA or any another Autoimmune Disease which we may have. However, the recognition and management of Encephalitis is very poor by medics.
[i]Pernicious
Anaemia
is an autoimmune disease so inflammation can be everywhere[/i]. The brain is particularly susceptible. So, this can be a complication of PA or any another Autoimmune Disease which we may have. However, the recognition and management of Encephalitis is very poor by medics.
Narwhal10
in
Pernicious Anaemia Society
4 months ago
Everything's normal!?
Here are my latest GP results. Feeling ĺike a hashi flare/swing. Tiredness, bloating, anxiety, pins and needles, palpitations. Nurse called to say everything is normal. Serum free T3 (RHX) 3.6 (3.90-6.80) (Borderline low but rest of TFTs normal) Serum TSH 0.78 (0.35-5.00) Serum free T4 22.3 (11.00
Here are my latest GP results. Feeling ĺike a hashi flare/swing. Tiredness, bloating, anxiety, pins and needles, palpitations. Nurse called to say everything is normal. Serum free T3 (RHX) 3.6 (3.90-6.80) (Borderline low but rest of TFTs normal) Serum TSH 0.78 (0.35-5.00) Serum free T4 22.3 (11.00
jasmine804
in
Thyroid UK
11 months ago
Blood test results Vitamins / Digestive problems
Blood results done by GP : “ Serum folate 4 ug/L Serum ferritin 21 ug/L low iron stores Serum vitamin B12 513 ng/L. ” Vit D not done. I see Tesco are offering cheap tests for various vits. Thoughts ? I am housebound so I take vit D. 25 ug daily. Also omega 3 fish oil and a multivitamin. I was
Blood results done by GP : “ Serum folate 4 ug/L Serum ferritin 21 ug/L low iron stores Serum vitamin B12 513 ng/L. ” Vit D not done. I see Tesco are offering cheap tests for various vits. Thoughts ? I am housebound so I take vit D. 25 ug daily. Also omega 3 fish oil and a multivitamin. I was
Applethorpe
in
Thyroid UK
11 months ago
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