Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

Severe symptoms in pregnancy.

I’ve had RLS ever since I was a child, I never felt a need to have official diagnosis as it wasn’t severe and knew my triggers and how to elevate the symptoms....

I’ve had RLS ever since I was a child, I never felt a need to have official diag...

Pamests

•4 days ago

35 Replies

Interesting update for those in the UK whose GP practice has Buprenorphine red listed

Finally, after months of hitting my head against a brick wall with my GP practice, where Buprenorphine is firmly red-listed (and the partners flatly refuse to...

Finally, after months of hitting my head against a brick wall with my GP practic...

Claire_lc

•10 days ago

52 Replies

Impulse Control Disorder on Dopamine Agonists. TV Drama Mr Bates v The Post Office

I have been in touch with a producer of Mr Bates v The Post Office. This programme succeeded in forcing the British Government to pardon all those innocent...

I have been in touch with a producer of Mr Bates v The Post Office. This progra...

Joolsg

•1 month ago

85 Replies

Buprenorphine Trial

Some of you may be aware that I have been trying to get a trial of Buprenorphine for refractory RLS underway in the UK over the last 2 years.I initially...

Some of you may be aware that I have been trying to get a trial of Buprenorphine...

Joolsg

•1 month ago

83 Replies

Whirly Whirly bird.

You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably...

You’ve heard about the whirly whirly bird that flies in ever decreasing circles ...

HipHop1972

•2 days ago

21 Replies

Buprenorphine update - one week in

Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had zero RLS! My IRLSS has gone from the high 30s to 0....

Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it...

Claire_lc

•4 days ago

25 Replies

RLS & Dissociative Seizures

Read my story in my profile. I will add any news/changes in my condition(s) as and when they arise. Currently I am confronting Stage 3, Prostate Cancer....

Read my story in my profile. I will add any news/changes in my condition(s) as a...

Hidden

•6 days ago

27 Replies

Links between TSH and RLS. Have I found my cause in sub clinical hypothyroidism due to autoimmune disease Hashimoto syndrome?

As my RLS was under pretty good control I decided to see how I would go if I stopped my Tramadol 50-100mg daily, and tried CBD/THC oil instead. The answer was...

As my RLS was under pretty good control I decided to see how I would go if I sto...

TheGiz

•6 days ago

27 Replies

TGIF! And thank God for Tramadol?

My answer is yes. Always do your own research. Tramadol is a combination opiate and the properties of an SNRI (antidepressant) and is very successfully used to...

My answer is yes. Always do your own research. Tramadol is a combination opiate ...

DesertOasis

•21 days ago

49 Replies

Pregabalin

Hello again: I am now down to 50mg per day from 275mg reducing by 25mg weekly. Its not been a problem until now. The dizziness and nausea has returned big...

Hello again: I am now down to 50mg per day from 275mg reducing by 25mg weekly. I...

Keith1231

•21 hours ago

10 Replies

Gabapentin Hell!

Hi all, thought I would share my recent experience with Gabapentin. I have had RLS since I was 18 and am now 74. I started on Pramipexole about 15 years ago...

Hi all, thought I would share my recent experience with Gabapentin. I have had ...

jeanjack

•12 days ago

35 Replies

Opioid Treatment of Patients with Painful versus Painless Restless Legs SyndromeApril 2024Sleep 47(Supplement_1):A293-A294

And another - Introduction Recent studies characterized a clinically more severe and painful (compared to painless) form of restless legs syndrome (RLS)....

And another - Introduction Recent studies characterized a clinically more sev...

RLSLearner

•22 days ago

45 Replies

2nd post update from neurology and quick Q. can you see your muscles moving?

hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle...

hi only my second post, had a very disappointing appt with a private neurologist...

Zenawarrior73

•2 days ago

14 Replies

Buprenorphine

I thought I would share my story . I live in Gloucestershire and have suffered with chronic rls for over 30 yrs Dopamine Agonists worked quite well until I hit...

I thought I would share my story . I live in Gloucestershire and have suffered w...

Huntingleroy

•4 days ago

18 Replies

Heartburn

I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.

I know that PPIs are taboo but what about famotidine and it's cousins? I am in ...

Whippetmama

•8 days ago

25 Replies

Accessing Iron Infusion

hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid...

hey folks Wondering if anyone can help or has experience with the situation I a...

Xicara

•18 days ago

36 Replies

methadone ? Tolerance

hi, I am wondering if I am developing a tolerance to methadone, and, if so, where too from here? Sorry about the long post but I think if anyone is able to...

hi, I am wondering if I am developing a tolerance to methadone, and, if so, wh...

Mongolia2020

•6 days ago

21 Replies

RLS, Augmentation and Finding a Neurologist in the SW of England

Good morning, I am a long-time sufferer of Fibromyalgia/CFS/RLS, these being my main areas of health concerns, being initially diagnosed way back in 1990. I...

Good morning, I am a long-time sufferer of Fibromyalgia/CFS/RLS, these being my ...

grabananny123

•2 days ago

12 Replies

Really severe rls plus mds

I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her...

I recently was able to see my moms records. She has been told she has mds too. A...

SevereRLS-4mom

•3 days ago

14 Replies

Help please

I've been in 2 x 88 microgram of pramipexole for about a year, I'm anemic and have just been prescribed ferrous fumarate 210mg a day, I have hated the...

I've been in 2 x 88 microgram of pramipexole for about a year, I'm anemic and ha...

Mittons

•2 days ago

12 Replies

Neurology

Hi everyone, I finally have my appointment with neurology 16th May .My gp is taking me off pregabalin and advising amitryptaline (excuse the spelling) I...

Hi everyone, I finally have my appointment with neurology 16th May .My gp is tak...

Baz33

•19 days ago

36 Replies

Magnesium, how much and tablet/spray

My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other...

My RLS has become significantly worse over the last 6 months and I am reluctant ...

ChilliChocolateLover

•13 days ago

29 Replies

left methadone at home, urgent advise needed

I'm away from home tonight and for the first time forgot my methadone. I take 5mg every night. What might happen to me if I miss 1 dose of 5mg Tonight?!?! If...

I'm away from home tonight and for the first time forgot my methadone. I take 5m...

Rayme

•20 days ago

33 Replies

started buprenorphine

I live in Australia, SE Queensland. After finding this site and all the advise three months ago. I saw my GP, told him about HealthUnlocked and gave him the...

I live in Australia, SE Queensland. After finding this site and all the advise ...

Miss_E

•5 days ago

17 Replies

Agonylegs

I have suffered with PLMD for years. I took Pramaprixol for 6 years but suddenly the side effects have increased so much I have had to come off them over a...

I have suffered with PLMD for years. I took Pramaprixol for 6 years but suddenl...

Agonylegs

•16 hours ago

6 Replies

Awful repeated behaviours of hospital staff

Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two...

Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in E...

HilsK

•18 days ago

29 Replies

Cough medicine

Any ideas of cough medicine that husband can take that does not make RLS worse. In UK. Hay fever and chesty cough.

Any ideas of cough medicine that husband can take that does not make RLS worse. ...

Ephemera

•2 days ago

10 Replies

Neutropenia /pregabalin

Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is new and wasn't present in my last results in march.It's a side effect of...

Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is ...

Baz33

•14 days ago

24 Replies

Leg stiffness when reducing Pregabalin

Hi all! I am reducing from 200 mg to 100 mg as the side effects are horrendous. Now getting back to 4 hours sleep and leg stiffness in the morning. Does...

Hi all! I am reducing from 200 mg to 100 mg as the side effects are horrendous. ...

Moonwalker1967

•18 days ago

27 Replies

RLS & Pramipexole

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Prescribed .088mg Pramipexole by my GP n just told to increase when I complain! I...

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Pre...

Maymount

•23 days ago

30 Replies

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