Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,799 members • 6,814 posts

All posts for July 2012

Is it dangerous to come in contact with someone suffering from TB???

I'm hoping someone can help me on this. I was diagnosed with Wegeners in 2007 and have suffered from flares in my kidneys, lungs, nose and eye. I am currently...

I'm hoping someone can help me on this. I was diagnosed with Wegeners in 2007 an...

Nome23

•12 years ago

5 Replies

low calcium, iron, vitamin d?

I have WG. my calcium levels keep dropping to very low and recently been diagnoed with severe anaemia, my vit d level has dropped twice. Anyone similar?...

I have WG. my calcium levels keep dropping to very low and recently been diagnoe...

hamble99b

Volunteer•12 years ago

7 Replies

Prickly Skin?

Hi This past week I have been experiencing a painful sensation on my skin. It feels like I`m being pinched with tiny needles from head to toe! It is really...

Hi This past week I have been experiencing a painful sensation on my skin. It...

Hidden

•12 years ago

3 Replies

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Scarborough Hospital patients ?

Hi, Iv noticed that on the survey about Hospitals there are two other members who are treated for there Vasculitis at Scarborough Hospital and wondered if...

Hi, Iv noticed that on the survey about Hospitals there are two other members wh...

debbie123

•12 years ago

2 Replies

Tomorrow, 1pm at the Julie Rose Stadium, Ashford, Kent Janine Brown will be presenting a large cheque to VUK Trust for £1000

Janine has been fundraising for the Trust, running in various prestigious marathons, in memory of her dear friend Clare Grossman who passed away as the result...

Janine has been fundraising for the Trust, running in various prestigious marath...

John_Mills

Volunteer•12 years ago

2 Replies

Seeking vasculitus consultant North Wales

I first noticed numerous red marks on my legs together with painful joints and generally not feeling well in December of last year. I went to see my GP who...

I first noticed numerous red marks on my legs together with painful joints and g...

Maddy43

•12 years ago

10 Replies

liverpool/cheshire support group first meeting

Well what a great meeting,and what a turnout.we had 28 patients at our first meeting. many thanks to dr harper,sarah hardy from the royal liverpool hospital...

Well what a great meeting,and what a turnout.we had 28 patients at our first mee...

quinnster

•12 years ago

8 Replies

High blood pressure!

Hi all, I did mention my blood pressure in an earlier post… I have been treated for high blood pressure for about three years now. After being discharged from...

Hi all, I did mention my blood pressure in an earlier post… I have been treated ...

Regie79

•12 years ago

14 Replies

recently diagnosed with vasculities

good afternoon, at the end of last year i had a biopsy carried out on my feet due to staining on the tops of both of my feet and the result came back that i...

good afternoon, at the end of last year i had a biopsy carried out on my feet...

matk

•12 years ago

4 Replies

Does anyone (particularly those with Cerebral Vasculitis) find it hard to stay sleep and do you have any tips?

I seem to be able to get to sleep, as I am so exhausted, but then wake every few hours. My brain doesn't seem to switch off anymore and would love to find out...

I seem to be able to get to sleep, as I am so exhausted, but then wake every few...

milliewin

•12 years ago

4 Replies

Low dose naltrexone

Is there anyone who can evaluate the claims of this drug? It claims to be 'a drug that may help regulate a dysfunctional immune system in auto immune...

Is there anyone who can evaluate the claims of this drug? It claims to be 'a dr...

Ayla

Volunteer•12 years ago

10 Replies

Vision changes

Hi All just a quick quesfion.....I've been on high steroids (oral, IM and IV) cor almost 18 months and have noticed that my eyes are becoming quife badly...

Hi All just a quick quesfion.....I've been on high steroids (oral, IM and IV) c...

Sarahjh2004

•12 years ago

11 Replies

Latest Vasculitis UK/HealthUnlocked poll.

Could we just have a few more people complete the latest Vasculitis Poll please. John would like to use the results for his next meeting with the Vasculitis...

Could we just have a few more people complete the latest Vasculitis Poll please....

John_Mills

Volunteer•12 years ago

4 Replies

First cyclophosphamide pulse

First treatment today; just in time as ESR, C-RP and WBC counts were ramping up on previous blood tests. On the menu today was ondansetron 8mg, methyl...

First treatment today; just in time as ESR, C-RP and WBC counts were ramping up ...

Wellsie

•12 years ago

6 Replies

Throat problems

I have wg with kidney involvement,and despite numerous tests,ive been told my lungs are fine. however have developed this shortness of breath in my...

I have wg with kidney involvement,and despite numerous tests,ive been told my lu...

quinnster

•12 years ago

8 Replies

Ever wondered if your multivitamin delivers what it promises? Me too.....This guide could enlighten.

http://www.multivitaminguide.org/full-ranking.html

HiveMind

•12 years ago

3 Replies

Liverpool/cheshire support group meeting

Just a reminder,the first meeting,will take place on thursday 12th july at 3 30 pm. venue is royal liverpool hospital ward 11c all welcome

Just a reminder,the first meeting,will take place on thursday 12th july at 3 30 ...

quinnster

•12 years ago

14 Replies

DLA help needed

Hello Everyone, I am having problems getting DLA despite doctors letters supporting it. If anyone has Vasculitis, with Rheumatism based symptoms/ fatigue /...

Hello Everyone, I am having problems getting DLA despite doctors letters support...

Sunsetrep79

•12 years ago

5 Replies

disability living allowance

Does anyone have any idea where I can get help in filling in the DLA form or could point me in the right direction as struggling to fill in the form for my...

Does anyone have any idea where I can get help in filling in the DLA form or cou...

hornet

•12 years ago

9 Replies

Check out this web page for the "science" behind the foods you eat.

http://www.dldewey.com/foodsno.htm

HiveMind

•12 years ago

2 Replies

PAN

Hi; new here and great to find this place. Recently been diagnosed systemic vasculitis, which both Rheumatologist and Neurologist think is PAN. I wondered if...

Hi; new here and great to find this place. Recently been diagnosed systemic vasc...

Wellsie

•12 years ago

12 Replies

Hello has anyone got any advice on how to deal with the scars left by the vasculitus rash or will they disappear in time?

Pest1

•12 years ago

4 Replies

Breaking news on the risks of taking omeprazole

I have just come across this information as part of a new blog on thyroiduk.healthunlocked. It seems relevant to a lot of us here, so thought I would post it...

I have just come across this information as part of a new blog on thyroiduk.heal...

Ayla

Volunteer•12 years ago

9 Replies

Does anyone take vitamin supplements to combat their fatigue? If so, what are they and do you think they do any good?

HiveMind

•12 years ago

4 Replies

Osteopenia

I have just got the results of my bone scan and this shows I have thin bones (osteopenia) T scores in spine -1.3 and right neck of femur -2. I have been told...

I have just got the results of my bone scan and this shows I have thin bones (os...

tracynoe

•12 years ago

7 Replies

First flare up since diagnosis but now stable

Been off work since March with first flare up since diagnosed in 2010,I had a bad bout of depression with it also, during this time I found this website, which...

Been off work since March with first flare up since diagnosed in 2010,I had a ba...

tinac73

•12 years ago

6 Replies

dla

I am delighted to tell you that my dla has been fully reinstated!!!! thankyou to everyone for their support and advice. the w&p info was brilliant as was the...

I am delighted to tell you that my dla has been fully reinstated!!!! thankyou t...

hamble99b

Volunteer•12 years ago

11 Replies

Due to high demand more hard copies of the Route Map for Vasculitis have been ordered

Just to let everyone know because of high demand we have ordered another batch of hard copy Route Maps today, so if anyone would still like a copy or a copy...

Just to let everyone know because of high demand we have ordered another batch o...

John_Mills

Volunteer•12 years ago

2 Replies

Congratulations to Mark and Lisa for Climbing the first peak in Wales for Vasculitis UK!!

Mark and Lindsey climbed the first peak at the weekend. Mark has Wegeners Granulomatosis. Read Mark and Lindsey's story. Below is a photo of them all taken at...

Mark and Lindsey climbed the first peak at the weekend. Mark has Wegeners Granul...

John_Mills

Volunteer•12 years ago

Be the first to reply

The Official Launch of the Route Map for Vasculitis with Genetic Alliance UK today in London

Pat John and Susan travelled to London to the official launch of the Route Map for Vasculitis with Genetic Alliance UK. (funded by the Dept of Health)....

Pat John and Susan travelled to London to the official launch of the Route Map f...

John_Mills

Volunteer•12 years ago

3 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for July 2012

Is it dangerous to come in contact with someone suffering from TB???

low calcium, iron, vitamin d?

Prickly Skin?

Scarborough Hospital patients ?

Tomorrow, 1pm at the Julie Rose Stadium, Ashford, Kent Janine Brown will be presenting a large cheque to VUK Trust for £1000

Seeking vasculitus consultant North Wales

liverpool/cheshire support group first meeting

High blood pressure!

recently diagnosed with vasculities

Does anyone (particularly those with Cerebral Vasculitis) find it hard to stay sleep and do you have any tips?

Low dose naltrexone

Vision changes

Latest Vasculitis UK/HealthUnlocked poll.

First cyclophosphamide pulse

Throat problems

Ever wondered if your multivitamin delivers what it promises? Me too.....This guide could enlighten.

Liverpool/cheshire support group meeting

DLA help needed

disability living allowance

Check out this web page for the "science" behind the foods you eat.

PAN

Hello has anyone got any advice on how to deal with the scars left by the vasculitus rash or will they disappear in time?

Breaking news on the risks of taking omeprazole

Does anyone take vitamin supplements to combat their fatigue? If so, what are they and do you think they do any good?

Osteopenia

First flare up since diagnosis but now stable

dla

Due to high demand more hard copies of the Route Map for Vasculitis have been ordered

Congratulations to Mark and Lisa for Climbing the first peak in Wales for Vasculitis UK!!

The Official Launch of the Route Map for Vasculitis with Genetic Alliance UK today in London

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