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Seeking reassurance on fatigue and recovery
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
chonkytonk
in
Pernicious Anaemia Society
2 months ago
Vit blood test
Hello lovely people. Following my recent thyroid blood test with MMH, it was suggested that as my T3 was very low I should ask GP for further Vit tests. This I did with a note included in thyroid blood test results. Today, received a letter from surgery (dictated on day I dropped off my results) calling
Hello lovely people. Following my recent thyroid blood test with MMH, it was suggested that as my T3 was very low I should ask GP for further Vit tests. This I did with a note included in thyroid blood test results. Today, received a letter from surgery (dictated on day I dropped off my results) calling
Lottyplum
in
Thyroid UK
8 months ago
The drive to reduce minimize supplementation?
I experience the feeling that reducing supplementation to be "good". It seems to be the medicial fields creed. Perhaps the medicial field's hippocratic oath is a large part of it. That they see the undersumplimentation or not supplementation as doing no harm. When in fact it is the safest thing for them
I experience the feeling that reducing supplementation to be "good". It seems to be the medicial fields creed. Perhaps the medicial field's hippocratic oath is a large part of it. That they see the undersumplimentation or not supplementation as doing no harm. When in fact it is the safest thing for them
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
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Chronic inability to fall asleep/maintain/resume sleep and electric shock sensation.
Hi everyone,Hope we're doing better today. I have been on methyl cobalamin capsules (meconerv forte) for three months now. I was on 1 tablet (1000mcg) daily. I didn't notice much improvement and the doc increased to 2 tab(2000mcg) daily. Fatigue improved but I still have chronic insomnia, anxiety, depression
Hi everyone,Hope we're doing better today. I have been on methyl cobalamin capsules (meconerv forte) for three months now. I was on 1 tablet (1000mcg) daily. I didn't notice much improvement and the doc increased to 2 tab(2000mcg) daily. Fatigue improved but I still have chronic insomnia, anxiety, depression
Orimini
in
Pernicious Anaemia Society
8 months ago
Levo being reduced, but feeling under medicated.
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Bbmamma
in
Thyroid UK
2 months ago
Vitamin B12 Injections
I was recently diagnosed with lack of B12 in my bloods (not anaemic) but most likely due to high dose Metformin and lanzoprasole as I am also diabetic. Since starting the jabs I seem to have had a PMR flare and wonder if I should go from 4 mgs back to 10 for perhaps a week or so as my legs and ankles
I was recently diagnosed with lack of B12 in my bloods (not anaemic) but most likely due to high dose Metformin and lanzoprasole as I am also diabetic. Since starting the jabs I seem to have had a PMR flare and wonder if I should go from 4 mgs back to 10 for perhaps a week or so as my legs and ankles
butterflyfarm
in
PMRGCAuk
1 year ago
Hi all
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
Doris11
in
Pernicious Anaemia Society
2 months ago
Do I need to increase folic acid/folate intake with B12 shots?
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
JazzSoprano
in
Pernicious Anaemia Society
2 months ago
Alcohol and B12/folate deficiency
Just wondering if any of you lovely people avoid alcohol? I haven't felt much like drinking recently but when I have, I feel absolutely awful the next day. Just wondering if it's just extra pressure on the body that makes me feel bad or if there's a proven connection I haven't come across yet? Thanks
Just wondering if any of you lovely people avoid alcohol? I haven't felt much like drinking recently but when I have, I feel absolutely awful the next day. Just wondering if it's just extra pressure on the body that makes me feel bad or if there's a proven connection I haven't come across yet? Thanks
ClaireWF1346
in
Pernicious Anaemia Society
2 months ago
Recent bloods .. help
Hi everyone Been having problems over years on levothyroxine , think conversion low . Decided to see private endo for t3 supplementing as nhs would not prescribe . Since December 23 , he lowered my thyroxine dose which was then 125 /150 alternate days but I was having most of the typical hypo symptoms
Hi everyone Been having problems over years on levothyroxine , think conversion low . Decided to see private endo for t3 supplementing as nhs would not prescribe . Since December 23 , he lowered my thyroxine dose which was then 125 /150 alternate days but I was having most of the typical hypo symptoms
Mazste97
in
Thyroid UK
2 months ago
borderline haemoglobin
my recent blood test show that my haemoglobin A12 level is borderline .Does this indicate that I should increase my SI of B12?Have been feeling more exhausted of late.
my recent blood test show that my haemoglobin A12 level is borderline .Does this indicate that I should increase my SI of B12?Have been feeling more exhausted of late.
Mrsannabbott
in
Pernicious Anaemia Society
8 months ago
Medichecks V. NHS data
Wisdom please I have vague symptoms (mild nausea, light headed/faint feeling, much better when outside walking etc) that I had before getting tested for DIO2 gene (tested positive) and prescribed T3 5 mg (split daily between two doses). Also take 50mg levo M/W/F and 75 mg S/S/T/T. Went to GP with
Wisdom please I have vague symptoms (mild nausea, light headed/faint feeling, much better when outside walking etc) that I had before getting tested for DIO2 gene (tested positive) and prescribed T3 5 mg (split daily between two doses). Also take 50mg levo M/W/F and 75 mg S/S/T/T. Went to GP with
Mothebear
in
Thyroid UK
8 months ago
Vitamins
Does anyone know the link to the guide on all the other vitamins you must take alongside SI B12? Tried looking through them all and can't find, TIA
Does anyone know the link to the guide on all the other vitamins you must take alongside SI B12? Tried looking through them all and can't find, TIA
Rach77788
in
Pernicious Anaemia Society
3 months ago
Health Anxiety or MS
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Muef
in
Anxiety and Depression Support
2 months ago
B1 Therapy INSTAGRAM live
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
Markbit
in
Cure Parkinson's
2 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
2 months ago
Blue Horizon Results - High Cortisol
B12
H >1476 145 - 569 pmol/L Serum Folate 16.30 8.83 - 60.8 nmol/L
B12
H >1476 145 - 569 pmol/L Serum Folate 16.30 8.83 - 60.8 nmol/L
Filsmoos
in
Thyroid UK
11 months ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
2 months ago
My last post for a while, Thanks everyone!!!
I’d like to thank everyone for all the support though the years of my PD. I have come quite a aways. Your kindness and support helped me get through the hardest years of my life. I will check back from time to time if I come up with something that can help others. I have chosen to let go of my Parkinson
I’d like to thank everyone for all the support though the years of my PD. I have come quite a aways. Your kindness and support helped me get through the hardest years of my life. I will check back from time to time if I come up with something that can help others. I have chosen to let go of my Parkinson
38yroldmale
in
Cure Parkinson's
2 months ago
Folate supplements with B12 injections
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
La2016
in
Pernicious Anaemia Society
2 months ago
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