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Vitamin B12
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Schilling Test -or something else ?
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
6 months ago
PA and FND
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
purpleabc
in
Pernicious Anaemia Society
6 months ago
sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
6 months ago
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B12 deficiency and bronchitis
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
Hatwindowwindow4
in
Pernicious Anaemia Society
6 months ago
Injecting with out of date B12 ampules
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
Cetus
in
Pernicious Anaemia Society
6 months ago
Peripheral neuropathy
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
puppy43
in
CLL Support
6 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
6 months ago
Private testing for B12 and MMA (UK)
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Shoe2
in
Pernicious Anaemia Society
6 months ago
Dizziness
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Catsmud
in
Pernicious Anaemia Society
6 months ago
VIT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW 528 L
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
LeaKolo
in
Pernicious Anaemia Society
6 months ago
Thank you and recent results
B12
- Active
75.8 pmol/L
(Range: 37.5 - 150),
Vitamin
D
62 nmol/L
(Range: 50 - 200) Adrenals, DHEA Sulphate
9.95 umol/L
(Range: 2.68 - 9.23), Cortisol
453.0 nmol/L
(Range: 166 - 507) [u]September[/u] - early morning, finger prick results; TSH
4.90mlU/L
(0.270-4.2
B12
- Active
75.8 pmol/L
(Range: 37.5 - 150),
Vitamin
D
62 nmol/L
(Range: 50 - 200) Adrenals, DHEA Sulphate
9.95 umol/L
(Range: 2.68 - 9.23), Cortisol
453.0 nmol/L
(Range: 166 - 507) [u]September[/u] - early morning, finger prick results; TSH
4.90mlU/L
(0.270-4.2
Holly_Tree
in
Thyroid UK
8 months ago
my story
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
Beadbuddy
in
Pernicious Anaemia Society
6 months ago
Deadline 5pm 22nd August 2023 - Comments on NICE's new B12 deficiency guidelines (UK document)
https://www.b12deficiency.info/
vitamin
-
b12
-otc-update-and-nice-consultation/ These are a few of my thoughts but happy to be corrected as struggling at moment and have probably missed something. I've noticed that the list of symptoms of B12 deficiency in the draft document is quite short.
https://www.b12deficiency.info/
vitamin
-
b12
-otc-update-and-nice-consultation/ These are a few of my thoughts but happy to be corrected as struggling at moment and have probably missed something. I've noticed that the list of symptoms of B12 deficiency in the draft document is quite short.
Sleepybunny
in
Pernicious Anaemia Society
10 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Normal B12 levels?
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
ReallyWondering
in
Pernicious Anaemia Society
6 months ago
B12 Question
My question revolves around
B12
. At diagnosis from GP tests - Serum
vitamin
B12
level 411 ng/L [187.0 - 883.0] Serum folate level 3.9 ug/L [2.7 - 15.0] I believe this to be total B12.
My question revolves around
B12
. At diagnosis from GP tests - Serum
vitamin
B12
level 411 ng/L [187.0 - 883.0] Serum folate level 3.9 ug/L [2.7 - 15.0] I believe this to be total B12.
Jutokids
in
Thyroid UK
11 months ago
Could this be the beginning of something good for B12 in the UK ?
https://www.ukri.org/who-we-are/how-we-are-doing/research-outcomes-and-impact/bbsrc/better-b12-safer-and-sustainable-production/ Am imagining the day when we can purchase B12 phials in our local pharmacies ? Or will Big Pharma make a move ? Whilst living in Crete for 15 years I was able to buy 3 phials
https://www.ukri.org/who-we-are/how-we-are-doing/research-outcomes-and-impact/bbsrc/better-b12-safer-and-sustainable-production/ Am imagining the day when we can purchase B12 phials in our local pharmacies ? Or will Big Pharma make a move ? Whilst living in Crete for 15 years I was able to buy 3 phials
Marz
in
Pernicious Anaemia Society
6 months ago
Vit B12 too high?!!
Just had my
vitamin
B12
blood test results back and and it's way over what it should be apparently 2000 ng(200-900) could this be causing my double visionand balance problems. My GP is not going to be very happy with me supplementing my
vitamin
B12
.
Just had my
vitamin
B12
blood test results back and and it's way over what it should be apparently 2000 ng(200-900) could this be causing my double visionand balance problems. My GP is not going to be very happy with me supplementing my
vitamin
B12
.
PolyannaYorkshire
in
Pernicious Anaemia Society
1 year ago
Frequency
Someone posted that some of us inject 2 to 3 times a day. I was going to comment some of us inject 4 times a day but never found that comment again. I personally did trials of 1.2,3,4 times a day. Other than the 4 times a day it was about getting more B12. Then it came to me that more frequent might
Someone posted that some of us inject 2 to 3 times a day. I was going to comment some of us inject 4 times a day but never found that comment again. I personally did trials of 1.2,3,4 times a day. Other than the 4 times a day it was about getting more B12. Then it came to me that more frequent might
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
puzzled
My latest result is Serum
vitamin
B12
level (XE2pf) 288 ng/L [110 - 914] should I supplement?
My latest result is Serum
vitamin
B12
level (XE2pf) 288 ng/L [110 - 914] should I supplement?
Sususulio
in
Pernicious Anaemia Society
1 year ago
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