Posts - PBC Foundation | HealthUnlocked

Administrator•8 months ago

Dr Martin Weltman joins us from Sydney, Australia tomorrow to answer your #PBC questions at 1pm local time. That makes it 2am UK time and still Wednesday for...

Expert Q&A session

Dr Martin Weltman joins us from Sydney, Australia tomorrow to answer your #PBC q...

Administrator•8 months ago

I had asked if anyone's social life had changed as a result of PBC. I know in my other group many members, unfortunately, lost friends over having to...

friendships

I had asked if anyone's social life had changed as a result of PBC. I know in my...

Administrator•8 months ago

Hepatocytes - These are simply the cells of the liver. Each of these cells performs all of the functions of the liver - there is no...

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Wednesday's 'Word'

Hepatocytes - These are simply the cells of the liver. Each of these cells perf...

Administrator•8 months ago

I almost forgot...... How has having PBC affected your social life? How do you handle it?

Tuesday 'Tips'

I almost forgot...... How has having PBC affected your social life? How do you...

Administrator•8 months ago

Hello from sunny south Florida! I am enjoying our last to weeks in the Keys. This winter was a very relaxing and much needed vacation. We had little...

How does one coordinate?

Hello from sunny south Florida! I am enjoying our last to weeks in the Keys. T...

hi I’ve just had my first fibro scan and just got my results on the nhs app it says 6.6 kPa CAP 173 can anyone please tel me if this is a bad score my next...

•8 months ago

2 Replies

fibro scan result

hi I’ve just had my first fibro scan and just got my results on the nhs app it s...

Lena2011

•8 months ago

I have been URSO for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT...

ALT and AST

I have been URSO for 4 months and will have bloods drawn in May. IF i am a resp...

How common is arthritis of any kind with PBC?

•8 months ago

10 Replies

Arthritis

https://www.realsimple.com/health/mind-mood/emotional-health/self-care-tips

•8 months ago

1 Reply

Self Care Tips

Administrator•8 months ago

I live about 50 miles west of St. Louis, MO. Last week we literally had a couple of days in the high 80's - one day even hit 90. It was glorious! shorts and...

weather or PBC?

I live about 50 miles west of St. Louis, MO. Last week we literally had a couple...

Hello everyone, hope you are having a nice day! Just wondering….i was just hit with a wave of dizziness….something i have never had before. I wasn’t bending...

Administrator•8 months ago

1 Reply

Dizziness?

Hello everyone, hope you are having a nice day! Just wondering….i was just hit w...

Autoimmune Association · Effective communication with your health care team is a critical component to successful diagnosis and treatment. But what should...

•8 months ago

4 Replies

from The Autoimmune Association

Autoimmune Association · Effective communication with your health care team...

Administrator•8 months ago

https://my.clevelandclinic.org/health/diagnostics/22058-comprehensive-metabolic-panel-cmp Personally, I always have a CMP (comprehensive metabolic profile)...

helpful labs

https://my.clevelandclinic.org/health/diagnostics/22058-comprehensive-metabolic-...

What have you done in the past week or so just for 'you'? We have to make time to care for ourselves mentally as well as physically. We all matter!

Administrator•8 months ago

10 Replies

Monday "Me" Day

What have you done in the past week or so just for 'you'? We have to make time ...

Administrator•8 months ago

https://www.globenewswire.com/news-release/2024/03/14/2846749/0/en/FDA-s-Approval-of-Breakthrough-NASH-Treatment-Opens-Door-for-a-Long-Neglected-Patient-Populat

Breakthrough for Fatty Liver Disease

https://www.globenewswire.com/news-release/2024/03/14/2846749/0/en/FDA-s-Approva...

Administrator•8 months ago

Happy St. Patrick's Day to you all! I know we celebrate the 'green'... but how about celebrating one thing about YOU today. Share with us if you...

Celebrate!

Happy St. Patrick's Day to you all! I know we celebrate the 'green'... but ho...

https://healthunlocked.com/redirect?url=https%3A%2F%2Fwww.globenewswire.com%2Fnews-release%2F2024%2F03%2F14%2F2846749%2F0%2Fen%2FFDA-s-Approval-of-Breakthrough-

Administrator•8 months ago

2 Replies

great news for fatty liver folks....

https://healthunlocked.com/redirect?url=https%3A%2F%2Fwww.globenewswire.com%2Fne...

Had my every 6 month check up with the hepatologist today. Labs were all good. My alk phos is 121 - normal range for my lab is 37-153. Kidney function good as...

Administrator•8 months ago

3 Replies

Good report

Had my every 6 month check up with the hepatologist today. Labs were all good. M...

Don't want you to think I'm not responding to your comments or questions. I am on my way to my own hepatologist this morning. I'll be back on the FB page later...

Administrator•8 months ago

14 Replies

later on today

Don't want you to think I'm not responding to your comments or questions. I am o...

As well as PBC I have fibromyalgia and complex PTSD. I’ve also been experiencing some major and unusual anxiety and depression in perimenopause, different from...

Administrator•8 months ago

1 Reply

Medicinal cannabis?

As well as PBC I have fibromyalgia and complex PTSD. I’ve also been experiencing...

Turquoise2075

•8 months ago

4 Replies

Friday Fun Question

What are some of your favorite 'comfort' foods? For me, it's roast, potatoes, and carrots. 😀

What are some of your favorite 'comfort' foods? For me, it's roast, potatoes, a...

https://www.globenewswire.com/news-release/2024/03/14/2846749/0/en/FDA-s-Approval-of-Breakthrough-NASH-Treatment-Opens-Door-for-a-Long-Neglected-Patient-Populat

Administrator•8 months ago

11 Replies

fatty liver disease breakthru

https://www.globenewswire.com/news-release/2024/03/14/2846749/0/en/FDA-s-Approva...

Administrator•8 months ago

In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of...

We understand....

In my initial bio, I related to you that I had PBC for some 20 years before rece...

What do you feel is the biggest change in your life since diagnosis?

Administrator•8 months ago

8 Replies

Thursday's 'Thoughts'

https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - never lab results or...

Administrator•8 months ago

26 Replies

Urso Calculator

https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ...

NAFLD - Non alcoholic fatty liver disease. This is very common, characterized by deposits of fat in the liver cells. When these...

Administrator•8 months ago

3 Replies

Wednesday's 'Word'

NAFLD - Non alcoholic fatty liver disease. This is very common, characterized ...

Today I'd like us to all share what we have found to help with the dreaded itching so often associated with having PBC. For me.....1) I never used perfumed...

Administrator•8 months ago

12 Replies

Tuesday 'Tips'.... regarding itching

Today I'd like us to all share what we have found to help with the dreaded itchi...

Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the...

Administrator•8 months ago

4 Replies

Mrs d

Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urs...

coronavirus19

•8 months ago

11 Replies

diagnosis difficulty

We have had many new members in the last month or so. I wonder what anyone had to go thru to get to their diagnosis? For any of our members, did you have...

We have had many new members in the last month or so. I wonder what anyone had t...