Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,404 members • 8,053 posts

All posts for July 2019

Stage 4 PBC

Hello. Yesterday I found out I am now in stage 4 PBC. I was put on my doctors cirrhosis watch list and have to have an endoscope I think it is called once a...

Hello. Yesterday I found out I am now in stage 4 PBC. I was put on my doctors ci...

•5 years ago

Itching with Urso

I have PBC which has been controlled by Urso for several years but recently my scalp has started itching incredibly. Can this be a reaction to Urso?

I have PBC which has been controlled by Urso for several years but recently my s...

•5 years ago

Anyone have Sjorgen's or dry mouth too?

I know PBC and Sjorgen's tend to go hand in hand so this might help someone else. I was at the Mayo Clinic last week and it was suggested I may have Sjorgen's...

I know PBC and Sjorgen's tend to go hand in hand so this might help someone else...

•5 years ago

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PBC and bladder cancer

Hi. Has anyone here with PBC also been diagnosed with bladder cancer? Have had tumour removed and awaiting treatment plan possibly chemo using mitomycin into...

Hi. Has anyone here with PBC also been diagnosed with bladder cancer? Have had t...

•5 years ago

Forxiga (dapagliflozin)

Does anyone take this for diabetes control I'm concerned on effect on liver

Does anyone take this for diabetes control I'm concerned on effect on liver

•5 years ago

No Symptoms

I've been diagnosed with pbc for 10 years and have never had any symptoms relating to this. I have other auto immune problems such as Raynauds, Sjogrens plus...

I've been diagnosed with pbc for 10 years and have never had any symptoms relati...

•5 years ago

Pbc

Has any body been called to try a new tested drug I’ve received plenty of info and they say I will be monitored closely Not sure the name but hoping it’s...

Has any body been called to try a new tested drug I’ve received plenty of info a...

•5 years ago

PBC

I asked my PBC Consultant today "Should I get my son tested for PBC?" He replied. No not at all. Men don't get it. God help us all the men out there with PBC....

I asked my PBC Consultant today "Should I get my son tested for PBC?" He replied...

•5 years ago

I have recently moved to Almeria, Spain and have been looking for a support group but can't find one. Any suggestions would be appreciated.

Pbc support in spain

Pbc support in spain

•5 years ago

PBC

I have been so unwell fo over 5 years had a blood test it was 780 and rising , hospital put me on urso 5 a day 250 mg a tab,a vitamin D since being on them I...

I have been so unwell fo over 5 years had a blood test it was 780 and rising , h...

•5 years ago

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