Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,404 members • 8,053 posts

All posts for November 2018

Flu shots

Was wondering if geting a flu shot with pbc is ok .

Ballgrl

•6 years ago

8 Replies

Urso and Iron

Hi everyone. I take 500mg urso and a couple of iron tablets before I go to bed at night but the next day I suffer from terrible diarrhoea and stomach pain...

Hi everyone. I take 500mg urso and a couple of iron tablets before I go to bed ...

Han73

•6 years ago

8 Replies

My First Post

I am 67 yr. living in Colorado, USA March 16, 2018 at 3:30 pm my doctor called to advise me that from the routine lab work indicated I had PBC. He had...

I am 67 yr. living in Colorado, USA March 16, 2018 at 3:30 pm my doctor called ...

barbararobino303

•6 years ago

21 Replies

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Just got the biopsy result

😭😭 it’s written florid duct and periportal expansion, stage 2 PBC. Anybody with same stage? Now what to do?

😭😭 it’s written florid duct and periportal expansion, stage 2 PBC. Anybody wit...

Sona_akb

•6 years ago

23 Replies

PBC

Hi I’m becks and I have PBC , Was diagnosed 2016 , I’m on urso 1000mg a day , I have tolerated the meds very well , however since Feb this year I have...

Hi I’m becks and I have PBC , Was diagnosed 2016 , I’m on urso 1000mg a day , ...

Hidden

•6 years ago

18 Replies

PBC Fatigue and AIP Diet

Have you ever heard of the AIP diet? About 10 days on the AIP diet (Dr. Amy Myers) and the fatigue started to lift. I have not felt that amount of energy in...

Have you ever heard of the AIP diet? About 10 days on the AIP diet (Dr. Amy Mye...

SuperJo

•6 years ago

22 Replies

PBS chronic Fatique

I have PBC. One of the symtoms is Chronic Fatigut but on occasions the fatigue can be more severe and I feel exhausted for long periods. Does anyone else have...

I have PBC. One of the symtoms is Chronic Fatigut but on occasions the fatigue c...

stevie1

•6 years ago

13 Replies

Flu jag

Hi all should I get the flu jag? Diagnosed with PBC 4 weeks ago. Already on urso but still to have my first hospital appointment

Hi all should I get the flu jag? Diagnosed with PBC 4 weeks ago. Already on urso...

BabyK

•6 years ago

12 Replies

Can I get Ursodiol over the counter?

Hello everyone I'm Jay I have gallstones and I want to try Ursodiol to help try devolve my stone Can someone tell me can I get Ursodiol over the counter or can...

Hello everyone I'm Jay I have gallstones and I want to try Ursodiol to help try ...

Jaydublin

•6 years ago

20 Replies

ALP level and stage

Hi everyone, I had a liver biopsy couple of days and stressfully awaiting the result. I had two AMA test with complete different titer within 10 days ( first...

Hi everyone, I had a liver biopsy couple of days and stressfully awaiting the re...

Sona_akb

•6 years ago

35 Replies

AMA titer

Hi everyone. I had AMA and ANA test 10days ago with titer of 1:320 for AMA and 1:640 for ANA, but my rheumatologist Dr wanted to redo them in another...

Hi everyone. I had AMA and ANA test 10days ago with titer of 1:320 for AMA and 1...

Sona_akb

•6 years ago

12 Replies

MRE (Magnetic Resonance Elastography) "My Results" So much for trusting Biopsy and Ultrasound. Also... High ferritin may skew MRE score.

Hey friends, My Biopsy 2 years ago said "zero" evidence of PBC. My labs though said I had PBC. I was put on URSO since 2016. Only thing elavated for 2 years...

Hey friends, My Biopsy 2 years ago said "zero" evidence of PBC. My labs though ...

Ktltel

•6 years ago

64 Replies

Waiting biopsy results

I am now waiting my biopsy results which is making me worry worry in what overlap syndrome I have with my PBC and if it will change how I am living been...

I am now waiting my biopsy results which is making me worry worry in what overl...

Cherry69

•6 years ago

7 Replies

sand like substance on skin

Hi I have crystals and sand like substance on my body. Every doctor I have seen is arrogant and dismiss it as psychiarist although I can show them the physical...

Hi I have crystals and sand like substance on my body. Every doctor I have seen ...

Crystallstar

•6 years ago

2 Replies

Baking Soda water

Has any one read about how drinking baking soda water can help the spleen regulate the immune response and reduce inflammation? Jlruggie

Has any one read about how drinking baking soda water can help the spleen regula...

Jlruggie

•6 years ago

8 Replies

Feeling frustrated and despondent LFTs rising

Hi, sorry everyone, this is a bit of a rant as I need to get this off my chest...only you people on here really know what it feels like when you get your blood...

Hi, sorry everyone, this is a bit of a rant as I need to get this off my chest.....

Hils67

•6 years ago

63 Replies

Multivitamins

I have spent a lot of time searching for the best iron free multivitamin. I know someone here posted that the vit A should be as beta carotene. Suggestions?

I have spent a lot of time searching for the best iron free multivitamin. I kno...

gwillistexas

•6 years ago

38 Replies

Our Drugs

There have been a lot of mixed thoughts on some of our drugs for PBC. But at the end of each day, what really matters is that we’re all still here to send...

There have been a lot of mixed thoughts on some of our drugs for PBC. But at the...

gwillistexas

•6 years ago

16 Replies

Sudden shaking and cold

Hi, I was diagnosed recently and awaiting My appointment with liver specialist. Two night ago I became really ill suddenly I felt really nauseous and...

Hi, I was diagnosed recently and awaiting My appointment with liver spe...

Flowerwh

•6 years ago

7 Replies

Maybe I shouldn’t post OCALIVA side effects. I’m hoping everyone here knows them

MEDICATION GUIDE OCALIVA (o-CAL-eh-vah) (obeticholic acid) tablets What is the most important information I should know about OCALIVA? If you have...

MEDICATION GUIDE OCALIVA (o-CAL-eh-vah) (obeticholic acid) tablets What...

SunnyXXOO

•6 years ago

23 Replies

Metformin

How many people are in metformin? I was also in metformin for 2 years for my reactive hypoglycemia but stop taking it from last month..while taking it and semi...

How many people are in metformin? I was also in metformin for 2 years for my rea...

Sachin1234

•6 years ago

Be the first to reply

This is Health Unlocked, by PBC Foundation but it is NOT the PBC Foundation

Confused?? Yeah, me too... So, really simply this is a forum technically hosted and owned by "Health Unlocked". The PBC Foundation hosts and moderates this...

Confused?? Yeah, me too... So, really simply this is a forum technically hosted ...

PBCRobert

Partner•6 years ago

13 Replies

TERRIBLE ITCHING ALL OVER ALL DAY EVERYDAY!

I am suffering from itching nothing that my University of Michigan dr tried works for me I've itched constantly since August 2018 until now with no relief. As...

I am suffering from itching nothing that my University of Michigan dr tried work...

genj65

•6 years ago

14 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2018

Flu shots

Urso and Iron

My First Post

Just got the biopsy result

PBC

PBC Fatigue and AIP Diet

PBS chronic Fatique

Flu jag

Can I get Ursodiol over the counter?

ALP level and stage

AMA titer

MRE (Magnetic Resonance Elastography) "My Results" So much for trusting Biopsy and Ultrasound. Also... High ferritin may skew MRE score.

Waiting biopsy results

sand like substance on skin

Baking Soda water

Feeling frustrated and despondent LFTs rising

Multivitamins

Our Drugs

Sudden shaking and cold

Maybe I shouldn’t post OCALIVA side effects. I’m hoping everyone here knows them

Metformin

This is Health Unlocked, by PBC Foundation but it is NOT the PBC Foundation

TERRIBLE ITCHING ALL OVER ALL DAY EVERYDAY!

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