Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,404 members • 8,053 posts

All posts for February 2018

Gastroenterology

I need some advice my gastroenterology consultant has left the hospital, aparantly I can't be put on other consultants list as there full, so the hospital say...

I need some advice my gastroenterology consultant has left the hospital, aparant...

Pinkcrush

•6 years ago

8 Replies

newly diagnosed

I was diagnosed with pbc two weeks ago by way of biopsy I have started URSO I have been reading that lots of people don't respond to URSO and I might be one of...

I was diagnosed with pbc two weeks ago by way of biopsy I have started URSO I ha...

kingsnorth

•6 years ago

9 Replies

Well you don’t look sick?

I have only been able to work 2 days in the last 3 weeks. I tried to go yesterday and lasted 45 minutes before I had to leave. A co-worker said well you sure...

I have only been able to work 2 days in the last 3 weeks. I tried to go yesterda...

Grannacat

•6 years ago

7 Replies

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I m suffering from Pbc with AIH. I take medicine BIOCOL 300. recently my doctor has advised to take steroids. What is its side effect.

Steroids is good or bad.

tualok-123

•6 years ago

2 Replies

PIP

Just wondered how many on here receive PIP for their autoimmune condition? I have never claimed it and seriously thinking about it. Thanks.

Just wondered how many on here receive PIP for their autoimmune condition? I hav...

Alley27

•6 years ago

7 Replies

Long time off of here due to life lol.

Hi everyone. I have been away from pbc foundation for a very long time reason being my life has gone through a lot of changes over the past couple of years. I...

Hi everyone. I have been away from pbc foundation for a very long time reason be...

Alley27

•6 years ago

6 Replies

Reflux and upper right "liver" pain?

Hey all! I've been having more liver pain than normal with my PBC, mainly because I've been sick with sinusitis and fever and I've had to take more pain meds...

Hey all! I've been having more liver pain than normal with my PBC, mainly becau...

NotorDJP

•6 years ago

4 Replies

exhaused and irritable

I have noticed since being diagnosed with PBC that I have much less patience and am much more irritable. Has anyone else experienced this? My fatigue is also...

I have noticed since being diagnosed with PBC that I have much less patience and...

happy0507

•6 years ago

13 Replies

Please tell them to find cure for autoimmune diseases

I feel like I have been kept in the dark for too long about my autoimmune conditions. I wish a cure should be found sooner. I don’t like my medications they...

I feel like I have been kept in the dark for too long about my autoimmune condit...

Evaibrahim60

•6 years ago

2 Replies

Hit a wall

Hello I’ve got pbc in my 3rd year on urso I’ve been under a lot of stress last 3 months work full time looking after sick mother whose now gone into nursing...

Hello I’ve got pbc in my 3rd year on urso I’ve been under a lot of stress last 3...

tessiecat

•6 years ago

8 Replies

Alternative approach to PBC

Hi all I've been diagnosed with PBC and have been taKing 1000th Ursodeoxycholic per day. Dry mouth in particular driving me crazy. Just wondering if anyone has...

Hi all I've been diagnosed with PBC and have been taKing 1000th Ursodeoxycholic ...

M_rose

•6 years ago

7 Replies

Pbc/Aih

Does any body struggle with really bad feet pain. And struggle to walk on them in a morning

Does any body struggle with really bad feet pain. And struggle to walk on them ...

janine541

•6 years ago

26 Replies

Azathiropine.

Hi all, started on azathiropine as being treated ow for AIH as well as PBC . Has anyone who is in similar situation ?my question is .. if on immunosuppressant...

Hi all, started on azathiropine as being treated ow for AIH as well as PBC . Has...

Hidden

•6 years ago

11 Replies

Bike extract

Has anyone ever tried a bile extract along with the Urso? I was told by someone that they were able to bring their labs to normal and eventually get off Urso...

Has anyone ever tried a bile extract along with the Urso? I was told by someone...

LorraineLouise

•6 years ago

18 Replies

My Liver Biopsy

Hi All, I have been diagnosed with PBC and started taking Urso 300mg 3 times a day. My question is how do I know for sure if it is PBC? My biopsy report...

Hi All, I have been diagnosed with PBC and started taking Urso 300mg 3 times a d...

Ellyne

•6 years ago

12 Replies

Allergies to URSO. Help What can I do?

Dilemma, what can I do if I am allergic to treatment of PBC. The pills cotain sodium lauryl sulfate a big allergen for me. What other meds similar to URSO can...

Dilemma, what can I do if I am allergic to treatment of PBC. The pills cotain so...

Sdone

•6 years ago

6 Replies

Urso and weight gain

I was diagnosed with PBS in Dec of 17. I have been followed for years due to my LFT's being extremely high and was just told it was fatty liver. Finally I...

I was diagnosed with PBS in Dec of 17. I have been followed for years due to my...

pjfort

•6 years ago

9 Replies

Stevia

Is stevia ok to use? The organic plant sweetener

Pamela4475

•6 years ago

5 Replies

Right rib in pain

I've been having pain on the right side of my hip. I thought I just bruised it, but yesterday the bottom of my spin and the left side of my hip started...

I've been having pain on the right side of my hip. I thought I just bruised it, ...

Hidden

•6 years ago

1 Reply

PBC

ok, need help. I have found that there is no other medication for the pbc. my husband was diagnosed with it a few years back. we have been paying a arm and...

ok, need help. I have found that there is no other medication for the pbc. my ...

cutt4552

•6 years ago

8 Replies

Correlation between PBC and Crohn’s or Ulcerative Colitis

So I finally had my liver biopsy and it would appear I am at the end of Stage 2 PBC. As my immune system is compromised and I have been diagnosed with PBC,...

So I finally had my liver biopsy and it would appear I am at the end of Stage 2 ...

GhostHunter

•6 years ago

2 Replies

Shellfish

Just read the fizzy drink post, intresting. Is it also true we can't eat shellfish? I thought that was only if you had hemochromatosis?

Just read the fizzy drink post, intresting. Is it also true we can't eat shellfi...

Bobbiesitzman

•6 years ago

45 Replies

Hello everyone longtime 🙏

I’m moving to Chantilly Virginia so bye to Kentucky after 16 years 😔🤗.. So I need a help from pbcer living around that area for good liver and...

I’m moving to Chantilly Virginia so bye to Kentucky after 16 years 😔🤗.. So I ...

Sachin1234

•6 years ago

10 Replies

Fizzy drinks

Tell me why we need to avoid fizzy drinks? I’ve seen it but did not understand

Pamela4475

•6 years ago

28 Replies

PBC Gallbladder removed

Hello I am new to this site and truly appreciate reading all of your questions and all of the support you give one another . I was diagnosed a year ago with...

Hello I am new to this site and truly appreciate reading all of your questions ...

Seybeaute

•6 years ago

5 Replies

Hep B vaccination reaction

Had the series of 3 Hep B vaccinations in the 1990's without any problems. After my PBC diagnosis I was told to re-do the series (no immunity). Had the 1st...

Had the series of 3 Hep B vaccinations in the 1990's without any problems. Afte...

kp1234

•6 years ago

1 Reply

Pbc/Aih

Hi all hope everybody is well. Has anybody come off urasal and felt better

janine541

•6 years ago

4 Replies

Urso for life?

Hi i've just had a diagnosis of pcb today after high protein levels, im going to take urso to bring them back down, once you start taking urso is it for life?

Hi i've just had a diagnosis of pcb today after high protein levels, im going to...

5422

•6 years ago

11 Replies

Difference in reference range for Mayo Clinic vs other labs?

Does anybody know why Mayo Clinic puts the reference range for Mitochondrial (M2) antibodies at different numbers than other laboratories? Mayo Clinic:...

Does anybody know why Mayo Clinic puts the reference range for Mitochondrial (M2...

alexsmith_1984

•6 years ago

4 Replies

Miserable

My stomach feels so bloated, only in stage two, Just feels hard and miserable. I am not constipated. My back has been hurting all wkend. Has anyone have cuts...

My stomach feels so bloated, only in stage two, Just feels hard and miserable. I...

KevinHall10_

•6 years ago

12 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2018

Gastroenterology

newly diagnosed

Well you don’t look sick?

I m suffering from Pbc with AIH. I take medicine BIOCOL 300. recently my doctor has advised to take steroids. What is its side effect.

PIP

Long time off of here due to life lol.

Reflux and upper right "liver" pain?

exhaused and irritable

Please tell them to find cure for autoimmune diseases

Hit a wall

Alternative approach to PBC

Pbc/Aih

Azathiropine.

Bike extract

My Liver Biopsy

Allergies to URSO. Help What can I do?

Urso and weight gain

Stevia

Right rib in pain

PBC

Correlation between PBC and Crohn’s or Ulcerative Colitis

Shellfish

Hello everyone longtime 🙏

Fizzy drinks

PBC Gallbladder removed

Hep B vaccination reaction

Pbc/Aih

Urso for life?

Difference in reference range for Mayo Clinic vs other labs?

Miserable

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